"The Bag" Well the good thing with the Jpouch surgery you get to try out the bag and Im not saying all but probably most realize it isn't that bad, some even decide to stick with it, as each...
I was in the hospital for about 3 weeks with the first diagnosis. A younger male, it's tough to be stuck in bed and in pain bleeding out your rear end. I started remicade and it somewhat worked, to...
https://www.cnn.com/2019/09/25/health/best-drinks-for-hydration-wellness/index.html "Sure, you can always reach for a glass of water -- but plain H20 isn't the most hydrating beverage around,...
Don't forget it's in your right to at least apply for the Disability Tax Credit. (DTC)...
Inflammatory foods are very bad for UC, most if not all the pork people consume is processed now a days. If there was any sort of link to pork itself, we would see it in the countries that consume it...
I do know Dr. Zane Cohen, was quoted as the “The Godfather of Colorectal Surgery” who unfortunately retired but I'm sure he would of trained a few good surgeons under him. Mount Sinai hospital would...
I feel for your loss. Losing a loved one is never easy and even harder a mom her kid at the same time suffering from a chronic disease adds to the pain. When this happens we mourn for what we lose...
I am a firm believer in that you can train your mind to think certain ways, many successful people in all aspects of life have known this and train their minds. I think it's understandable you react...
I think everyone gets a little nervous, if it's effecting your health you can possible try something like an ativan script which helps with anxiety weeks or months before. Though I admit this is...
That doesn't sound fun and I understand your frustration. Do you have it anywhere else or just under the wafer? Hopefully the specialist will give you some insight. Maybe a dettol bath or rinse...
You could always get a second opinion from another surgeon or doctor as far as your symptoms, I can say one way proven to alleviate pain in a safe and proven manner long term is medical cannabis, in...
Have you tried any other digestive enzymes, other than Gas X perhaps a more broad spectrum digestive enzyme may help such as with bromelain and even others. I know personally I found skipping meals...
Chewable pepto bismol tablets actually helped me quite a bit, as the heavy metal like bismuth salicylate kills bacteria. Imagine your pouch being coated in some nice pink bismuth salicylate! It can...
It's interesting finding out what products work best, it's not an all size fits all area that's for sure, I found Penaten Medicated Cream, had to be the medicated formula best for me. While I know...
If you are already suffering from butt burn you can start using some Zinc barrier Cream if you are not currently doing so. But just because you are suffering now doesn't imply you will later. As far...
You've probably increased your odds of a longer life by ruling out Colon cancer which ranked #3 on the list of common cancers last year according to cancer.org. That's one thing to be happy about. I...
At one point I actually managed to slice my stoma, perhaps the appliance was a bit too small or also physically did something to cause it, regardless I used some colloidal silver here and there and...
I'm a firm believer you can still better your best just you really just have to try a bunch of things and never give up, try new supplements, put in foods, take out foods from your diet, and so...
Have you tried regular epsom salts baths? I don't see it hurting. "Magnesium can be absorbed through the skin, so while you are relaxing in an Epsom Salt bath, your skin will be soaking up the...
I could add something that I have had the Jpouch surgery and even the removal after, going back to an End Ileostomy. And even after the extra loss from removing the Jpouch I rarely suffer from...
Then the new supplies will work, though if you are not already using an extra barrier system with the appliance I would recommend it with the Loop. It's been years since I had my Loop but as far as I...
Have you already pre-cut the supplies to your current Stoma size? What kind of Ostomy system are you using, 1 piece, 2 piece?...
Can't wean off Prednisone, when you start needing regular Blood Transfusions or have noticed weight loss in excess month to month are some good signs remember we lost one of our own right here when...
I'm glad you're doing well! Regarding the dad and the food.. sometimes watching someone you love go through this disease and the surgeries is very tough and people cope in all sorts of ways, blanking...
I had UC that was medical resistant and led to my 3 step jpouch Surgeries. I was around 26 at the time. It's hard to fathom having to make the choice at 11 years old. The end Ileostomy vs the Jpouch...
