Sorry I thought I'd sent my reply! Thanks so much for taking the time to reply whilst in hospital, I've been doing the stretches, hurts a lot but I will stick to it. Ill be telling my docs about it...
Sorry I thought I'd sent my e...
Thank you very much for your detailed reply, I had laproscopic surgery which was why they didnt mention adhesions much and were not too concerned about them. Have been lucky to only have minor...
My appointment is 6 or so months away (I'm on the NHS) and just wanted to talk to someone with endo.. I'm a bit worried I may have it? It could be something entirely different! Bit of history broken...
I guess so, I just dont want to make a fuss and hassle them. I'll think about it giving them a call!...
I had laprascopic surgery, tinyy little scars, so the recovery time and adhesion risk should be much lower. I have an appointment with the surgeon in November, it would be a year with the stoma, so...
Adhesions are definetly up there in my suspicions, annoying that the only way to see them is more surgery. As with when the pain comes - I dont really see a pattern, it comes in flare ups for a week...
*My stoma output is fine, I dont get blockages, forgot to add - late at night mind racing bad stomach pains. Normal thickness, stress makes it watery, all the norm. Stoma doesnt hurt but sometimes I...
Soo 9 months ago I had my ileostomy formed, going great, got a good routine and everything is fine.. ..Apart from the continuing abdominal pains. Like after everything I eat and its not because I...
Is he flaring now? I'm not sure what the protocol is with young children but would you be happier if he could have light sedation rather than general anaesthetic? But then I don't know if he would...
I'm 16 and my UC got bad really quick and I was on infliximab(remicade) and steroids within two months of the diagnosis. I was still having to go 5-10 times a day when I was on the meds and still had...
I agree, I don't know much about lupus but I do make an effort to answer questions and give support on the ostomy and UC forums. I've always found them to have loads of people reply on there and was...
They seem to be focusing on lupus because RA and athritis was ruled out from other tests. I don't think it's lupus, seems too bad to be true lol. Not sure when the appointment is, soon hopefully. I...
Hi, I've had joint pains since forever and a few other symptoms. The joint pain is worst in my fingers, toes and knees. It sort of 'flares up', last week it was so bad I struggled to text or bend...
After all meals my stomach gets very hard and gives me pain, I also get bloating and pain on my lower left abdomen...
It makes me think that I may have crohn's colitis? Anyway basically calprotectin can show how much inflammation you have. People with active IBD usually have levels around around 100-1000 and mine is...
That's crazy, it must be horrendous waking up from a procedure with a totally different outcome!?! I would definetly suggest trying some counselling, I had my ileostomy planned so I did not have the...
Hi! Haven't been on here in a long time! I'm nearly 2 months post op and I'm still getting really bad stomach pains, worst on the lower left side of my abdomen. I have still got my rectum and my...
I'm just getting back to my old routine with food, the rate the bag fills up is not an issue anymore (they gave me big portions in hospital and all at once and I normally eat small portions...
I had my ileostomy on Monday haha, glad to hear things start to go slower through you as time passes. Is it worth trying loperamide before meals?(does it let you absorb the vitamins better because it...
How quickly do you empty your bag after eating, if you go out somewhere to eat do you leave the bag full for a few hours until you get home or empty the bag at the nearest toilet as soon as it fills?...
Bit tmi but do you have to wear a nappy to catch the leakage? And do the leaks smell really bad?...
This is my first post regarding surgery and I have wanted surgery for a long time after my diagnosis because the medicines I was on never really seemed to help. I always had the side effects from...
I've always wondered about how the brain and the gut are hand in hand with emotion, I read that the gut bacteria directly affect mood and that most of the bodies serotonin is made in the large...
My bowel was generally quite swollen and thats why it was giving me so much severe pain and it may have ruptured if I hadnt gone on the steroids. Will be organising a total colectomy to make an...
Had an xray and my colon was pretty swollen prior to immodim and that made it worse, admitted now and having iv hydrocortisone Just wanted to end this thread :))...
I think I may just be very sensitive to loperamide, the pain is still here unfortunately and still havent had a BM yet since 8am yesterday. I should be fine. Ill ask my GI about the reaction soon....
Hi Richard, I do use it very sparingly, I take the minimum dose and only take one a day. Never over that as it makes me constipated...
Brand imodium by jassen. Ingredients are Lactose, maize starch, talc and magnesium stearate (E572). Tablet coating colours: Titanium dioxide (E171), black ferrous oxide (E172), yellow ferric oxide...
I only take 2mg (one) a day, it also makes me sleep for hours.. Its just the classic normal imodium These symptoms im getting with taking imodium have only started fairly recently. Not sure why. Im...
I get these symptoms about 2 hours after taking it and all the symptoms come at once in waves, itll get bad then get bearable again and so on.....
Does anybody else get dizzy, feel sick, tired and get a weird pressure in the middle of your chest when you take immodium? :)...
ChristyLat Try not to worry too much, that can make it worse. You know your doctors will find a medication that will work for you so you have the best quality of life available. It is hard with a...
Hard to get a restraining order in the UK so that wont be possible, will be contacting his parents to keep an eye on him and so they know he's harrassing me. But hopefully that should act as a...
My last flare made me go 15-20 times a day but this flare(At least I think it is a flare) is only having me going once or twice a day but when I go it is very very watery and there is some blood and...
Thanks guys, felt alone in this, ugh he tried to come round yesterday and violently knocked the door and stayed in the area for hours until my dad told him to go home.....
Hi, I am sorry if this post is a little bit all over the place. I havent posted in this section before and was wondering if anyone has been in a similar situation to me in regards to ex partners...
The colitis is spread around my entire large bowel with the exception of my rectum, unfortunately I am still at the age where I am put in paediatric care which means I'm not given proper terminology...
I had been experiencing severe headaches for months after my last flare and I thought it was something to do with the prednisolone that I took during that flare. I had ct scans and doctors consults...
I don't think you're pregnant if that's what you're worrying about, the steroids can definately mess you up. I didn't have a period for about 2 months after I came off steroids. Take a pregnancy test...
I was wondering because of the side effects, lymphoma etc.. Am I right in thinking after those 8-10 weeks your risk of those cancers and other side effects are reduced or gone?...
I'm 16 and got infliximab at 15 when I was hospitalized. I didn't expect the drug to work as fast as it did(only 3-4 days), it got me out of the flare I was in and I was feeling much better. I have...
How long does the drug stay in your system in terms of inhibiting the TNF-Alpha function? Do your cells go back to 'normal' after a certain time period, as well as the drug being flushed out of your...
It behaves in every way Ulcerative Colitis does, even my last biopsies suggested UC because of no granuloma's. Maybe this is just an abnormality in my UC. I had another biopsy 2 weeks ago so I guess...
I havent had this before and cant find much online about it, my colitis isnt in my rectum at all, its healthy,which confuses me more.. But I will be seeing somebody on Tuesday in hospital...
My last flare earlier this year had me going 15 times a day without fail and always with lots of blood. However I am now having my second flare and its been very irregular. Some days i'm having lots...
Kzaveri, if things get apsolutely unbearable and really bad,I may drop out. But for the meantime I will definetly get through this and try, plus i'm going to try finding herbal alternatives and more...
Thank you so much! These responses mean a lot to me :)...
I relate with that a lot, high school was generally not understanding. That sounds like a really nice college experience, I hope its like that for me too! I'm doing a health course so hopefully...
Hi, I understand that, I'm only going for the ileostomy and perhaps a j-pouch when I'm much much older.. I spoke to my college about it, explained the complications etc and they said I could catch up...