@ Hodaya: I am 24 and right now I am actually trying to get my high school graduation because I had to drop out of school when I was 17. But because of my extreme low weight I had to take a break. I...
Hi, I have dysmotility in all of my digestive system - stomach, small and large intestine. I haven´t had surgeries, have they helped you? I was told they only help if just your colon is involved. I...
@ Tam: I haven´t posted in a long, long time(it was probably in "Total Colectomy Part 13 or so...) but I have been reading everything. My story is very long and complicated, maybe you have read it. I...
Hi there, I am from Germany and I have dysmotilities everywhere in my digestive system, including the stomach (that means Gastroparesis). Most doctors will tell you that surgery is only successful in...
I am from Germany and have had general dysmotility in all of my gut for over 10 years ( I am 24 now). I haven´t had a colectomy, but you NEED to have ALL of your digestive system checked out before...
Hi carebear, I don´t know if you have read any of my postings in the colonic inertia thread, but I had anorexia when I was 12 and got dysmotility problems in all of my gut afterwards. I went from one...
Hi guys- just to let you know about the small intestine: If you still had markers from the test in your small intestine, this would mean that it´s WAY TOO SLOW!!! The average transit time of the...
Lindsay- I really hope that your appointment will go well. Regarding your weight and surgery- basically every doctor that I have met said that they would absolutely not erform surgery on anyone who...
Lindsay- do you not remember me? I am the one from the GP yahoo group! You have my private email address and emailed me a few times. Love, Andrea...
Lindsay- I wish I would find a doctor who is willing to do surgery on me!!! But they all just don´t get it...or they tell me that it would actually make things worse in my stomach and/or small...
Hi Lindsay- I am confused as well...EVERY doctor I have met says that general dysmotility is number one reason why you should NOT do surgery. But basically every person that I have asked or emailed...
Hello everybody /community/emoticons/smile.gif I just wanted to let you all know how glad I am to have found this forum. Even though I don´t know any of you personally, you are the most wonderful...
Hi everybody, I am just feeling like crap and it doesn´t get any better...yesterday I had to take a huge amount of MOM and Dulcolax again and no luck so far...I HATE taking laxatives because they...
Hello everyone! I have been on vacation for the past three weeks and am just catching up on all the posts...lots of action that´s going on here! Unfortunately, I am not feeling well at all. In fact,...
Shellypoo- I know Dr Abell very well! I have emailed him several times and you are right, he is one of the best doctors for motility disorders. Some people do very well with the pacer. It can help...
SHELLYPOO- I am so sorry to hear that you haven´t been feeling well at all. I can relate to you because I also have intestinal pseudo-obstruction, meaning there is no actual obstruction but your...
STUCK42LONG and SHELLYPOO: Thanks for your encouraging words /community/emoticons/smile.gif I know this surgery is a big procedure and you should be in very good physical shape when you get it done....
Hi guys, I am VERY frustrated, mad, angry, upset... I am almost too tired of writing, but I thought I need to vent! I saw a surgeon today, mostly because I have been feeling much worse the past few...
NONNA- If you have read my earlier posts, you will have noticed that the small intestine can have dysmotility as well, as in my case. In fact, every part of your digestive system can be slow. I have...
STUCK42LONG- You didn´tget it mixed up, I AM the one with a feedn tube. I put MOM through the tue, and Dulcolax I have to take by mouth( which is very hard for me, but what choice do I have?). I need...
ADVICESEEKER- I am happy and excited to hear that you made a decision. Good for you! Unfortunately I am not doing well at all. It seems like my intestines are totally giving up. Even taking 7-10...
Adviceseeker- I haven´t had surgery yet. As I mentioned before, I suffer from general dysmotility in the stomach, small and large intestine. I am completely dependent on tube feedings into my small...
Adviceseeker- I feel EXACTLY the same as you do! When I was able to have a BM( with tons of different laxatives), I usually feel a bit better and question if I really should have surgery. The other...
Adviceseeker- I think you joied the Colonic Inertia Yahoo group but that is a strange group...nobody is ever posting or replying. I am not really taking active part in this group anymore because of...
RESA- Thanks for the info. Actually, the founder of the yahoo group that I am also a menmber of, has had this transplant done in Pittsburgh! There are a few people who have had this. It has been a...
SHELLYPOO- I have done lots of research on the pacer. I am also member in a gastroparesis group on yahoo, and lots of people have the pacer there. Unfortunately, it only helps some people. It mostly...
Hi everybody! I had an appointment with a new motility doc(not a surgeon but a gastroenterologist). He looked at all the tests and things that have been done to me and said that unfortunately, there...
ADVICESEEKER - I am in a very similar situation as you are. On one hand, I really want this surgery because I know I cannot go on like this forever, but on the other hand I am terrified of it. I am...
Tyblossom: Thanks for suggesting a doctor - the only problem is that I am from Germany! I am living in Berlin. I have actually thought about going to the States and seeing a doc there as the doctors...
STUCK42LONG: I knew you didn´t mean to say that I was anorexic. Some doctors have said that the dysmotility problems of my stomach and intestines are caused by the eating disorder I had. A few others...
Jillibean & Stuck42Long : I do have a malfunctioning colon. As I wrote before, my sitz marker test showed that my colon transit time is above 150 hours. I actually remember the markers coming out...
Thanks to all your replys. I know I need to be in a better position to get surgery. I am trying my best ut for some reason, I am just not gaining weight. I get a lot of calories through my feeding...
Stuck42LONG: Thank you for your answer. Yes, even if I had someone wanting to do surgery on me, I would definetely want to gain strength and weight first. I am very frustrated and helpless though,...
Hi everybody, I am new to this forum and don´t know if I am doing everything right so please let me know! I am a 22 year old girl from Germany and have suffered from total enteral...