Thanks for the warm response! I had a 2 step in September & November of 2016. Funnily enough surgery changed my life, I again felt alright going out, met my wife that December and have been together...
Been a long time since I've been here.... Still doing well with my jpouch, figured out timing mostly and what I can and shouldn't eat. Still have issues with hemmy's but that also depends on what I...
The only downside with this thinking is, if everyone goes to a doc who's only done hundreds of jpouches, then once all those docs retire there will be no more jpouch surgeons.....you need to get...
Your flaw in this thinking is that you are guaranteeing yourself that the UC cycle will hit remission at some point.....what if it doesn't.....? Or even if it does, what if it takes 7 years to get 6...
I think the reattachment was in reference to the procedure that some people have surgery for a bag but don't get their colon removed, just to be put on bowel rest. Once the bowel has a chance to...
I would just start, but start slowly. Even if you "crash" it's just a matter of forcing yourself to go and get a little something in. 15 mins is better than 0....
Are you sure it's not a hemmy?...
Depends on what I eat and how deep I sleep. I occasionally will have an accident if it's very diarrhea type stool and I'm in a deep sleep. It's usually not a ton though....
I keep going back to this but.....make it illegal and you won't have any medicine.....if I'm running a drug company and you dictate to me how much I can charge, and what I can do, why would I be in...
Also the way I see that is that if you need to get your right leg amputated, and the left arm starts hurting, it doesn't mean you're still having issues with your right leg......we can always get...
In Germany you don't need a script for Voltaren and my mom brought some back. I use it for extreme muscle soreness and stiffness, it's incredible....
Iron pills are known to be harsh on your system. A lot of people also report black stool when taking iron pills. If your system can't tolerate pills, or even the liquid iron supplements, then...
I was on meds for almost 2 years without anything working before I had surgery. Some downsides but all in all I feel great. That's a worst case scenario, just wanted to let you know even if it comes...
The 3 months could be proper protocol, however for me, I had my 1st part of 2 step in middle of September and was golfing (started at pitch shots worked my way up to full shots) after roughly 3-4...
Considering companies are being sued over pain meds from various states, you'll have a lot harder of a time getting pain meds. I support them being a lot more diligent since it's a real problem, if...
The lymphoma risk is highest in males I believe ages like 18-25 so it should be a lower risk for you (though still a slight risk)....
Sure I'll give you that. But by the end of the day they're a for profit corporation. I personally would rather they exist and make their 20% profit than they not be around at all and us not have any...
Mark that's a bit of a stretch there.....if what you say is true then there would be no cure for anything in the market. However, there are plenty of cures that have been discovered in modern...
The problem is that those same companies have shareholders that expect a return on their investment as well. The companies are judged by their profit and shareholders expect growth rather than...
Are you sure it's still C.Diff and not a flare....? No urgency? Does it smell like something died every time you go?...
I'm with you Andy. The way I look at life is sometimes you get the bear, sometimes the bear gets you. I've had some rough times, went through all meds, had surgery, have a jpouch and still...
You don't need to justify your decision. I think if that's how you feel then that's great and I'm happy you made a decision that you feel is right. My issue is for you to call someone else selfish if...
Appreciate the statistics iPoop. I'll go ahead and be selfish and plan on having kids....
Please point me to the study that proves 100% that genetics causes IBD. Not makes you more susceptible, but causes it. Also, please let me know how much more likely someone is to get an IBD when it's...
That's the dumbest thing I've heard. 1. It's not yet proven that it is genetic. None of my parents, grandparents had anything even closely related to IBD..... 2. With the way medicine is progressing,...
Depends on what type of cure he's talking about.....it does "cure" your colon of UC.......
I love conspiracy theories, they never get old....
Yeah, I'm really going to go get a colectomy because I have bad rectal cramping. Worst advice so far. Or are you actually joking?[/quote] You're in pain, you're complaining, you say you have 0...
Surgery....
If this is a fortune 500 company they'll have an HR department where you can report this sort of behavior that will cause big consequences for those employees....
Prednisone taper as a solution is a great treatment plan until it stops working.......
Be careful what you wish for, once pred doesn't work for you anymore, UC is a beast.....at least with CDiff there is a "cure". If the vanco doesn't work within the 2 weeks, ask for different...
TBlock, again, yes if it's CDiff you'll eventually get better but it can be a slow process. Some people have to go through multiple rounds of antibiotics which will take a few weeks, not less than...
Can take up to the full 14 days. When I had CDiff I needed 3 rounds of vanco to completely get rid of it. CDiff is notorious to be tough to get rid of....
Mark, it's because 6-8 times is more the normal than 1-4. 3TC and Albannach I would say are in the minority of bathroom trips and have had better than normal outcomes with their jpouch. However, I...
1 definition of obsession - an idea or thought that continually preoccupies or intrudes on a person's mind. If all you're thinking about all day is what processed food you're going to avoid next or...
This may be your new "normal".....most of us never go back to what it was like when we didn't have UC even in full remission. I would stop worrying about bulking up your stool, if you're going once a...
Hey Andrina, Do you continue to have UC type issues? I agree, surgery isn't a cure for every ailment, but for UC it usually works a lot more often than not (definitely not a cure since it doesn't...
Yeah, agreed with NSSG. My JPouch life is incredible vs. the UC life I had dealing with a constant flare.....I'm doing great. I just want to paint a realistic picture. Would I go through surgery...
Swan, yes. I would still consider meds. I'd much rather be on meds than have my jpouch long term (if meds were working). We make JPouch sound like an attractive option, but for most of us it was the...
Going to apologize ahead of time and promise to knock it off and have this be my last post, sorry iPoop. This is getting humorous now. By the end of this thread Sara is going to have everyone on...
NSSG, I'm curious since you refer spicy foods, is it all spicy foods or do you do better with some over others? I can eat a little texas pete etc. and I eat pickled jalapenos almost daily, however I...
I went to nuts too fast with my jpouch. Tried some almonds since I love those and they're fairly healthy, ended up irritating my pouch. Not gas wise but it irritated the lining and caused bleeding (I...
I wasn't disputing the data you've posted regarding plant based diet pulling people out of flares. I asked for data when you said "Beave doesn't know what he's talking about (I've read his previous...
Sara, before throwing accusations around (which others are doing as well), do you have data to back up that Beave doesn't know what he's talking about? Or that all-meat diet would be extremely...
Someone pays the cost one way or another. If that's by taxes, from net income, or someone else covering the bill for you. Research, medicine, doctors, facilities, overhead, equipment, disposables,...
Remistart when I used it only covered $X per year, not every infusion. I want to say back when I used it that was ~$25K or so? However, I got billed for the remicade, which then counted towards my...
Have you looked at minimum wage type jobs at places such as Walmart, McDonald's, Starbucks, Costco, etc.? I see a ton of hiring fliers at those kind of places and some come with benefits....
I think you're reading way too much into daily changes. UC is a slow disease, both for getting worse and healing. You need to look a trends on a weekly-ish basis not daily, else you'll drive yourself...
I feel like there may be something missing here. I'd assume it takes a lot more for a surgeon to "fire" their patient after having performed multiple surgeries just because you yelled at a doctor on...