Hi I just had my total proctocolectomy surgery 9 days ago. I am having a very difficult time recovering, and it is making me exhausted and frustrated and upset. Anyway, I have been having an...
Hi all- I have a simple question. I got acrylic nails put on (been trying to keep myself preoccupied before surgery), and my surgery is tomorrow. I just remembered the nurse mentioning that they used...
Hi all, Haven't posted here in quite a while, but I had a question. My surgery is scheduled for next week (eek!) and my boyfriend who lives far wants to come and stay with me for a couple weeks after...
I am so happy to have joined this forum- it's so nice to not feel like I'm alone in all of this. Especially after spending the last four years trying to hide or downplay my disease and what was going...
Thanks so much for your response blksteeda! I opted for the j pouch, it seemed the way to give me the most "normal" life of a 21 year old college student. I'm glad you had a good experience with your...
Hi all! I'm new to this forum page, and thought that I would give a little introduction about myself! I am 21 years old, and was diagnosed with ulcerative colitis when I was 18. I have been on a slew...
Thank you all for your input! And I realize that the c diff could have been mimicking symptoms of a bad flare, and could have added to the failure of Entyvio. However, I have previously failed all...
I apologize for not posting more background on myself! I was diagnosed with UC four years ago when I was a senior in high school and have tried all methods of medication. I've been on Lialda, Asacol,...
Hi all! My GI has made the decision that I need surgery (total pro ticketing with ileostomy, then j pouch) after I my c diff is fully treated (on day 4/14 of metronidazole). I informally talked to my...
Last week my GI finally made the call that Entyvio had failed for me and it was time to start meeting with surgeons. I have an appointment at Cleveland Clinic next week and am seeing a local surgeon...
Has anyone else experienced a bumpy skin rash while on Entyvio? I've had three doses, and have this bumpy rash all over my stomach and it's spreading to my back. I'm just worried it's a sign that the...
I haven't seen any change yet, symptoms are still pretty bad. By the end of the day I can barely walk and getting up or down stairs is impossible....
I'm on week 7 of Entyvio (3 infusions) and am experiencing a lot of pain in my hips and knees. Anyone else experience this?...
I am 21 years old, and was diagnosed with ulcerative colitis when I was 18. I have been struggling to control my symptoms basically since I was diagnosed with almost no luck. I have tried Asacol,...