Hello Sandy, I have had my ileostomy for 16 months and had no issues with leaking. I am using the same set up, wafer, etc. as I always have. There have been no changes for me and in the last month I...
Hello all. I have been reading everyone's posts for the last few months. I am 4 weeks out from having my colon removed and an end ileostomy. I have a great output from my stoma, eat and drink well....
Thanks everyone....
I agreed with everything you said, it's common sense. The Ostomy Nurse told me to beware of these nurses. I am so glad I got excellent advice and caring from them. Thank you for your advice too, it...
Can anyone tell me an average of the length of the second surgery to create the j pouch is? Thanks...
I was told by the Home Health Nurse that I should wash and rinse and then bleach my bags after I change them to save money. I know the Ostomy Nurse that was an angel in the hospital never mentioned...
I have been up and around walking and sitting in the living room. You are so right about eating slowly and chewing slowly. I also and keeping amounts small and lots of protein for healing. Thank you...
I had my surgery on Tuesday, all went well. I am healing right on schedule. I can empty my bag on my own and learned alot from the Ostomy nurses. I am still in pain, and getting used to the new life,...
I work at a high school, so I hope to go back to work in December and work until the end of May when school is almost out and do the second one, then as soon as I can do the third. My husband lost...
Thanks for the positive words uc-logic. I am so looking forward to the end of 19 years of misery. I know there will be bumps in the road, that's life, but I'm ready, with a little help from mt...
Thank you Annadee, I've seen quite a few posts that talked about the hospital pushing the wrong food too fast. I will be sure not to make that mistake, thanks so much for sharing. I did read your...
Thanks, I accidently put it there, forgot I'm moving on to a whole new category!!...
Thanks so much. I was in the hospital for 8 days with a flare that almost put me in a coma and they didn't get me up. I am still paying, trying to get my muscles to have some strength again. So,...
I am doing the prep and getting ready for my first of three surgeries tomorrow at 7am. Sub-total colectomy with an end ileostomy. I'm not as worried about the surgery as I am about the afterward....
I'm doing the prep getting ready for surgery at 7am tomorrow. Sub-total colectomy with end ileostomy. I'll have to wait a year to get the other two surgeries done. I'm not really too nervous about...
I'm thinking of you, hopefully your surgery is over and you're resting and feeling no pain! Get well soon!...
@pouchlife: Thanks for the info. That sets my mind at ease, maybe I'll catch a break and have no more side effects! I hope after surgery I won't need the steroids....
Thank you Axis, I hope that's true. I just need it to get me through 12 more days....
I misspoke, the Remicade did NOT work for me, I wish it had. I think because the last flare I had was so severe and I have had cancer twice myself and my family is full of it, it was decided between...
My granddaughter was diagnosed with Celiac Disease at 3 years old, she is 11 and still suffering. They put her through so much, and sometimes I think they don't really know what to do. I hope your...
My doctor took me off Prednisone because of extreme side effects, I had them all!! But I am less than two weeks from a sub total colectomy with end stage ileostomy. I have gotten sick again without...
Katmom, I will send healing thoughts to your daughter. I hope all goes well and she can really start her new life....
Thank you all for sharing your experiences and for giving me a balanced look at the good and the bad. I am a survivor of Bladder Cancer twice over, and I've had many tough life experiences, so I...
Annadee, I too love the positive remarks. I am a positive person with a good sense of humor and I am consciously working to use that to stay up for all of this and think of how great it will be to...
Thank you so much for support and positive feedback. I am excited, just a little nervous. Right now I'm trying to get everything done as far as covering things at work, doing things around the house,...
I have been reading the discussions on this site for a long time. I have UC and I've been sick with it for 19 years. I am a 58 year old mom and grandma who has always been very active. You all know...