Thanks for the answers, I'm pretty sure it will end up being diagnosed as Arthritis. I'm finding Ibuprofen to be very helpful, but it has to be taken religiously, or the pain just returns. Even then,...
So a few of you here will know that all my Colon is gone and I still have a defunctioned J-Pouch in place. In the run up to my first surgery five years ago, when the UC was bad, I had joint pain all...
I'm puzzled as to why you don't see a return to ostomy as a viable option? Being pain free and able to eat has made my life worth living again. You're young, and it would (hopefully) be a long life...
NSSG: I still have the pouch attached and a loop Ileo, so I still have to pass mucous from the rear most days. It's still much better than UC or the pouch when it was active. juststud: I still stand...
Seems my "Ileophobic" comment got a very mixed reaction! Marianne: I respect you too, but am quite perplexed why you thought that comment was so ridiculous. I firmly believe there are pouchers out...
Two weeks post surgery is very early. The gas is entirely normal and mine always lasted several weeks after each surgery. Things like rice, porridge and peanut butter are good thickeners, but you...
Suebear, I no longer have those problems, or the pain that was making me suicidal, as I had the good sense to return to an Ileostomy. I'm certainly not trying to deter the OP from surgery, merely...
Marianne, my reading here and in other places leads me to believe that the vast majority do experience those things. As you say, it's your "new" normal....
Call me pedantic, but I'm surprised people refer to j-pouch and ileo-rectal procedural outcomes as "going like normal"! Granted, they result in defecating from the Anus, but numerous loose movements...
Mine was about 8 hours, they took over 2 hours to cut through bad adhesions. Was then followed by two weeks in Hospital, mainly due to Ileus. I always get a rough ride with surgery....
Hopefully it will pass for you, I lived like that for a year before going back to an ostomy....
I stayed in remission for several years on Azathioprine (Imuran) before it stopped working for me. As long as you get a monthly blood tests the risk is minimal and far out weighed by the benefits (if...
Yes, I think I'll give it a while back at work. Thanks wiskers, definitely happy to be getting some normality back again. This will be my quickest return to work after a surgical procedure, so I'm a...
Thanks Marianne, I'm confident I'll be fine. However, since I'm going back to a previous employer on Monday, I may leave it a while now! Only just thought that one through, don't want to risk a...
So I'm thinking of giving popcorn a go. I've haven't eaten any since before my first Ileo. However, I've never had an issue with blockages, although this loop is only just shy of 3 months old, so...
Nobody would choose an Ileostomy over a healthy Colon, but we're all here because we didn't get a choice. I think the perspective your current situation has given you will help you to accept the Ileo...
Sorry, I misread your post, thinking your GP was touting psychological services. Still, in my opinion, the person that's best qualified to decide how to proceed is your surgeon. When I was suffering,...
NCOT, I don't regret going back. The pain was rectal, it was gone immediately after surgery and has never resurfaced. I'm a 5 foot 9 inch tall man that dropped in weight to 9 stone. I'm now back to...
What Eva is saying, is professional health care sees no need for gloves. I rest my case, some here are SO paranoid, with deeply rooted OCD....
I get sporadic pain in my abdomen often. I had my fourth surgery in December, and yet again, they had to hack through lots of adhesions before starting the actual procedure. I'm sure these pains are...
bania, you're so on the money, of course we can see things better! And if people think the pouch/bag is unsanitary, it must freak them out having it rub and sweat directly over their genitals!...
Part of our need for antibiotics is because we create overly sterile conditions. Look at the trouble we're now in, due to antibiotic resistant bacteria. Did you use gloves when wiping, before...
I believe when Liz said "medical trauma", she was referring to physical trauma. You implied mental trauma. My post was neither nonsense, or projecting. I was suggesting an outlet for your anger,...
Liz posts a lot of good advice on this board. You've accused her of being inflammatory, yet make comments like "make yourself useful to others that have obvious trauma issues like yourself, and share...
