Hi All, Does anyone know if there are any other brand of bags that might be compatible with Convatec's Sur-Fit Moldable wafers? I've been using a Convatec setup for nearly 5 years and they've gone...
Update on this wound underneath my wafer that is *still* healing. It eventually got worse growing to about the size of a quarter and I relented and eventually went to the wound clinic. They did a...
Hi Woogy, Yes! It's doing much better. It stung for a day then the wafer seemed to settle in and I haven't had any pain. I try to walk some for exercise everyday and that sometimes irritates things...
Thanks Woogy, I did something similar. I changed out the wafer today and it seemed to be healing a little from the stoma powder. I sprayed some liquid neosporin on it as an anti-bacterial, blow dried...
My nearest ostomy/wound nurse is in another town and the appointment wouldn't be for another two weeks. I'm trying to avoid going as the last visit I made to them cost me around $300. They billed...
Hi all, Two years post-op with a permanent ileostomy here due to ulcerative colitis. None of the heavy nasty drugs worked. Everything has been going pretty great. Don't regret having the big surgery...
Thanks, Eva Lou. That stinks...literally. I had surgery in August this year and am still trying to find a favorite setup. Hollister is a love/hate relationship for me but I know a lot of folks really...
Hi guys, This week I'm wearing a two-piece Hollister set up for my permanent ileostomy. A few days ago I noticed some leakage somewhere around the flange. I figured maybe it was a bad bag or that it...
Hi All, Three and a half months post-op with a permanent ileostomy here and I find myself in the market for a new trimmer. I'm a hairy guy and I've found a little electric trimmer to be the best way...
Hi atwoodt, I haven't got around to trying it yet. I'm still working through the "proven" methods of stopping the burning. This past change I layered up with stoma powder/skin barrier/stoma...
Thanks, Dan I bought some Friar's Balsam since the last bag change and look forward to using it. Is it basically the same thing as the benzoin? Also, I understand the concept of "burping" the bag...
I very much appreciate the frankness of this board and I have a feeling this question will reflect that description. I have a new permanent ileostomy (8/17/15) and am slowly figuring things out. My...
Thanks all, I've placed my first order with the online supply company that will include convex wafers from two different companies. Hopefully they will get it processed quickly! :)...
notsosicklygirl, How have you done with convex? With a 1/2" stoma how do you set things up? Do you use just a convex wafer? A ring? Paste? What brand? Sorry to be so nosy but I'm finding myself in a...
Hi all, This might be a silly question but I find myself with quite a few samples of the Convatec moldable skin barriers and a short little stoma (it sticks up about a 1/2 inch). I'm wondering if...
Hi zulalularen, I had been battling UC for about 5 years up until my total proctocolectomy with permanent ileostomy surgery last month (8/17). My UC was mostly an annoyance for the first 3 1/2 years...
Hi all, I'm still new to all of this with my surgery having taken place 8/17/15 and getting a permanent ileostomy. I'm wading through all the various different bag setups and have a question that I...
Thanks everyone, As the swelling goes down and I'm gaining a little weight from being able to eat again it's looking like I'm really going to have a short little stoma. Yesterday was the first time I...
Hi All, I'm 2 1/2 weeks out of a total proctocolectomy with permanent ileostomy and things seem to be going well. Of course there is still some post-op stiffness and pain and a little butt pain but...
I had my total proctocolectomy with permanent ileostomy this past Monday so today is day 7. I just gor home yesterday afternoon. Things are going okay. There is a learning curve in dealing with the...
Well, in a hotel across from the hospital and have finished up (hopefully) the bowel prep. Surgery is scheduled at 7:30 tomorrow morn but I need to be at hospital at 5:15. Wish me luck! :)...
Thanks Sammy79 and SuperBlanks. SuperBlanks, I think your response just sealed the deal for a Disney trip in February. Hopefully I'll be able to keep up with an active 6 year old. :) He's been really...
Thanks, notsosicklygirl. Yeah, it is fast. Before he came in to talk I told my wife I was very concerned after seeing how busy the office was that if he was willing to do the surgery that it would...
Thanks to everyone! Lots of great information here. Saw the surgeon today and if the stars align my surgery will be this coming Monday! :) Brent...
