Here's a site that you can search for different foods and find all the nutrients in them. There's a lot of items including raw foods, fast foods and packaged foods. A large number of nutrients are...
NCofT: Nice to hear you've had a reversal. I hope you can 'keep it all together' forever and not need another ileostomy....
Well, my experience doesn't qualify but maybe this guy can give you an idea about what life with an ileostomy is like: "Ulcerative Colitis in 1975 - Ileostomy Since Then" link:...
Hi notbob. I recently ran across a video that answer's your question and I'm sure it solves your problem also. I find the Vegan Ostomy channel on YouTube quite helpful and energizing so I check the...
Irma. After the hurricane because both arrived on the same day. Maybe naming after a volcano would have more suitable but, shape wise, a hurricane is a good match. She's a great gal and is giving me...
Hi Urthona. The same thing happens to me, usually for several days after the worst bleeding has been brought under control. Sometimes I stand up thinking I'm finished and happy to see no blood - but...
Lauren I hope you see some improvement soon. I agree that you might find a better doctor. Also, have your iron levels been checked? If you're bleeding you might be anemic. Weight loss in UC can be...
My doctor has prescribed the same regimen - both every day. When everything is going well, the suppository goes in after lunch and the enema when I go to bed. But getting things started when I'm...
Sorry about what you had to go through blksteeda. I had it easier (no packing needed). However, I am not out of the woods yet from what I understand. The only way that these things get totally...
When I'm not flaring I can have solid BMs that are painful as hell. Passing them is bad but the constipation leading up to the BM, which usually keeps me up all night, adds to it. When coming out of...
Hi KatAnimates. Unfortunately, your story sounds exactly like one I could tell about my recent abscess. What you are experiencing is exactly how they occur. It will grow and grow until it pops but it...
Imagine living in a country where you'd have to do without. http://www.theguardian.com/global-development/2015/nov/19/world-toilet-day-south-sudan-global-sanitation-wateraid This is a link to the...
Just to add that I've been troubled by watery diarrhea since coming down with a cold three weeks ago - sometimes with blood but mostly not. I'm currently being tested for C. diff. I've not taken any...
The Ab field is producing a lot of products but it's a long wait at the end of the pipeline. Those of us on Ab therapies can mark our calendars and do our best to hang on to our colons until the...
curcumin, 3g/day milk kefir, 200ml twice a day just starting SCD this week so the jury is out...
I drink kefir every day and it has improved my symptoms - decreased frequency and Bristol numbers. Kefir has one or more yeast strains in it and up to 50 bacterial strains. I don't think it would...
I have the same experience as warten, UCfishD, suffering succatash, talliecat, McCool and Carlie. Evil smelling gas a few days before serious symptoms of a flare appear. In fact, this smell is my 'Oh...
I'm in Europe as well and I never have been given a 'hat.' What I get a small plastic jar that would be impossible to 'catch' a sample in. Rather, I use saran wrap stretched over the ceramic bowel of...
CGK1998, Sorry to here you are getting hit so hard this time. My last flare had me thinking similar things, "I thought corticosteroids were supposed get things under control in three days...."...
I always go on a low-fiber diet during flares. I call it my white diet because a lot of things on it are white. I learned of this type of diet while in the hospital - they call it "super bland." The...
Coincidentally, I just spent two days worrying about the same thing but on the the upper left side. It 'moved on' this morning. I'd say a blockage like this could not be a good thing but no other...
Thanks for sharing your ideas and experience Canada Mark - I agree with everything you said. The SCD diet is part of my plan too. Here's where I'm at: I'm "in remission" with Humira as of a week ago...
Well, pb4, your disease is much more complicated than mine but there are similarities. I also have underlying IBS, I'm in 'remission' with Humira and have issues with frequency. I'm trying to address...
Taking all your Pred in the morning does mimic how the natural system works and that's the way I prefer to take it. That should keep Pred from disturbing your sleep. However, if *colitis* is...
I'm going to give it a go. I know that people have found SCD and Paleo helpful but IBD-AID seems the one I could most likely stick to. The diet was developed by the University of Massachusetts...
pmitra0123, We'll probably never see anything with a 90% remission rate. One thing that continues to shock me is the horrible numbers for UC treatments. It's even more shocking as you repeatedly...
Surgery comes with specific risks and each procedures is traumatic in itself. But when the time comes for me, it's adios old friend. So, I'm of the same mind as Tunnelvisonary, "I wouldn't hesitate...
platinumpixie, please keep us informed as to how things proceed. I did a course of IV ciprofloxacin and metronidazole in the hospital but they did not follow up with probiotics. I'm not sure the...
ElephantPipe, how do you feel? When my liver enzymes were climbing, I felt worse every day. It felt different than the normal colitis systemic effects. My max #s: ALP - 257 GGT - 558 AST - 165 ALT -...
For me, BMs with an absolutely horrible smell that persists for hours are one of the earliest signs that a flare is on its way. The 'Oh shit' moment, so to speak. I think it has to do with the...
I use Ugh Just Ugh's strategy when I'm on Pred but still having problems getting through the night. I split the dose 50:50 between mornings and afternoons (2 - 3 PM). This works well for me. Later,...
I imagine there are some academic types among us that would go for this sort of thing. Gut Check: Exploring your Microbiome is a free online course offered by University of Colorado via Coursera...
Like AZYooper, I was interested in finding out about my genetic predisposition for Alzheimer's and Parkinson's when I ordered the 23andMe kit. I too got my results before they stopped informing about...
Cavalier9 and garylouisville - I agree, it's quite a stretch to think that UC causes something specifically at the end of your fingers. Here's the quote from the Medscape page that says 15% of people...
Thanks iPoop. Well, I hope that it's not an indication that I'm developing Crohn's. I'll get my doctor's opinion next week when I have my blood numbers checked. I'll try to find where I saw that 15%...
Yesterday I realized that the odd shape of my right thumb was called clubbing. The rest of my fingertips feel strange too - like they have something similar developing. From my reading, about 10 –...
I can't help with the meds but going on a low-residue fiber diet definately eases the diarrhea. The basic idea is to eat foods that are mostly digested before they reach the colon. Therefore there is...
I'm celiac and hyperthyroid and I do think that for some of us these two are related somehow to colitis. There is some statistical support for this but no plausable links have been proposed....
I agree with StarGirl10 about keeping the pred at the same level while you're away. I would have had trouble flying home from London if I hadn't....
You're not alone Arbee_DC, I was diagnosed in May after my long smoldering colitis suddenly took over my life....