My Ileo is on the left now, but this is because I went back from a j-pouch. My surgeon said everything was now in the middle, so gave me the option of which side to site on. I would think a left...
I'm lucky, I've just ditched my j-pouch and currently have a loop. I say lucky, because my surgeon has done a fantastic job, even fooling the stoma nurses into thinking it's an "end". It's all to do...
Green stuff is stomach bile, nothing to worry about, but sometimes is the result of under eating. Red patches on stoma could be a touch of mild trauma, such as being caught by the bag. If they were...
I've had Ileus 3 times following surgery now. You would definitely know what it was if you had one, you wouldn't be able to ingest anything for starters. Do you eat/drink or take any medication...
I'm not saying there's anything to be alarmed about, but that seems odd to me. Peristalsis slows down when resting. When I had an end ileo, I could stay in bed 10-12 hours without having to get up...
Have you tried barrier rings? I swear by Hollister Adapt rings, along with convexity. The Brava strips that go around the outer edge of the wafer are good too. They don't prevent leaks as such, but...
I hope it works out for you, these surgeries are no picnic to have to go through....
Well, yesterday I managed to expel some mucous on the loo, but some still found it's way out in my sleep. I do remember similar problems between pouch construction and takedown, which did settle...
Eva, the Ileo will be permanent. The only way I'd get rid of it now, is if I pursued a K-Pouch. However, every time I have surgery I get an Ileus and go through Hell. So, taking into account the...
2 1/2 weeks post return to Ileostomy surgery and I just ate Singapore Hot And Spicy Chow Mein and Crispy Duck Rolls! I'm still adapting to my new ostomy after a year without one, but it's sure nice...
My stoma has gone crazy at the moment, lots of gas and liquid. I'd forgotten what monsters these are straight after surgery!...
Well, I came out of Hospital today after two terrible weeks in Hospital. I had the usual Ileus trouble, combined with some sort of blockage/constriction, that needed a catheter inserting through the...
NSSG; The loop I had before was a nightmare for about 5-6 weeks, after that it settled down and I got my pouching of it perfected. I can honestly say that I could then have gone on indefinitely with...
It's now 21:43 Monday, here in the UK. The Hospital are waiting for me to call to finalise details for surgery at 07:30 Wednesday morning. So, I need to make a decision NOW, then ring up in the...
I don't know if we can block people either, so I certainly don't have you blocked if we can!...
I'd also recommend trying Hollister Adapt, they sorted a lot of problems for me....
My surgeon was going to refer me to St Marks, but I'm the fool that pushed to get the ball rolling sooner on surgery. Now I have just over a week to pull the plug or proceed.............
An interesting aside, as the Cleveland Clinic has been mentioned: The stoma nurse assigned to me after my first surgery was extremely vehement in his advice to stick with an ostomy and not pursue a...
atwoodt, you've probably missed me posting this here before,but I'd be only too happy to travel over seas and visit the Cleveland Clinic, but I don't have the funds to do this. It's even worse since...
NSSG, I may well have to show your post to my Parents. They seem to think it's such a no brainer, "just" go back to ostomy, "just" get MORE surgery. It has got to the point where I avoid contact with...
Solomon, I'm not what you call "hirsute", so belly hair isn't an issue for me. I empathise with your thoughts about possibly making things worse, which is a part of why I'm having second thoughts....
NCOT: Packing is a soft sterile fabric. It's used so that the stoma wound heals from the bottom up. Without it there's a chance the wound will close over and leave a cavity, which can become...
It would smell good coming out as well!...
Sorry, I just realised sbs was an abbreviation for short bowel syndrome. I don't have that problem, so my answer wasn't entirely in tune with your circumstances. Here's an off the wall thought, here...
I never had success with those types of product. The best way is to try and thicken your output through diet. Things like mashed potato, pasta, white rice, peanut butter, apple sauce, jelly (jello to...
Amount of toilet visits per day is an individual thing, you certainly can't expect yours to be the same as anyone else. I've had an end ileo, a loop ileo and now a j-pouch. My toilet visits have been...