Hi all, Battling UC and saw a surgeon today. Will hopefully be scheduled next week for a total proctocolectomy with permanent ileostomy. We have a family Disney vacation planned for this coming...
Ulcerative colitis gone wild here. Fed up and seeing a surgeon on monday about a total proctocolectomy with permanent ileostomy and I have a few questions for you folks. I find myself living in an...
notsosicklygirl, What happened when you had sepsis? Other than remicade beating down the immune system what was the cause? Perforation? Bacterial overgrowth in colon?...
Had my third infusion of Remicade about a month ago. My first two infusions didn’t seem to cause much problem. I didn’t need any Benadryl during and had little reaction after except for some...
Feeling some better yesterday and today. I've noticed some reduction in inflammation, reduction in urgency, etc. I hope it lasts and improves while I wait for infusion 3. With the reduction of...
How is your blood glucose level?...
Hi Marauder93, I very much appreciate your viewpoint here. Patience is a valuable commodity. I know Remicade can take a while and I'm trying very hard to be patient. I'm trying to figure out my own...
Just had my 2nd Remicade infusion on Tuesday (It’s Thursday now). I saw some improvement after my first infusion for about 3-4 days then fell back into a flare. I felt some calming with the 2nd...
Appointment was at 10AM at hospital. I reported to the Endoscopy/Infusion check-in and waited in the room with about a dozen other folks who were in for a different kind of fun this morning. I was...
oneday@atime, I wonder if your antispasmodic didn't work or play well with the Benadryl. I just saw my GI yesterday and I've been approved for Remicade. I'm scheduled for the first infusion Monday....
iPoop, I have another question for you. It looks like my GI appointment Tuesday is with his physician's assistant who is more open to alternative treatments. I brought up LDN to her one time and she...
iPoop, I have a question for you. When you started your Remicade were you already taking 75mg of 6mp daily or were you on a higher dose using it as a primary medication against the UC? I know...
Ugh...Having an awful day today. I had mentioned that I was on Imuran and it wasn't working. My GI told me to discontinue the Imuran 30 days after starting the Humira. It's been about a week since I...
Thanks pb4 and iPoop, Yes, I have noticed some improvement. I wish I hadn't set myself back a little with the mixture of fiber and VSL#3 but hopefully that will be temporary. I guess I was expecting...
I'm on week 5 of Humira this week and figured I'd share my experiences so far. When starting Humira I had been on Imuran for nearly 6 months with no change at all in symptoms. Loose, occasionally...
Hi All, I'm on day 16 or so of Humira. Just took the second loading dose of two pens a few days ago and patiently awaiting success. I'm wondering for those of you for whom Humira worked how long it...
I had an appointment with my GI last week. Next step is Humira and I'm patiently (or not so patiently) waiting for the mail-order pharmacy to ship me my starter pack of no-poop darts. I sure hope...
I found that powdered L-Glutamine helped to reduce blood in the stools. I started with a little at a time and worked up slowly as it can be constipating, 1/2 tsp and worked up to a tablespoon a day...
I called my GI's office today to see how they code/bill their infusion process. They do it as an outpatient procedure and enter it into their computer similar to that of a colonoscopy. More...
Thanks, mcfarl73. The shots don't scare me too much. A few years ago I was admitted to the hospital for some other issues. I was way overweight and my A1C was high so the doctor sent me home with a...
Thanks, platinumpixie. I reviewed the prerequisites for each of the three online and it seems clear to me that they deem any of the three as equals. Of course, there is no guarantee once it gets to...
Thanks, iPoop and everyone else! Great info! :)...
I spoke to my wife about these three options last night and we have some questions for you folks about the remicade infusions. She explained that it would be difficult for her to find the time with...
mcfarl73, it sounds like my GI and the partners in his practice have their own endoscopy/infusion center with a similar set up in one of the main hospitals around here. My wife and I are debating...
It seems to be clear now that I'm stepping up to a biologic very soon. After researching on my insurance website they have these three listed as "Preferred" biologics; Humira, Remicade, and Simponi....
I just got a call from my GI's office. They have put in orders for me to get a TB skin test and a chest xray in anticipation of beginning....Humira. I asked the nurse why Humira all of a sudden after...