I am wondering, how do wear your pants with your ostomy? To those who wear the bag inside their pants, how does it not smoosh, rub or bother your stoma? Does it not snag on the bag and pull the bag...
I have had a loop Ileostomy for about two and a half years. Overall, everything seems to be working ok with it. I knew from the beginning that occasionally, I may feel the need to pass rectally. I...
I had my surgery at Strong Memorial in Rochester. Dr. Monson....
I also had a very hard time with the Crohns spreading and making me miserable. I tried everything, all stages of rx meds, otc, holistic, ect. Nothing worked for me. Ended up having large and small...
How did you get in touch with someone who knew what they were doing?! Whenever I call and ask about suggest products (like the emails/website say to do), they simply read me the catalog. I too hate...
I believe they have pills you can take to make your output/gas less smelly. I don't use them, I go to the bathroom if that happens and crack open my two piece to let the gas out. I haven't noticed...
I was wondering how anyone with an Ileostomy faired with the stomach bug? My husband has it, and I just know I will be next. I haven't had any stomach bug issues since my surgery a year ago, so I am...
I did finally start the Entyvio, I had my second infusion yesterday. My only question is, has anyone on this experienced an increase in anxiety at all? Over the past two weeks I have noticed I am...
I still haven't started. Apparently the co pay assistance only works with certain insurance companies. It doesn't work with mine. It would cost me over 6 grand per infusion, which is not something I...
I have still not started my Entyvio. I need their co pay assistance, and they are having a hard time finding a pharmacy that will bill me properly :( I just want to hurry up and start this and then...
I will have my first Entyvio infusion on Thursday. I was wondering, would I be able go to work after? Did it make any of you feel any differently?....
Everything I find is out of Europe. That's all good and everything, and those videos and all of the articles sound extremely promising. I'd like to read about it from an accredited American source...
All of the sudden, I'm starting to see things about this supposed "cure" for Crohn's disease... However, it seems to always be followed by requests for funding. So I am curious, is this legit? I have...
Thank you!! My doctor and I are meeting with a rep on Wednesday. I hope this one works!!...
My doctor just told me he wants me to try Entyvio. We just did a blood test that showed Humira isn't doing anything. Did you get any sort of financial aid for Entyvio? I am worried about the cost. I...
I know I am no doctor, but I too had issues with tingling arms/legs with reoccurring migraines and restless leg type symptoms. It turned out to be a severe magnesium deficiency. Apparently testing...
I have low B levels as well, but that I just take a generic suppliments pill for. Sometimes my doctor will give me a shot when I have an appointment. I have quite a few vitamin/electrolyte...
In the beginning of June I will be having an EUA to determine if the fistulas are all gone/healed, to see if my innards are ready for a reversal. I am very anxious to have my reversal, but ever since...
I've been taking the oxide and it seems to help. My levels are still on the low side, but high enough to have avoided the infusion center the past two weeks. I find out tomorrow if I'll make it week...
I had/have occasional bouts with the mucous poops. I was getting a raw bum because the stuff would leak out and I wouldn't even know it. So I was irritating my skin. My doctor said to use a skin...
I had a loop ileostomy in October. Although everything leading up to the need for it (Crohns/Fistulas) have healed, I've done nothing but struggle with dehydration and electrolytes. To put it simply,...
Does anyone with an Ileostomy have magnesium issues? I have to take magnesium daily, but still end up needing an infusion every 1-2 weeks. I have tried SlowMag, liquid and now oxide. Nothing seems to...
Every week I have a CMP, CBC and Prealbumin test done. I do have issues with my electrolytes. I try to add salt to everything and eat salty snack as much as possible. My doctor says I just need to...
I had received a temporary ileostomy in October. I have been struggling with dehydration and my electrolytes ever since. I have found that I could drink gallons of liquid a day, and never feel...
I have had Crohn's since 2007, and have been on everything. Pentassa, Enticort, Prednisone, and 6MP. Pentassa and Enticort both didn't seem to help, and the side effects were terrible. I had a bad...
Hello! Two months ago I had surgery to remove a portion of both my small and large intestine. I ended up septic and had to undergo another surgery four days later that resulted in a temporary...