I have had my ileostomy for 5 yrs now. This is the 2nd time i have had to get a reconstructive surgery to my ostomy. Last time they put the mesh in to keep in from coming out so much. It's like 3...
i kneel while i dump my bag. going to have reconstruction surgery on my left foot. Now how the heck am i going to dump my bag?...
What if we could not get any appliances for our ostomies? I, myself always have an extra 2 months supply. Now i am thinking of getting a 4 months supply or more. Only thing about it i will have to...
I had a prolapsed ostomy two yrs ago. During the surgery they put in the mesh. So far so good....
Just wondering if you guys don't drink much water could your stools become acidic enough to break out. or is it that I am becoming allergic to the appliance I am using....
I started lifting weights about 2 months ago, along with some walking. I am at the gym to put muscle weight on. I know to not abuse my body, in the mean time I want to take care of my stoma. so what...
WET WIPES....
you are so right. I too have found some healing properties in this wonderful god given plant. Frickn chrohns meds have ruined my life. they will yours too....
does your state have medical marijuana? if so give that a try for your pain. Better than narcos....
I do not know if I can do this or not. going to give a try though. I have 5 boxes of 1 3/8 sensura milo deep convex ostomy pouches for give a way. I am not down to 1 1/8. had 2 twisted bowels a...
Equestrian Mom. I just got done ordering some free samples. how often do you change your bag? right now I get 6-7 days out of mine. I shower every other day right now in the winter. summer about 4...
The wife and I are looking at going down south for a few months next winter. Just wondering who swims with ostomy, just wondering how long the ostomies last after some swimming. We will be having a...
hi ya Zigs. I have had my ostomy now for a year. month after take down I was having stomach pain. Found out I was blocked. How is your output?...
I do not get on here very often, no excuse. I have had my Illeostomy since dec 2016. having problems with it prolapsing and much bigger in diameter. it shrinks when I am laying down. just wondering...
man i hate this ostomy. had surgery on the 10th of december. I hate the fact that i am caring poop under my shirt. Hate the leaks. i just hate it all. so damn depresssed it sucks. i am 56 yrs old....
There is humira,stelera. I would try everything out there before surgery. Words of wisdom....
On my way to Mayo in Minnesota 12/10/15, is the day they cut me. I am doing the ileostomy. Been thinking about it for years. Time is right, right now. Been having lots of issues, pain,pain,pain. My...
I have been doctoring with 2 different docs. One in home town an the other at Mayo in Rochester. I am so torn right now. Do I or Don't I. I am at the point I am going to do the illeostmy. They are...
FINDINGS: Normal CT appearance of the liver parenchyma. No biliary dilation. The pancreas is normal. The adrenal glands and spleen are normal. Small left-sided renal cysts. No evidence of...
i do have crohn's. I do take digestive enzymes and i take gas x. Nothing helps. I have stomach pain for over 2 months. almost daily. going to the doc on the 7th i think. I just do not want the bag....
i had shingles about 3 yrs ago. cider vinegar really helped me out with the itching. give it a try even if the doc does not say to. gooogle it. bw....
[tr style="mso-yfti-irow: 0; mso-yfti-firstrow: yes; mso-yfti-lastrow: yes;"] [td style="padding: 3.75pt; border: 0px rgb(0, 0, 0); background-color: transparent;"] My doctor wants to give me an...
My doctor wants to give me an ostamie. I had a j-pouch sinse they took my colon out, in 05. Having lots of pain. Gas build up lately, right before my j-pouch. would a bag get rid of all the pain i...
Hi ya Mac. I have been where you are. What I did was, i wrote the hospital administrater and told them what had happened to me. They actually called me and asked me what had happened. Yes i did tell...
my doctor wants me to try Entyvio. Kinda worried about all the new drugs out there. the Drug i am on now is Stelera. Not working i found out after my scope today. I do not have a colon. It is...
yes you are right. Looking for other options. i am assuming you are asking if i am on immunosuppression? If so no i am not. as to the cimizia. I ended up in the hospital in december and doc figured...
ok i am searching for meds used on us chrohnies that have it rough. have to explain a liittle about me. Took out colon and removed part of the small intestine. I have been on Humira,remicade,cimizia,...
