Hi, Lomotil is working great for me...especially if we travel. Hope everyone else is doing good...
I had problems before......
The gas problem for me is minor.... Have a good night...
Hi Hodaya, Please don't be afraid. You must choose a surgeon who is experienced in this condition. You do not want to be on anyones learning curve. Yes, in the beginning you may have frequent BMs but...
She needs to go to her GI man....she may need to take miralax or something like it...
As far as I know, it was all removed but about 4"....Has she given consideration that she may have slow transit in small intestins......Is she drinking enough fluids....eating enough food. She should...
Hi Kap, As far as I know,they took all my colon. But it is not unusual to leave a few inches of colon. What does her surgeon say about the infrequent BM's and pain. What about her diet....
Even when my husband went therefor bilateral kidney cancer,he spoke to the chair of the dept and he said he needed to speak to his urologist first before they could arrange for any care. That's how...
The referral was not part of the insurance requirement but that of CC.........
Hi KAP, I brought all my x-rays with me and that was good enough for them. The only thing that CC had to do was the defography as it was not available where I live. I had to make 2 trips out. One to...
Anytime you have any questions or what to share thoughts, you can e-mail me at [email protected] and mark the subject colectomy. Usually I watch the total colectomy site here....there is a...
HI KAP I had colectomy with ileo rectal anastamosis at the Cleveland ClinicinOhio in 6/2006. Dr Geisler was my surgeon. I can't praise the place enough. I was treatedextremely well.The surgeon was...
Hi Judy, I had my colectomy 6/06 and don't regret having had the surgery. Life is so much better now....Glad to hear you are doing well. Exhaustion was a biggie for me but hang in there that will get...
How is everyione doing?...
I am not exactly sure what Bentyl is. It is not a pain killer...I believe it is antispasmatic...
Hi Kim, I have never regretted having the surgery. With your friend...sometimes pain meds can be constipating....Has your friend tried Miralax to go...Did she have all of her colon removed?...
Hi Kim, Welcome to the site. Lot's of info here. Concerning your friend, I remember someone in past posts said they took Bentyl to help with the cramps.....She has to give her gut time to recover...
Hi Absbabs, If you do have frequent BM's when your ready to returm to work, You can ask the MD for Lomotil and this will slow you down. I was told that immodium works on the large intestine which...
I used a regular enema bag with warm water....Multiple ones...maybe 5 to 6 in one sitting )no0 pun intened) I was so sore and absolutely worn out after the seesion that maybe lasted 1.5 hours....I...
Hi Ladies, It's been a while since I have posted. Ih ad my surgery June of 2006 and never ever regretted my decision. I did go to the bathroom between 15-20X a day. However, since finding a great GI...
Hi Berbsnicole, Sorry to hear that your Mother has had to go through this big surgery. Perhaps after she is off the pain meds and is walking around her appetite will improve. Perhaps the doctor can...
Hi Mimi Ask the pharmacist about Lactulose or Zelnorm......pesonally they did not work for me but I had my condition for over 40 years...perhaps they will work for you Best regards...
Hi Mimi, I have no regrets having had the surgery. BM is bowel movement. I have to go to the washroom with 30 minutes of having a meal. Then it is about every 2 or 3 hours. I have never lost...
Hi Mimi, For me, I was desperate.. I had what was called pseudo-obstructions....I absolutely couldn't move my bowels and the Miralax and the lactulose were barely working. This is a very big...
Hi Mimi, I am so sorry to hear of you troubles. I had a total colectomy which they did laparscopically. I do not have a pouch (bag). You did not say where you live but perhaps there is a Medical...
Welcome to the site Stormy, Like Resa, I had a laparscopic total colectomy...ileorectal anastomosis. I was told by my surgeon at the Cleveland Clinic that he would NOT do a partial removal of the...
Hi Helensc, I have some advise for you concerning the weight. First of all, you can't eat one meal a day. /community/emoticons/nono.gif It is not good for your remaining intestines nor for your blood...
Hi Resa, The medicine I was taking was Rowasa. I tried both suspension enema and suppositories for proctitis and ulcers in the blind loop near anastomosis. The headaches I got were wicked. Once I...
Hi Felicia, You wouldn't be normal if you were not nervous. We all were. Questions to ask: Does he have a history of doing this surgery. You don't want to be on anyones learning curve. Will it be...
Hi Everyone Thanks for the concern. Spoke to GI on Thursday and he ordered suppository and the bleeding has stopped, the pain is still present. However, can not take suppositories anymore because I...
Hi Everyone, Wondering if someone out there has had the same experience...I am bleeding and have very bad pain in lower tract with burning. I was previously diagnosed with proctitis and ulcers in the...
Hi Angie, Welcome to the forum. I had a total colectomy 6/2006. No regrets. I went to Cleveland Clinic and the surgeon there would not perform a hemi colectomy as the majority of patients have to...
Resa, That's great you have lost so much weight. You go girl.....I am doing weight watchers and so far have lost 30 but need to lose about 40 more. One ounce at a time..... Happy Holidays to everyone...
Nana J, Can't help you with this one....my appetite is very robust. I guess it will depend on how you introduce new foods to your diet. Even if you are not hungry per se, you do need to eat your 3...
Hi Everyone and welcome to NanaJ The perianal ointment that helped me was calmoseptine. This is over the counter item. It has a very cooling effect. I did not do well with Tucks or witch haze....It...
Hi April, I am glad you are starting therapy. Please tell therapist about suicidal thoughts and cutting. Tell everything because that is the only way you can get help. I know you are having a very...
Hi Robin, Sorry to hear you have not been feeling well...please let us know what surgeon says......
Hi, Where is everyone? Hope all is well. Phyllis...
I'll look fabulous when I hit goal....The mirrow looks better ev ery day...My back and knees really do feel better..plus it has been a big boost mentally....Plus WW is just eating healthy and being...
Hi Lindsay, I would be interested in what surgeon says...I would like to know if the colon inertia is limited or is this a disease process that could spread to other sections of the digestive...
Hi Concerning the lazy small intestine. Preop, I had a sitz marker test and X-rays on day 1 showed all the markers in the large intestine and that is where they stayed for 8 days until I could take...
Hi Everyone Hope the post op people are doing well. I had surgery 6/2006. I was going 15-20X/day..Had sig and found proctitis, pouchitis and superficial ulcers. I am taking a medicated retention...
Hi Robin, Absolutely you should go to the GI doc. Blood is not something you fool with..Even if it turns out nothing serious...you can not ignore this... /community/emoticons/nono.gif ...
Welcome home, Irish Mom So glad to hear that all went well and that it was lap...that should improve recovery time. Just take it easy.....
Hi Robin, I can relate to what has happened to you. I also had bleeding and thought it was my hemorrhoids. I went to GI and he performed a flex sig. It showed proctitis, pouchitis of the blind...
Hi To all those having surgery this week...you will be in my thoughts and prayers.....Post as soon as you can...
Hi Linda, I had my TC 6/06 and go anywhere between 15- 20X/day...Yes it can be tiring but I am so grateful I am no longer constipated.... I was easily fatigued until they dx me with proctitis and...
Hi Lori You may want to take bran either from food or pills., This may help with the number of movements and may firm things up. It does take time to recuperate. Would your boss consider you...
Hi Jacklyn, I yoyally agree with you. I do go 15X a day and bless each pain free time. I had colectomy in 6/06 and don't regret making the decision......
Hi Resa, Thanks for the info...I tried the website and it came up "forbidden"...what a shame because that was an excellent source of information. The path report came back today from the flex sig and...