Interesting. Yes, I heard 3 litres for adults but that is too much for me. I drink 1 litre of St. Mark's and supplement with more fluid at different times but I do not think I get as much as 3...
Cor blimey. To me, 103/65 is on the low side. I am trying to get mine down, it has spiked as high as 200 at times. I think you are right about sugar doing harm. As I understand it, the fructose...
Yes, I imagine electrolytes are what you are missing. Drinking too much plain water too quickly would just wash the minerals out. I guess frequent sipping is the way to go. Is Gatorade the same as...
Ah yes. This might be getting off the subject a bit but another food I found that helps thicken output is apple sauce/puree. With the abundance of apples this year I started making apple sauce and...
I understand that what we need mostly is glucose and sodium. It is good that you are getting proper medical supervision anyway. ...
Well, in my case I was always very tired then I got kidney stones. Rather than self-medicate without qualified direction, download the NHS PDF document about St. Mark's solution, and check it out...
Hi nene205. Here is a link that explains it: http://www.gloshospitals.nhs.uk/SharePoint5/Patient%20Information%20Leaflets/GHPI0247.pdf ...
Excellent question - made me stop and think. After a very painful period in hospital with kidney stones, realised the problem was partly the fact I have an ileostomy. The hospital admission was after...
CMHR foam with Dartex cover. Had it for years - just showing wear now....
Thanks for that advice about eating and drinking. I have been following advice not to drink whilst eating, which sounds like good advice, but never heard of eating something whilst drinking....
Fairly constant through the day. I do not eat after 8pm and that helps during the night....
Yes, you are right there. At first I was worried about what to eat, but it is amazing how quickly the body can heal. My stoma, and around it is absolutely fine. It just feels like a normal part of...
I guess that still having some colon left means you can have a more varied diet. Good for you....
I think B12 and K2 are only absorbed by a small section of the terminal ileum. Possibly other things too. We are only recently discovering the importance of this vitamin - it's not just for clotting...
I am sure that prior to very painful kidney stones, I paid no attention to how watery my output was. Now I realise - we need to keep food in our systems long enough for our bodies to extract as much...
I am just beginning to explore the difference between soluble fibre and insoluble fibre. We need both. I would love to hear opinions about this, forom the viewpoint of an ileostomist....
I have used the Convatec SUR FIT Natura® Two Piece High Output Pouch. I am thinking about returning to them. They lasted as long as a full week sometimes....
I have two points to comment on: 1. Whatever diet you take up after surgery, you must try to return to as near normal diet as soon as possible. I was quite happy with a low residue diet for a long...
Thanks, but no budget for naturopathic physician....
Thanks for those thoughts everyone, keep them coming. Suebear, I have not been able to find out if my terminal ileum is intact. Also, I need to establish my K2 and B12 levels....
Have a go with milk kefir. I have been using it for years and swear by it, makes my digestive system feel great. Get some kefir grains and make it yourself. It is lush. The kefir removes most of the...
Have you tried probiotics of the home-made variety? For example Kombucha, Kefir, sauerkraut (lacto-fermented), etc. I had chronic fatigue for many years. I do not have it now but the reason I...
That's interesting. How did you discover that you do not absorb oral iron?...
I had pan procolectomy with ileostomy in 2009 and since then my clothes size has changed a lot. I feel I am shrinking. There are several other issues too. Originally I put this down to age but more...
Thank you ByeByeUC. Very sorry about that. I will post a new topic....
esoR thanks for that post. It is very interesting, particularly about Vitamin K and bone health. I had panprocolectomy with ileostomy in 2009 and since then my clothes size has changed a lot. I feel...
I haven't actually measured output over 24 hours but it is something I intend to to, my guess is around two liters....
Thanks for the replies. I did consider trying to reduce the output but the options involved taking additional drugs which I would rather not do. I do not understand why the output is so high but I...
Thank you, I never thought of looking up length....
I have high output, making my choice of bags very limited. Does anyone know of an independent list showing the capacity of different bags? I am looking for bags with a capacity greater than 700 mls....
If you are lactose intolerant then maybe water kefir would be good for you. It is a clear rubbery thing and apparently produces lots of good bacteria too - without milk. Personally, I cannot get...
Hi Redheadbk, Sorry but I do not understand a lot of the questions but can I tell you about my experience in the hope it will help? My job was quite stressful at the time I developed M.E. It was a...
I just had another look at Osto Armor. The Ostobelter completely encloses the bag and stoma The Osto Armor just goes over the top with pad things at each side. Different concept. :smile:...
Thank you for the correction, Bluegrass. I will make the amendment. Cheers. :-)...
mom2panda - yes it is very similar but mine does not use a belt. I have recently heard from someone who has used Ostomy Armor but says Ostobelter looks better (and cheaper)....
Ostobelter Stoma Shield/Guard/Protector Here is a do-it-yourself Stoma Shield/Guard/Protector that will allow you to wear any kind of clothing including jeans and trousers that require using a belt....
It allows any item of clothing that requires a belt, to be worn with confidence. It cost zero money to make and is one of the most useful items in my medical cabinet. This site will explain the...