I've had my colon removed due to Ulcerative Colitis about 2.5 years ago. I've had both a colostomy and ileostomy and now a J Pouch. If you have any questions in regards to that please feel free to...
I had the enema xray before my takedown surgery to check for leaks, I didn't have a scope...
Though it's a little bit uncomfortable, it's a fairly straight forward test. Different doctors will have different prep instructions. They will fill you up with the enema and ask you to roll around...
I've had my J Pouch a little over 2 years. Prior to that I took Ambein and unfortunately got highly addicted to it so I no longer take any prescription med for sleep. With my pouch though, I still...
I had it done long ago but I only had to keep mine on for roughly 7-8 hours. I had it put on and taken off the same day in my GI's office. You should be fine...
Vomiting is listed as a withdrawal symptom. Her natural adrenal glands may be struggling to wake up again during the taper which can cause the withdrawal....
There are prescription sleep aids that are intended for short term use. I was on Ambien for the insomnia caused by prednisone but I took it much longer than it should be taken and developed an...
How long was she on prior to the taper? There are a whole host of withdrawal symptoms for steroids. Generally prednisone can cause insomnia while taking it but it's not listed as a withdrawal...
some of the preps are flat out disgusting. I had always used the Miralax prep and before that was using Osmoprep, which is a bunch of giant pills and a ton of water you have to drink in a short...
Welcome to the site and please don't hesitate to ask anything here, no matter how bathroom "detailed" it may be...
There is also OsmoPrep which is pills you take with water, you just have to drink an ungodly amount of water in a short time with a bunch of horse pills...
Maybe try a low residue diet for a week or two and see if things improve. I was on that for a while both in and out of the hospital....
What is your Remicade dose? I was on 10mg/kg every 4 weeks...
Was your Miralax split into two doses? I always took one then was instructed to take the second about 6-8 hours before my scheduled procedure. My GI always told me that Miralax is not the preferred...
That was the first thing my ostomy nurses told me in the beginning, anything more than 1200ml in 24 hours needed to be slowed down to avoid dehydration. I was given a measuring cup when I left the...
how much are you outputting in a 24hr period? Generally you should be less than 1200ml in 24 hours....
all my stones once they hit my bladder were a breeze to pass, it's when they get stuck between the kidney and the bladder is when the pain starts. When they move is when the pain subsides. I barely...
does he know the size of your stones? Mine were max 3mm and just that caused unbearable pain and nausea induced by the pain. When I finally passed it, I looked at it and couldn't believe something so...
My urologist told me kidney stones are common for people with IBD, I had 5 in two years before colon removal. Generally, they analyze the stone to tell you what the make up of it is then they will...
I'm not sure about the antibiotics. I believe the bacteria is a byproduct of the blockage if that's what's happening. I think if the bile duct is being blocked which causes the pain and nausea, that...
Saw my GI yesterday and he also brought in another GI to go over my "attacks". He does feel it's a bile duct blockage of some sort. He was asking if I had liver enzymes checked at all which I...
How much liquid iron are you taking? Is your output black at all?...
prednisone is one drug you generally don't want to be on long term due to the long list of horrible side effects. I was on it for quite some time. Some are even steroid dependent. I always had to use...
I was on Remicade for about 3.5 years. It took about 3 hours to administer. My GI's office had a special room for it with a comfortable chair and TV. I don't believe you will get knocked out as they...
No meds for me since surgery...
You still have your full rectum at this time correct? So your next surgery they will remove the rectum and leave generally a 2-3cm rectal cuff when they create your J-Pouch and convert you to a loop...
This was from the Cleveland Clinic: "When you should start to feel better depends on your particular situation. Normally, it may take from a week to a month after you start your iron supplement...
What did they do to determine pancolitis? I'm not sure about a connection with the gallbladder causing colitis. I'm currently dealing with an issue with my gallbladder. I've had 3 "attacks" where I...
see if there's some useful information here... http://laparoscopy.blogs.com/prevention_management_3/2011/03/adhesion-prevention-and-management.html...
I had some seriously bad episodes with cramping that was widespread on my belly. My colitis was left sided as well. Some cramps dropped me to my knees the pain was so bad. It felt like a clenching...
I haven't seen my GI yet but was looking over the results from the HIDA scan. "A homogenous distribution of radiotracer was noted throughout the liver. No focal photopenic defects were noted....
when I could, I would use a bottle of water and pour it into my pouch and swish it around a bit. It helped clean up top and rinse out the bag, I then just wiped the opening with some toilet paper and...
I've had episodes of mild, moderate and severe inflammation with my UC over 16 years which was limited to the left side of my colon....
I can't get in to my GI till the 11th of June so have to wait till then to see what direction or insight he might have. So far no more attacks, just the 3. It's so odd that they have been so far...
for dehydration, drink something other than water. Generally straight water won't cut it. Many (including myself) will get some electrolyte tablets to add to water....
Yes, my pouch surgery was open due to scar tissue that developed from my bowel resection back in 2013. It took him an hour to get through it all. Not to mention my surgery site was opened a second...
Saw my surgeon yesterday. My gallbladder isn't contracting and releasing bile normally but he said in theory, when they gave me the drug during the x-ray to contract it, the symptoms of the attack...
for me it's not so much pain as it is stiffness, especially after I get up from sitting for a while. I try to take a joint supplement to help. I haven't seen a doctor yet about it as it's more of an...
One thing that's been known to happen after the diseased colon is removed, is the UC attacks other parts of our bodies, joints are one of the more common ones. We remove the diseased organ but we do...
I got my CT and HIDA scan and it showed my gallbladder not functioning properly. It was "abnormal". There were no gallstones. So, my surgeon wants to discuss removing it etc. I'll see him in a couple...
you can look for electrolyte tablets and even try pedialyte as well. There's a product I see a lot of people use called "Drip Drop", maybe look that up....
is it possible you're dehydrated and the saline is bringing you back to normal? Fatigue is a big factor in dehydration....
it will vary from person to person. Generally he won't get solid foods till his bowels are awake. I was fed food too quickly and ended up with a blockage because my bowels wouldn't move the food...
you're having trouble snapping the bag on to the flange correct? If so, I can't remember which brand I used but it was a pain to snap on sometimes. I had to lightly lubricate my flange ring with...
saw my surgeon today, he drew some blood and is sending me for a CT scan next week as well as a HIDA test. Said with the fever that high it's not a food blockage and definitely sounds like a...
I've had Salmonella 4 times, twice I was hospitalized as I felt like death and the other two I hardly knew I had it as my symptoms were minimal. Ultimately I was getting it from my pet reptiles in...
as soon as day 4 rolls around, I feel perfectly fine again. I thought about a bug but I would expect vomiting and diarrhea to which there was none. I only vomited once last September when I went to...
I'm scheduled to see my Surgeon on Friday and my GI next week. Some on another site suggested it could possibly some sort of gallbladder issue. The symptoms do fit to a point so I'll bring that up...