I would recommend seeing an actual gastroenterologist. Especially if you know of one that often deals with j-pouch patients. Some surgeons are solid in other medical issues, but some are referred to...
I'm a j-poucher. I seem to be consistently having issues. Haven't been able to get off my Cipro, but today things are worse. This morning I started to feel gassy (the burping feeling as opposed to...
I considered surgery after about 8 years of suffering with almost constant ulcerations, inflammation and symptoms. I was fairly anti-med. I got off of Prednisone once and wasn't about to go back on...
Definitely listen to what your body is telling you every step of the way. I had a total colectomy with an end ileo in my first surgery. They removed something like 225 lymph nodes and I had a lot of...
I ran and lifted weights with my end ileo when I had it. It was fine. I didn't wear anything with it I just usually emptied it first. The underwear that holds the bag in place or a belt probably...
I had tried ordering through my work supplier initially and they drove me insane. I ended up trying Byram Healthcare. They were great! Knowledgeable, got whatever scripts I needed to get my supplies...
It's hard to say. Subtotal colectomy is nonspecific and everyone is different. I would be happy to go into a little more detail with some more information but you really should post a new topic with...
I too am a j-poucher due to a combination of UC and cancer. After this scope my doctor wants to see me yearly for the same to make sure there's no cancer. I think they extend it as time goes on but I...
I used to order through Byram. They would tell me what limits my insurance company set. The numbers they told me were a little weird and didn't always make sense but I never had an issue....
I ended up getting the Cipro script and had my first dose Friday night. It was almost an immediate improvement in how my stomach felt and symptoms of urgency and being uncomfortable in the bathroom....
Back from the doctor's. He's inclined towards pouchitis. It's possible I have mild pouchitis but I'm not going nonstop with little to no periods without urgency. It makes some sense but I think of...
It should slow down as the bowel gets used to the changes but everybody is different. I started fairly slow and never really had to take Imodium or fiber the whole time I had an end ileo. I blame it...
Thank you for the replies. I'm sure I could stand to be more patient. After a year of dealing with surgeries I want to be done and feeling good. It is definitely a struggle in the bathroom though....
I'm looking for some honest insight. Many of you have been through much more than I have at this point. I do a lot of research and have pulled a lot of great information from this site in particular....
Sorry things aren't going so well for you :(. Hoping things will get better. As to your toning up question. Weights are good for toning up, but you want light weights. Which is probably better with a...
Never tried it. However, it's not supposed to be absorbed very well by the body. There are supposed to be less systemic side effects. Hope it goes well for you!...
Thanks for all the tips! I did order some of the benzoin tincture (the geritrex stuff). I tried a little on my arm and it's pretty sticky to say the least. By the time I got it the skin was already...
Dang, all I got was PCA. Never got offered an epidural. It had morphine and there was definitely still pain. All it ever did was make me feel a little tired for a bit after each dose. Once the...
This benzoin. Does it have to be removed every change or just leave it because it's such a pain. If my skin is irritated I definitely don't want to be using alcohol wipes. Update on the spot: It's...
Well, I ended up changing my bag early. Sometimes it wrinkles about an hour after I put it on... drives me nuts. Yes, it was dry. Not quite sure what's going on seems to only happen with 1 piece...
Also, wondering if insurance would likely cover this or out of pocket cost? Thanks!...
Surgery was July 1. It's a little irritated all the way around the stoma just very close to the edge. Just today it started to look more like an ulcer (kind blood blister very thin running about...
I have a small area just below my stoma (like literally where you can see the stitches) that's ulcerated now. It started as a tiny sore, but is getting slightly worse. I try very hard to get my...
I've only had the first step of a 3 step procedure. I was, essentially, in a constant flare for the past 10 years. My doctor said my colon looked terrible, stove pipe, ulcerated, lesions. Just awful,...
Hmm... I just got one of these today and tried it out. I was under the impression you stretch it out then fold it over itself some and flatten that....
This seems very odd. From what I know they have to leave the rectum until they create the pouch....
Step 2 the rectum is completely removed providing they are doing an ileoanal reservoir (from what I understand, actually have a few more questions for my doctor). But, in ileoanal reservoir, as near...
Make sure you do a fantastic job cleaning. The spores can get on things and potentially re-infect. Despite how gross a stool transplant may sound, they really do have terrific results. Better than...
Food for thought: The small intestine has to take the roll of what your large intestine used to do... largely storage functions and absorbing water. Alcohol and water are fairly similar. Now, maybe...
The skin is actually decent until you get to the very edge where the stoma comes out. There it's a bit red and beatup looking. No idea how I could possibly fix this as I don't want to cut the stoma...
If the Dificid doesn't work you may be eligible for a stool transplant. It's a little gross, but is well known for having fantastic results for C. diff patients and just may help your UC as well....
I think Ensures taste pretty decent. First time I had them I noticed a vitamin after-taste I wasn't fond of, but going down they were fine. I had a few recently and didn't even notice that anymore....
I had some lower back pain (lumbar area) after my stage 1 surgery (only had stage 1). I definitely understand the laying down and feeling too stretched out. It took me over 2 weeks to lay flat in my...
Surprisingly, yes on the sample front. I filled out an online form for the coloplast sensura mio bags since I was hearing about them in different places I read. It has been almost 2 full weeks and I...
I had my surgery about a month ago. I've tried a few different products. So far I've discovered I like the Hollister baseplates the most. They seem to give me a good seal and my skin seems to like...
From what I understand they can completely remove the rectum and connect the pouch to the anus. I'd check with your surgeon first....
I just went through stage 1. My GI slowed down a ton (they called it ileus) about 2 days after I started eating solid food. There was still small output, but mostly only liquid and not near enough to...
It seems to slightly correlate a little more with output. But, sometimes there is no output and it hurts. It has been getting a little better over the past few days. Not quite as sharp, but certainly...
Starting about 3 weeks after surgery I noticed I get sharp pains around my stoma site periodically. No idea what causes them but omg sometimes it feels like I want to go through the ceiling. I...
Hmm... I had some gas pains. Especially when my bowel decided to quit after I had been eating a few days. Some of that was intense! Not sure if that's what is causing your pain or not. I still had...
Someday I will be bold and try this....
It was dry. I don't change them very fast and I screwed up the first one because the seal moved on me after I stuck the bag on so it had extra drying time. Maybe I got a defective bag or something....
Just wondering if anyone else has this problem and what they do to fix it. I put on a new bag today (coloplast trial) with a seal. When I first put it on it was nice and flat and appeared to seal...