PjbBPD

A leak?

Thanks for the reply! I thought maybe it was still surgery pain and redness at one point but when everything else was healing I knew something was def wrong with the skin. I switched over to...

9/27/2015 8:45 PM

A leak?

So I'm almost 6 weeks post op and my stoma is still really irritated, as in the skin under it pretty much. Skin on top and sides seem to be doing ok. I'm using the durahesive moldable convetec 2...

9/25/2015 8:23 PM

Gym with ostomy

I would do whatever you feel comfortable doing. I'm only 5 weeks post op and don't feel like I'm even close to hitting the gym again! So good for you if your feeling that good by week 8! I would...

9/22/2015 2:58 PM

Bladder stents for surgery?

Forgot this! My surgeon also failed to mention these to me! They were on my pre op sheet that's how I knew to ask the GI doc about them because I had an appointment with him anyways. Eurologist will...

9/21/2015 1:12 PM

Bladder stents for surgery?

I had the stents, they don't actually go in your bladder. They go in both of your eurethras (spell check!). I asked my GI doc what they were for and he explained that your bladder lines are like tiny...

9/21/2015 1:10 PM

Stoma appearance concerns. Worried.

I have all those exact same things! I have several white/clear spots an my stoma. Gi doc said no big deal. Around the base of the stoma I think you can develop bumps from time to time because of your...

9/19/2015 6:06 PM

Tell me about wound vacs....

If you need the thing it's probably for the best! Be excited! At least you know this time your wound should heal up really nice and you won't have to deal with it anymore. That wound is definitely...

9/17/2015 2:25 PM

General health and leaks / wafer hold time

I didn't get to pick a place for my stoma, I've mentioned that on another post somewhere here! Surgeon said he'd decide what woukd he best to prevent hernias and other problems for long term use. I'm...

9/17/2015 4:57 AM

Tell me about wound vacs....

I had a vac on for my 7 day stay while in the hospital over my bikini line incision. So I can't speak to it for the parastenial wound. It's def annoying. And kind of loud when trying to sleep or if...

9/17/2015 2:08 AM

How do you clean up after emptying?

Ive tried about 5 different bag systems myself and had surgery the same day as you. I'm hoping to stumble on something clean and easy myself! One thing I can tell you for sure is depending on the bag...

9/14/2015 3:32 AM

Who chose permanent ostomy first over other surgery options?

I chose to go right for a perm ileostomy. Originally a few years ago when surgery was first brought up I thought for sure I would give the pouch a whirl. But as time went on and I did my research I...

9/13/2015 4:44 PM

White spots on stoma

Thanks for the reply, I did keep a close eye on the spots and they seemed to shrink quite a bit and went from a really pure white color to almost clear. Called the nurse and she said the same thing...

9/10/2015 2:47 PM

Flange size vs. stoma size / Ordering supplies

I don't want to hijack this thread but have an additional question as my stoma is measuring an inch now as well. Does the bag you use change as well with the flange? right now I'm using the convetec...

9/8/2015 6:01 PM

White spots on stoma

When I changed my appliance out yesterday I noticed two small white spots on my stoma. I thought they might be something I could wash off but they're definitely not! I'm 3 weeks post op now and have...

9/8/2015 2:10 AM

Using devrom

Thanks for the reply. I just got it in yesterday and started using it right away. Definitely notice a huge difference using it. Going with 4 pills a day about 6 hours apart and that seems to work for...

9/8/2015 1:52 AM

Using devrom

I have a bottle of devrom on the way and was wondering how much of this stuff I'll need to take to make it effective? I've seen others on this site have had success with it and was just wondering was...

9/6/2015 12:19 AM

Odor when burping bag--help! I stink!…Also, change appliance after swimming?

I'm going to try a bottle of this stuff. I'm using something that's a deodorant /lubricant. It's not m9 but something similar and it does absolutely nothing for me! I'm only 2 and a half weeks post...

9/6/2015 12:10 AM

At what point..

You see, welcome to the ostomies forum! Everyone here is very helpful! I had pancolitis like yourself. I battled with uc since 08. Pretty much at a very early stage they told me I would need surgery...

9/4/2015 2:47 PM

Where to start with all of these ileostomy supply choices?

Excusemeineedtopoop! Great name! I'm in the same boat as you. Had my surgery on the 17th, I remember your post about your problem with you bladder. Mine doesn't sound as bad as your but it still...

