Use the 'search' link and type 'pancaking'. There are scores of threads on this problem going back a long time. A problem that never seems to get fixed in any truly effective way. The manufacturers...
It's not as daunting as you think. I was worried sick of this situation but I managed two eight hour flights with no incidents. Make sure you cover all bases, ie have spare bags etc. and emptying...
Nice to see lager classed as a better hydrator than water! Which puts a big question mark on the credibility of that list? Oh wait a minute, the study was done by a Scottish university, which kind of...
Try and limit your carb intake. That includes beer and fizzy sodas. Beans and peas are also major fart fuel so watch out. It's almost impossible to completely eliminate gas but you can decrease it by...
PS, Karen, my turn to apologise after actually 'reading' your signature. I can only hope you're getting the very best 'care and comfort' you obviously deserve. Stay strong!...
Thanks (Seashell). I already have a 'pharma' version of Metamucil (orange flavour) and started using it yesterday so I'll use it up first before trying citracel. I really like the aforementioned...
Thanks for the info guys. (Seashell): the 3-5 days kinda threw me, for some reason I've been thinking with an ileostomy it was a few hours! For instance, how come if I've eaten fish, my output tends...
is it ok for ostomates to take Metamucil (or equivalent)? pref in drink form (smooth powder). I have never used it since occasionally before my surgery. Was wondering if it would help things 'along'...
Good luck 3xchamp...
My surgeon told me that most (male) ostomates are always going to be prone to hernias. the actual stoma itself is a hernia so to speak. Mine was an 'inguinal hernia' which she had to repair about ten...
It could be 'dangling redundant nerves'. Had my ileostomy 2 years ago (not sure how much anal stump-if any). Still get those 'weird feelings where you think you need to go/pass wind' but not as much...
Thanks pombear. Yes I know the bag can become a problem the longer it's on. With a two-piece system (just found out after 2 years!) it's quite easy to swap-out a faulty bag whilst leaving the flange...
I normally change everything once a week. I wonder if I can just change the pouch and leave the flange on for longer, say another week. Would that be too risky, and could it impact the skin...
Nuisance....
^^^ this was supposed to be a reply to the high output stoma thread....
What's high output; more than 4-5 times per 24hrs? Edited to add Subject line (I know it was supposed to be a reply to another post but unfortunately, I can't move the post :( ... Shaz...
Cheers Tom!...
Occasionally when wiping round my stoma I notice fairly slight flecks of fresh blood. Could this be normal or is there something that I'm not doing right? Any feedback would be appreciated. Thanks....
doggiedo, I was an emotional wreck when coming off the prednisone carousel. Tried all the traditional meds to try and stabilize my anxiety. It took a short period of experimenting with different...
My heart is ok, but I often wonder if Viagra would cause me pain especially if there is nerve damage. I doubt that I'd go for an implant at my age and maybe just draw a line under the whole sex...
Cheers guys....
I'm 16 months in from a total proctoclectomy. The anus and rectum are gone. You are right to be concerned as you are still young and sex is an important part of a good relationship. I'm in my...
15 months since total proctolectomy and I've just started getting that familiar horrible 'constant urgency' UC/ bowel cancer pain. I recall similar but much milder sensations for a couple of months...
Oh, I'm thinking in the reverse like 'convex' bulging out and 'concave' sinking in. I guess I should be looking at concave then. Thanks...
I empty mine about 4 times a day. I often wondered what the average capacity amount that prompts us to empty the pouch. 1/3rd full? 1/2?, 2/3?, 3/4? (eek). I realize this is personal preference and...
About 13 months in from surgery my stoma has not only grown gradually in girth but is also now sitting at the top of a smallish 'hill'. Should I consider using a convex-shaped flange/wafer? If yes,...
You're still quite young but you've still got a few biological things to try before you make such a life-changing decision. Hang in a bit longer but on a note of caution, if the damage never gets a...
Hang in there Solomon, had my op 12 months ago and had pretty much identical symptoms as yourself. It took about 7-8 months for me to come to grips with all the annoying little niggles. I'm 74 so it...
I've discovered from this forum that some people go 7 days or more between changes? I's been a year since my surgery (plus a hernia op 5 weeks ago) but I schedule my changes every 6 days. I've been...
nssg, I'm actually having surgery on an inguinal hernia on Thursday. My stoma sits on a small but significant 'knoll' to the right and slightly south of my belly-button. I don't like the idea of a...
Thanks guys. bania, did your stoma shrink back to its normal size? Yeah, if it looks 'permanent' I'll have to cut bigger holes. The mushroom shape worries me in case I can't remove the wafer, eek!...
Apart from the swelling itself, it almost morphing into a 'mushroom' shape. It's colour hasn't changed. Output still fairly consistent. I just hope it's not damaged in any way....
Ten months since my ileostomy surgery, this past few changes I've noticed a worrying increase in the girth of my stoma. I buy the flange/pouches pre-sized (29mm/44mm). It seems to be too snug a fit,...
Good luck answers. I'd like to give you some positive encouragement because I have an inguinal hernia operation on Thursday. If there's any good words out there I'll share them with you....
JS44, I hope you find a solution to the smell problem. Same with the pain but if you're always hungry please don't even THINK about considering medical marijuana!...
I realise that there is still a lot of inherent reluctance on this, but MMJ is now prescribed to patients with poor (or non-existent) appetites. Judging by the reviews, the results are very...
"Always look on the bright side of life dadoo dadoo dadoo dadoo..." (Song from "Life of Brian")...
Thanks guys. Been much better this past two days. Told to start my oral chemo on Monday. I have an ileostomy pouch....
this is brutal, never had D that lasted this long. The cramps are horrible. Last Friday my GP put me on lomotile (Imodium was ineffective). had to provide stool (liquid) samples. I'm worried if it's...
thanks pro, I'll check these out for sure....
bania, my wife sewed little pockets on the insides of 4 pairs of my (L) underpants but the waistband was directly across the stoma. Maybe I should ask her (nicely) to do the same with XL ?...
Wondered if any of you long-termers have any preferences. My pouch seems to get fairly heavy regardless of what I'm eating. I'm presently on oral chemo (Xeloda) which gives me occasional D and it's...
thanks cmitch. 'wound care center' I don't think I've heard of one round these parts. I suppose it makes sense though but would probably lead to surgery of some sort. I'm not sure I could handle any...
thanks ccg, wow sticks out an inch but can retract to skin level. If mine did that I think I'd lose it (in more ways than one). My weight has been very constant for at least 3 months but my abdominal...
I've noticed the past couple of changes that my stoma (approx. 1/2" protrusion) seems to develop a 'mind of it's own almost. When I'm cleaning around the outer skin, the stoma wants to sink back...
I live about halfway between Toronto and Niagara Falls. I don't think I can help you choose a surgeon though. Mine was basically an emergency because my (brought forward a year) colonoscopy indicated...
Thanks Keith, that sounds very plausible....
Nssg, I'm glad you got through the steps unscathed. Unfortunately that wasn't an option for me. I'm on Xeloda, an oral chemo (lots of pills) and it's brutal to say the least. Right now I'm searching...
Thanks Sue and Karen. I will certainly take a boo at the colon club....
Is there an appropriate forum for this? I'm originally from the uc forum. My sig hasn't been updated for a couple of years but the info will give you an idea. My total proctocolectomy was done on...