I cannot seem to get anyone to listen to me, or at least acknowledge that I am not feeling well. I know I probably don't have CFS, I know very little about the severity levels of the disorder. But,...
The irritation isn't near the stoma, it's on the outer edges of where the wafer adhesive sticks to the skin. There are 2 spots that are red and very itchy. Sometimes, I can cut away the material that...
After my surgery, all I could eat was peanut butter & jelly sandwiches and macaroni and cheese. That was all I ate for a month or so. It took me a few months to regain any normalcy as far as my diet...
I use a flexible ice pack. It takes a few minutes, but it usually eases the itching. Just try to get it as close to the stoma as possible. I do my best to snuggle it up against the wafer and just...
I'm in a tight spot with my ileostomy and trying to work. First of all, my situation is slightly different. I had a liver transplant in 2013. I was out of work from 2011 due to the liver disease. I...
The sooner you tell him, the better. Everyone will probably say, basically, the same thing... If he cares enough about you, he will be ok with it. If he can't deal with it, then, you probably...
Get a pliable ice pack and try to work it around the area as best as you can. I know bag will be in the way mostly. But, if you can get the ice pack near the area, it will get the entire area cooled...
I have an ileostomy. So, I don't know how much that relates. But, I do live with a stoma. I would assume recovery is about the same, you will slowly get used to living with it. You will be able to do...
Glad to hear you're adjusting. Sounds like you had a better experience than I did. I just wanted a simple wrap to keep my ostomy against my body more. So, I ordered what was described as a "wrap"....
Had the same surgery. My ass was really sore for well over a month, almost 2 months. It was by far the most painful part of the recovery. Hot showers gave me the most relief. Just let it rinse the...
For clothes, at first, just loose and comfy. When you start getting around more, just whatever you want that works. You will learn as you go what works and what doesn't. I wear jeans and normal...
I want to order a wrap for my ileostomy. I found one, but they mention unrinary drainage. I just don't want it to not work with an ileostomy bag. I don't know the difference between the types of...
I had my surgery done at the University of Chicago just this past June. Dr. Neil Hyman did my surgery. I've been going to this hospital for a very long time. They did my liver transplant. And now...
I was overly paranoid about every little thing after my surgery. It's normal and if it makes you feel at ease, than it's all good....
Mine drained on and off for about 2 weeks. I just kept dabbing it with tissue from time to time. A little blood and some other discharge is normal. Unless it is a lot of drainage, I think it's normal...
It's different for everyone. It will be pretty tender for a few weeks. At least mine was. Just be careful not to spread it at all so the stitches pull at all. Never use one of those "donuts". I used...
Hi. I had the same procedure done about 2 months ago now. Different reason, but same thing. Also dysplasia. Obviously, it sucks. But, when everything settles, you will feel better. The ostomy bag...
The rear is the worst part. Mine was really sore for about 4 weeks, is only slightly sore now. (had my surgery on 6/26/15) Getting comfortable takes some work. For me i always had a pillow or cushion...
Same here. I have gained only about 5 lbs, but that is because I'm eating what I couldn't before. But, I never experienced a huge weight gain, it's been steady, overall. I could see losing weight,...
I had this exact procedure about 5 weeks ago. For me (everyone's case is different here), but, for me, laying in bed was fine. Sitting was tough. It was (obviously) very sore and tender. Actually, my...
Going on one month with ileostomy now. For the most part, my stools have been watery still. And, I seem to be needing to empty my pouch very often. Sometimes every 2 hours. Tonight, I've emptied it...
Funny you say that. I bought some frosted mini wheats this week... not really thinking, I just grabbed them off the shelf. When I got home, I just thought to myself: "what was I thinking, I know I...
Are there any cereals out there that I can eat with no worries with my ileostomy? Surgery was about a month ago, tired of the same menu....
Has anyone ordered this item either from a supplier, amazon or from the product website? I only ask because of the price difference between Amazon and the Aprilfresh website. Not sure what I'm...
I know I am very lucky and I am very grateful. I am glad that they can do these things in order for people to live. It's just a shock when the person who needs it is you. I did take advantage of a...
I actually had a liver transplant in december of '13. What's one more organ, heh! Because of the anti-rejection meds that I took for that, it pretty much left my immune system very low. So, I was...
Had colon, rectum & anus removed 3 weeks ago. Very new to this. Physically, I'm doing ok. Emotionally, it's been rough and still is. If anyone has any advice or words of wisdom, please share. If you...