Hi ya my name is Bill. i am 54 yrs old with Chrohn's and Charcot Marie Tooth Disease. Neither of them are life threatining but no cure for either of them. They have been kicking me in butt lately....
Hi ya Pat. i live in North Dakota. I live by the oil fields. There are plenty of jobs of here if you want to move. only thing bad up here is Housing. Go to jobsnd.gov and search the williston,...
my lord 100mg's. I have had chrohn's for many years. Never have i been on 100mgs. I too would get a second opinion. The most i have been on is 60. Good luck to you. /community/emoticons/yeah.gif ...
if you are going to mayo in Minnesota. My doctor is, Dr Kane. She is an excellent doctor. Been going to here for yrs. Give her a try. This is Chrohn's related i am assuming. Good luck....
just needing to vent. I have been on Remicade,Humira, and going of cimzia. Starting Stellara on Tuesday the 18th. Been on predinsone for 3 yrs. av erage dose 15 mgs. My highest dose has been 60 mgs....
Has onyone used this Drug Stelara? My doc wants to put me on this. I really don't want to be on this drug because of all the side effects. /community/emoticons/yeah.gif I have been on Remicade,...
i have been on cimzia for roughly a yr. so far so good. as of two weeks ago my whole body aches. did some blood work yesterday, and waiting for the results. Being positive about it....
Hi ya. I have been on prednisone for over 2 yrs. 20 mgs. i try tappering and i get the direhea and i have accidents at night . I also give myself an injection evey two weeks (cimzia).i have had...
I had to tell my boss about it 11 yrs ago. Very understanding company that i work for. I have missed months of work because of this d/d. Could be worse. I was working out in the field until about 20...
Raven. This is one great site. More information on here then you can get from a doctor. Believe me. been there done that. I keeping telling my doc they should tell Every patient about this site. As...
Hi ya. i am going to start taking cimzia on Friday. I have been reading alot about sice affects. How common are the side affects. Doctor told me i have been reading to much on the net. (whatever). A...
have had this d/d for 10+yrs. had large intestine removed and part of my small. i have been on prednisone 15mgs for about 1 yr. of course my gi would not perscribe this my family doctor did, after i...
thanks for the replies. I have a scope scheduled for the July. will find out more then. Gotta hate them tests. /community/emoticons/yeah.gif One thing good is i do not have to drink that gallon jug....
Go with your Heart. Do what is best for You. I myself, received an inheritance at 21. I blew it on whatever. [img]/community/emoticons/nono.gif So if you can invest it, invest it. could mean alot at...
here is my dilema. I have been on humira for over 2 yrs perscribed by my gi doctor. 1 yr. ago i ended up in the hospital due to bloating. used ng tube to get it undercontol. after i waas discharged...
I too take it in the stomach. I am a thin guy so there is no way i am going to do it in my Boney legs. I take the shot out of the fridge a half hour to cool off and does not sting as bad. FYI. Good...
i have been on and off pred for the last 10 yrs. Yes it does work GREAT. I am on it right now and have been on it since March of 2011. Small dose of 15mgs. Makes my life great. I have one side affect...
you guys are so lucky. /community/emoticons/yeah.gif I can no longer lift weights. Whenever i benched something, something seems to come out of the back end. /community/emoticons/mad.gif Yes i do...
When i first got this dd, which was in 02. it did cause some mental issues with me also. Don't get me wrong some days are better then others. What really helped is when i was really sick and flown to...
i am 52 yrs old. Had shingle in January of 2012. i used apple cider vinegar for the itching. I had some pain but not to bad. Lots of itching thought. Like i said the vinegar worked great for me. I...