Hi Suzy-q, Thank you for your reply. What dose is your husband on now? Is he taking hydrocortisone? No, they did not do the adrenal gland functioning test. From what I have been told 7.5mg is the...
My hubby has been on prednisolone for almost 4 years for ulcerative colitis. He has his bowel removed late last year and has slowly been tapering off the steroids. He is on 1mg! He is having some...
Hi Clo, Not to worry. Thanks for your reply. Hubby is back to normal now. It was only on the weekend, his output was low for two days and then just became normal again. It was very strange....
Hi, Has anyone experienced changes in their stoma output with no other problems? My hubby's stoma usually works like clockwork and he has to empty it about 5-6 times a day. For the last two days, his...
Ah ok so a blood test determines if the adrenal glands are functioning. I was reading somewhere that once you get below 7.5mg your adrenal gland slowly starts to kick in as this is the amount that is...
Thank you suebear. It's so encouraging to know that you are healthy and active after the surgery. There is hope for my husband! He sometimes gets a bit upset as it has been a long road with the...
Suzy-q, thank you for telling me about your husband. My husband is quite impatient and thought he would be off the steroids by now. Over the last 3 and 1/2 months he has down from 20mg to 5mg. The...
Great. So do you ever feel well again after stopping it?...
What happens if it takes longer for the symptoms to ease? He feels crappy for 1-2 weeks after every drop. He then stabilises and then drops again and feels crappy again. How do we know if his adrenal...
Hi, My husband has had ulcerative colitis for 4 years and has been on prednisolone for pretty much the whole time. He could never get off the steroids without the UC flaring. He had a total colectomy...
Thank you for your replies - it really helps! He is seeing his doctor on Friday about it, but from what you said and my research it does sound like a UTI. With the prednisolone he is getting the side...
No he is not urniating a lot. He does not have any fever, chills, or pain. It just feels quite uncomfortable after going to the toilet. It goes away after a while....
It's been 3 months since my husband's total colectomy for UC. He is a lot better, but has had a few problems lately. My husband feels like he needs to urinate even after going to the toilet. Today it...
Hi JayBee1, I just read your son's story and I'm sorry he had such a difficult time. I am glad that he has started to get better. This is a major life changing operation and it is hard to remain...
Hi answers4me2, Thank you for your reply. Gosh I hope it's not a yeast infection. What does a yeast infection look like? The rash is a thin ring around the stoma site, which is red, sweaty and...
Hi Albannach, Yes he does you the adhesive remover, but not sure about the barrier spray. I’ll have a chat to his nurse. He is still using the powder and for the last few days he says the rash is...
Hi sc2016, Good luck with your surgery. Try not to worry too much - easier said than done I know! My husband had a laparoscopic total colectomy 3 and 1/2 weeks ago for ulcerative colitis. He was in...
Hi Albannach, Thank you for your message. Funny you should say that, today I helped my husband put on the bag. We actually followed the same steps as you. He has been a bit shy showing me his stoma...
Hi notsosicklygirl, Thank you for your message. His stoma is not that short. I would say an inch maybe. He does have a stoma nurse. There is a team at our local hospital that we talk to. They want...
Hi cupcakesprinklegal, Thank you for your reply. I’m in the UK so it may be a bit different from the Sates. I’ll have a look at my local pharmacy though. Thanks for the tip :)...
Hi Virdent, Thank you for your message. My husband has had the stoma for 3 and 1/2 weeks. His stoma has decreased in size during that time and the nurse gave him bags with a smaller hole. When he...
Hi Cupcakesprinklegal, Thank you for your reply. I haven't heard of zinc paste. Do you have to go to a special place to buy it? Yes, the nurse did give him stoma powder, but he is not crusting it. I...
Hi, My husband for the last week has had a rash around his stoma from faeces getting onto the skin. The rash is red and sweaty and stings quite a bit. The nurse inspected the stoma site last week and...
I'll tell my husband that. Thank you cupcakespinkgal. I guess he had suffered with Ulceraive Colitis for over 4 years and he saw surgery as the cure and after that he could do and eat whatever he...
Hi Cubgirl, Gosh 30 pounds is an awful lot. Have you been able to regain the weight? I’m sorry to hear you had to have another operation, but at least it is now fixed. From what my husband has said...
Hi cupcakespinkgal, It’s great to hear that you are so well 4 months post-surgery. It’s inspiring to hear that since my husband has started to think that the surgery may have not been worth it. The...
Hi Enigmawrap, Thanks for the tip on mashed potato, I didn't think that would cause blockages. I made it myself with potatoes, salt, pepper, milk and butter. He's had it twice today. Gosh I hope I...
Gosh 15 pounds on you would be alot. On my husband it seems a fair bit and he is big. I'll start including more calorie rich foods. He'll be happy about that! Still so worried about blockages so I've...
Hi Cubgirl, Thank you for your reply. He is on a low residue soft die (much to his dismay). The Dr. thought the last blockage was due to food, they did x-rays and it cleared within a day. I’ll keep...
Hi, My husband had a total colectomy with an end ileostomy 2 weeks ago for his ulcerative colitis. He is doing well, but had two blockages in his small intestine in the last week. One resulted in him...