I agree with what everyone has been telling you. I'm also 3.5 out of my last surgery and every time I try to do too much, I pay for it in a big way. I had a "loop" ileostomy in 2017, now they removed...
Oh THANK YOU Virdent! I really appreciate your wisdom... nothing better than advice from someone that's been there. I do feel like the surgeon is very good and, as you say, made the recommendation...
I had a loop ileostomy 2/2/2017 because of colonic inertia w/ pelvic floor issues. Knowing what I know now, I would have questioned why they didn't remove the colon and do an end ileostomy at the...
I don't know if it makes a difference by colostomy vs ileostomy but I totally understand. I can't stand the thought of leaving the poopy neck either. I tend to use a lot of toilet paper which I...
Interesting posts. I had a loop ileostomy 15 months ago for colonic inertia and pelvic floor damage. When we initially talked about an ostomy, it was explained that a colostomy (even though a bit...
Congratulations! It's comforting to hear how well you're doing. I'm only 5 months post-op and have good days tempered with a few bouts of extreme frustration. Your post assures me everything will be...
Thank You Benny, Cupcake and Karen ... Your expertise helps me so much and it's sincerely appreciated. I believe you're right in that I have a small blockage. I have to admit, I've been a little...
I apologize Benny Stringer, I'm really not feeling very well so perhaps I'm not being as clear as I had hoped. I have a loop ileostomy with the colon left in place (simply bypassed). 1) What might...
I feel very bloated and uncomfortable. I should probably know this, but is diarrhea and liquid output ileostomy the same thing? For a few weeks I have felt almost as though I'm constipated and gas...
Thanks Notsosickgirl, You make perfect sense... I think maybe I just got my wires crossed. I STILL feel extreme brain fog :( I LOVE YOUR SENSE OF HUMOR!!! Your points with regard to the loop vs end...
I have a loop ileostomy, nearly four months. Prior to surgery I liked to take a 30 minute sauna after my daily workouts. I got a little paranoid about getting toxins out of my system because of CI,...
I've actually been thinking about this question for a while and have paid particular attention since. I agree with Eva Lou... it's no different than the typical hungry/grumbly tummy sound. Now, I...
I'm just curious... why the time difference for loop vs. end? I have a loop and with my proverbial 20/20 hindsight, I SO wish it was an end. At this stage of my life there's no way I'd try to go...
Hey there Cupcake... I thought I posted a reply the other night but it just dawned on my why it's not showing up... I did it WRONG :) Anyway, I wanted to THANK YOU for such awesome information. I've...
You're right Kanva, There SOULD definitely be an upside to having this surgery. I did the same exact thing... OH, I can change the pouch without the flange/wafer??? --> Novel concept!!! I've had my...
I have had an ileostomy for about 2.5 months, all's well but I seem to be losing ground with keeping my skin healthy. I have been discharged from home health care for a few weeks and truly don't...
Hi Karen! Please don't apologize for reaching out again, you are NEVER an intrusion. In fact, YOU are the reason that I started questioning everything and knowing in my heart of hearts, that I do...
When my ileostomy was done in February, I thought I did my due diligence and knew what was going to happen. Humbled, to say the least! When the surgeon said she was doing to loop and merely bypassing...
Hi Laura, I too lost track of time to answer your post. I have been going through "digestive" issues for most of my life but didn't start going to an actual GI doctor until about 5 years ago. The...
Hi Karen, That's very interesting and good to know. I have been "feeling" like I'm constipated and keep expecting gas or something to pass... could that have be an indication of anything? I also have...
Hi Suzina, I took Lactulose and Miralax too. As I said, for a while they worked so I'd move on to the next thing to try... even revisited a few things that I tried previously. I too had passed on...
Hi Laura, I too have CI and have struggled with it most of my life. I'm much older than you are and sincerely appreciate your comment about not wanting to wait until 50 to start living. You're...
Hi Tracey, I have colonic inertia and like you, constipation got progressively worse over the years. I'm 63 and knew I had to exhaust all the medication routes and whatnot before what I thought might...
OH my goodness, I am actually embarrassed to think I even dared to give YOU advice. I must have been having a bout of major brain fog; I sincerely apologize and thank you for your kind response....
Hi Dorri, My surgeon was concerned that I wasn't getting enough nutrition and suggested I start the day with BOOST, it's got protein, vitamins and minerals needed. I'm pretty weak when I get up, so...
Hi Sunny13, I recently had an ileostomy because of colonic inertia, along with pelvic floor problems which made a resection futile. The surgeon explained that she was concerned that I would still...
Good to hear the response Charlotte! You're really on top of things and obviously a quick study. I have only showered with the bag off once. It does feel nice was also a little awkward (hoping it...
Hi Charlotte! I am also recovering from surgery. I too have been having issues with irritation around the stoma. I ended up back in the hospital (for a couple weeks) immediately after surgery with an...
Hi Suzie, I had an ileostomy February 2nd. I was released from the hospital in 3 days (too soon) but ended up in the ER the next day with severe dehydration, pain and vomiting... sent home. That...
Since I'm still very new to my ileostomy and trying to dial in on products... this story MADE MY DAY! I was asking the ostomy nurse about the adhesive remover just today. Now I'm excited to know I...
Thanks Clo... you have been a wealth of information and your suggestions are great! You're right, it's so much better knowing these things ahead of time, especially with my anxiety issues. Being...
UPDATE: So the results of the Colon Transit Study showed 154 hours to move through the large bowel, in what should have taken a maximum of 35 hours. The surgeon believes that considering the problems...
Thanks Linda, Perhaps I should have said "Colon Transit Test" (using Sitz Markers). All I know is my surgeon wanted to have one done, I believe mainly to determine the type of ostomy to perform. My...
I'm really new here so please don't think I'm qualified to spew absolute truth. I have had issues with IBS (spastic colon), diverticulosis and constipation most of my life. I have also had issues...
I was happy to see someone with a few similar issues also question the idea of such a surgery. I am quite a lot older than you but I have had a lot of the same issues since childhood and will tell...
Hi Karen, You are the BEST... I thank you so very much for taking time to talk to me. I have been told exactly the same thing by a lot of people, but unfortunately none of THEM have gone through it...
I am brand new here so hope it's ok to ask for opinions, advice or suggestions. I'm 63 and have had digestive issues (Irritable bowel/spastic colon, something I always thought of as a catch-all dx)...