Yeah, have a read a lot about the final stage and the joys that come with it. Just got to stick with it, stay positive and eventually be worth it. I'm super lucky in that one of the stoma nurses I...
Perfect. Good to know its nothing out of the ordinary. 1 more step to go :-)...
Last monday I had my 2nd operation of 3, end goal of having a J-Pouch. I'm doing well, recovering fine. I was wondering if any of you had any fluid coming out from your backside and if so for how...
4 Months since my surgery and I feel ready to start exercising again. Nothing crazy, just lots of body weight exercises, running & cycling. I've been looking at supports belts, something to add a...
Depends where you live, cost me £130 at the time. I know it's super expensive in the states I agree with you on more failures than success but all it takes is for you to be that one :)...
This isn't for everyone but I tried something called "Helminthic Therapy" which is basically infecting yourself with microscopic worms. It's incredibly interesting and I can honestly say it worked...
I'm 24, I have an ileostomy but plan to have two more surgeries to get what's called a J-pouch. I can honestly say it's the best decision I have ever made. A lot of comes down to frame of mind. If...
When you got to go, you got to go. No harm done. Glad you were able to avoid an accident. We have all been there...
I opted for surgery with I was fairly "fit and healthy". What made me do it was I'm 24, have done pretty nothing with my life due to this horrible illness, I was fed up. It's been 3 months since my...
Recovery is going good, bruising is almost gone, the glue on top of the keyhole holes is almost off and stoma is going down in size. No aches or pains part from the small blockage I had. Was...
I'm using the 1-piece dansac, flat bags...
Only had my stoma a week, no leaks so far and all is well. One thing I have noticed is the flange tends to crimp in places which makes me worry that is it going to leak. Is there anyway to stop it...
if you have to cough or sneeze, place a pillow over your abdomen to help brace yourself, sneezing sucked lol[/quote] Ill certainly try that when and if the time comes. Luckily I have only coughed...
I left with plenty of supplies and the nurse will pop round next week to check on me and sort out the monthly package. Have only coughed so far, not looking to forward to a sneeze :) I do feel...
Well I'm back home after 3 days (step 1 ileostomy), everthing went perfectly other than some trapped air in my shoulder which is causing abit of pain. Everyone is suprised I'm out so quick but I did...
Good ol'drugs :)...
I know about the catheter, honestly I'm not worried about the surgery at all but the idea of something going down my manhood makes me squint haha Believe me I'm very excited and can not wait. Have...
That's great to hear. Ill be having my large bowel removed as well. I'm really looking forward to the future. Few months of healing and adjustment but I'm sure we will both be up and about doing...
It's your choice. I'm 23, going in for my first operation on Monday. There are still a few things I could try but for me personally, being on drugs for the rest of my life isn't an option. In most...
Hey CharlotteR. I'm getting an Ileostomy, was just curious how it was done Probably feels like you went to sleep and woke up at the same time Been waiting 6 months for this day. Got my bag of...
Due for surgery next week which I'm excited about, I was just wondering how the surgery is done. Am I in my birthday suit spread across a table? Are you completely covered up apart from the area...
Thanks for all the responses, been great reading through them all. That sounds like a solid method SueBear, write out the pros and cons of each and decide from there. I know ill be able to get on...
Mid February next year I'm going to be having surgery. I opted for it as opposed to waiting until I'm on deaths door and need to be rushed in, the body is already beat down and then throwing it into...
Just came back from speaking with surgeon. Very nice guy and very helpful, seems like the man for the job. Got to speak with someone else and take a physical test, should that all go well he reckons...
Good news, finally have an appointment booked with a surgeon. Other than just chatting with the guy to get a feel for him and what he is like along with getting him to explain the operation, what...
Just came back from seeing my GI, I made the request to see a surgeon so will hopefully hear about that in a few days, in the mean time he has put me on the immune-suppressant Azathioprine. He is...
I have a very strong mental attitude when it comes to most things. I know ill be fine with a stoma & if/any complications that may occur along the way. Just got to think about the end results. No...
That is great, shame about the complication during surgery but it sounds as if it paid off. Stories like that make me lean towards a stoma even more. Can't remember the last time I went out for...
Pretty much hit the nail on the head, that's exactly how I feel. One is essientally a cure, the other just covers it up so to speak. I could spend the next few years trying different medication...
Just found out of my friends has UC, he has been on some medication for the last 2 years which has kept it under control, allowed him to travel etc.. he is even talking about going to NZ for 12...
I was wondering how they can diagnose one or the other without checking the small bowel? I was under the impression that UC effects the large bowel and rectum where as Crohns can be anywhere. Surely...
Just came back, took just over an hour. Took a lot of different tissue samples which I won't hear about for another 2-3 weeks but from his diagnoses he has put it down as UC. Also said my ulcers are...
That's pretty much how I feel about it. To me, a bag really doesn't seem like a big deal Just started my second litre of the MOVIPREP stuff, I think it gets worse with every mouthful :smile:...
The only reason I have heard about Remicade and Humira was through my own research and looking into different treatments other than that I had never heard of them. I'm partly to blame though, like I...
JayBee & GC4249, great replies. Glad to hear that everything has worked out for the best. 3-4 Months of adjusting to a bag in exchange for having a life, I would be OK with that :) @NotSoSicklyGirl...
I'm positive I have not been on any of those, not even heard of Simponi before. From a colonoscopy they can't tell if you have UC because they can't check the small bowel so will I be needing some...
Hey Bania There were several years ago I was on, can't remember the name(s) for the life of me but I was eventually told to stop taking them. The only regular medication I'm on is pentasa daily and...
My problem is I'm not really a talker. Unless I'm about to drop dead I just get on with things and I guess suffer in silence. It's only really been the last 5 years where I have had lots of flare...
Hello Sue, thanks for replying I can understand they want to try other things but much like your old self (hopefully you're doing much better now) I have no quality of life. Going to the local shops...
I'm 23 and have had IBD since I was 12. My quality life has been poor and I'm literally home bound. Have done nothing with my life and it upsets me. Seeing on your friends/brothers getting on with...