My appliances can last anywhere from 1 to 7 days and I even take a bath every day though I try not to get it too wet. The appliance and bag are separate in a two step appliance/pouch combo some come...
Everyone goes into these surgeries at different ages, in different medical conditions, on meds, off meds, that is to say everyone's healing is uniquely their own experience. I did have a jpouch and...
I'm sure all cases are unique I had the same procedure initially with complications from the removal process which lead to another surgery which involved the same area. My "rectal wound" took months...
Was this a 3 step procedure?...
This summer has been a hot one I hope everyone has been managing through the heat. I for one have had to really go out of my way to focus on foods that in theory would slow one down and up my fluid...
I also had a enema xray. I'm not sure what the point of checking up in there visually would be this early, less they are concerned about Crohn's before takedown....
I believe recovery varies for everyone. 1, Hemoglobin which is almost always low for Colitis patients and after surgeries will slowly return to optimal levels but this may take 6 months to a year. 2,...
That balance of trying as many things as you can but only to the point of not waiting too long. If your blood work fails to improve, can't taper off the prednisone and need constant iron or blood...
It's not linear healing with these kinds of surgeries, that is to say healing comes, but not as you may expect it. The difference between a week or two can be surprising, so try to be patient and...
This was a tough one for me as well, having been in the same situation as he was in facing surgery in poor condition, and also responding to his earlier posts which I believe he read shortly before...
Surgeries always carry risks, your surgeon has outweighed that risk in favor of surgery. Your medical history and your adhesion issues would of been part of that decision. Loop ileostomies are a real...
Evidence is suggesting Jpouch success rate is closely linked with the experience of the surgeon having higher success rates at hospitals that perform this surgery regularly. "Ileal pouch–anal...
Good luck, after a few weeks I was back at work, no problem, just remember to pick up some zinc cream, wet wipes and ideally a bidet for the bad days....
My experience, a 3 step jouch surgery, a jpouch removal and return to permanent ileostomy. I'm curious if you are doing a two step or three step, as if you do the two step you end up with a loop...
What you can try that has worked for me at the time is pepto bismol. I was using the chewables and this can work similiar to the antibiotics and is safe long term. It's over the counter and easy to...
Are you using any Loperamide? Epsom salts/warm baths after right after if things get really bad. The area eventually gets use to the acidic nature of the bowel movements over months and years. Some...
Pepto bismol -- The reason? Bad bacteria can over run the pouch and since Pepto bismol is a heavy metal (99% passes right through.) bacteria cant build up a resistance to it. That's help me some....
When I had my Ileo I was a mechanic so I started slow but eventually could lift no problem, the trick is going slow and building from the ground up. -- The core muscles in the abs around the stoma....
I had a fairly mild case of join pain, that said, I've had good success with a combination of goat milk.. yes, goat milk and this product, I believe nutrtion in the goats milk is very easy to absorb,...
Don't be mad at your self, we all fall down, we all make mistakes, things may not go as we first planned, but we only fail if we give up. You can always better your best. Now, from my personal...
Keep an eye on it, that should be around the area where the small intestine was put back together, so it could be swollen still, but if it doesn't go away and you arn't passing much or any stool then...
Have any of you tried immodium before bed, as a jpoucher it makes a huge difference. Personally I was at my wits end with lack of sleep to the point I decided to try medical marijuana as a sleep aid,...
As a Jpoucher, sometimes Pepto Bismal can fix numerous amounts of digestive issues in my case, it might be worth a try until a doctor gives you a better choice....
Dr. Karimuddin, right? The man knows his stuff. I don't have any experience on your specific list but I had UC which led to a 3 step J-pouch built by Dr.Karimuddin. Ask your self are there any...
I think you mean an Ileostomy bag, you can visit jpouch.org and read alot about peoples experience, the vast majority of pouchers are happy with their surgery there is however some, including my self...