9/3/2015 8:09 PM

Looking for words of wisdom & advice....total proctocolectomy

Pain level is much much better thanks! I'm 2 weeks and 2 days post op today. About 4 days ago I was able to finally get some really good sleep, only waking up to pee! And empty the bag while I was...

9/2/2015 10:57 PM

Looking for words of wisdom & advice....total proctocolectomy

Sorry to hear you might have to wait on the surgey, that's really terrible. As if your not feeling crappy enough now this! but yes when the surgeon is in there he can certainly change how things are...

9/2/2015 12:50 AM

Looking for words of wisdom & advice....total proctocolectomy

Everyone on here seems to meet with a WOC Nurse a pick a stoma location, I was never given this opportunity. I had brought it up to my surgeon and he said he doesn't like when you pick a spot for it....

9/1/2015 4:34 PM

Ladygolfer, That soap trick is great with the covetec 2 piece moldable thanks for the tip! It prevents me from needing that extra piece that adds about an inch of thickness that really sticks out and...

8/31/2015 9:32 PM

Looking for words of wisdom & advice....total proctocolectomy

So how many more days until your surgery twingirl? Hopefully your ready for the procedure with help and support from this group and family and friends! I'm officially 2 weeks post op tomorrow and I...

8/31/2015 12:01 AM

Another exercise question

Susan53, I haven't been post op nearly as long as you have but if it still hurts I wouldn't push it. If you can walk and that feels good I woukd strictly stick to that for a while. Walking is so...

8/29/2015 11:01 PM

My butt wound is getting worse!

Gospelady, They didn't give me any specific instructions for my butt wound when I was discharged. That's what made me nervous when it started leaking! On day 4 when I was home it started pouring...

8/29/2015 10:53 PM

My butt wound is getting worse!

Thanks guys, I was able to contact the WOC nurse and she got the on call general surgeon to call me, guess as long as I don't have a fever or chills and I'M not in any more pain than the usual that...

8/25/2015 10:59 PM

My butt wound is getting worse!

Originally my sewn up back side was the only thing that didn't hurt at all in the hospital. Now that I've been home a few days the thing is acting up like crazy. This is going to get a little graphic...

8/25/2015 7:01 PM

surgery in a few hours, not doing well mentally

keep us posted on your recovery, I hope you woke up in a good state of mind in the recovery room! Everyone here can definitely relate to your concerns and any issues you'll encounter. I'm only a few...

8/25/2015 2:02 PM

NSSG, yeah. As of now bag length doesn't effect me too much but I'm new to everything. I'm 5 foot 8. Pretty average for a male. They didnoriginally send me home with that extender clip on my convetec...

8/25/2015 1:53 PM

Thanks for the input, I'm def not a fan of that convex barrier I was wearing. Took it off today and threw on a sensura mio 1 piece I got as a sample. I do like the 2 piece but I'll hold off on using...

8/25/2015 12:14 AM

Well thanks for all the input everyone! I've been doing research and did find quite a few stoma guards and I'll I'm fortunate enough that the va hospital is going to foot the bill on them for me...

8/25/2015 12:10 AM

Home from my total proctocolectomy...with a foley catheter

Hey Brent, Sorry to hear you had to go home with that stuff in you still but it must be for the best. I had my surgery same day as you! So we're on the same recovery path. I had bum sewed up but no...

8/23/2015 7:40 PM

Just returned home today from my protocolectomy. Had it done at the VA hospital. I know very little about appliances except for a few brand names. When I woke up and spoke to a wound ostomy nurse she...

8/23/2015 5:45 AM

Looking for words of wisdom & advice....total proctocolectomy

Twingirl, I'm 4 days post op now sitting in the hospital and couldn't be happier with my decision . Go in with a positive attitude and you'll wake up in a good mood too! I learned a ton from browsing...

8/21/2015 3:32 PM

Notsosicklygirl, I did consider the j pouch as I've met with the surgeons several times over the past couple of years. At first I thought there would be no other option. First time I met with a...

8/13/2015 12:43 AM

Thanks for the replies! I did some google searching the other day and found this ostomy armor sight that looked pretty interesting. I emailed the owner and asked him his suggestions. Sounds like the...

8/12/2015 2:00 PM

Quick review of myself, diagnosed with pancolitis July 2007. off and on flares since then, been on all the typical mess, like 6mp, mesalamine, prednisone. Failed Humira initially after several months...

8/11/2015 9:49 PM