Ah Crud! I was up until 2am this morning reading and then I posted a long post to everyone individually...and my post did not come through! Now I am to exhausted to type everything up again! Please...
Lizzy - Thank you for the update on Jen. Poor Jen. Jenise - I emailed you photos of Lizzy's email. She sent them to me last night. You will be astonished!...
Jenise - Miralax is osmotic and it pulls water into your gut. You may find that you are urinating less because a lot of your fluids are being absorbed into your stools. I hope you all had a great...
Hello Everyone...I feel like there is a post party going on and I am missing out. I just do not have time to read and play catch-up...GRRRR!! I have been so busy caring for my father-in-law -...
Paste and Eakin Seals worked for me. I leaked a lot! I smooshed the Eakin so it was nice and flat. Then put a thin layer of paste on top. I found the Convatec paste to work the best for me....
Jen - woo hoo on the weight gain! I am gald you can keep food down, even if it's small meals. As far as the back pain, I did not have it at all with this surgery. However, it was the main source of...
Janie - Thank you for your suggestions. Hospice will be here Sunday to evaluate the situation. I spoke with my FIL's cancer doctor today. The doctor is not sure my FIL will make it to Christmas. He...
Don't feel like myself today. So sad. There is no other word to describe it...just sad!...
As many of you know, I care for my father-in-law who is in recovery from pancreatic cancer and I aid my mother-in-law with her Alzheimer's disease. My husband and I bought and new home several months...
Hodaya - I'm amazed that you can go just by eatting a candy bar. Is the bar sugar-free? As long as it is working for you, stick with it! Any excuse to eat chocolate is a good excuse! Jenise - Yippie,...
Clicky - Wow, you are struggling more than most. After reading your comments, if I were you, I would opt for a bag. I was 34 when I got my bag and it saved my life. Having a bag has it's own...
Jenise - One thing to consider, MOM is concentrated saline (aka: SALT). It burns, burns, burns your bum. It is like pouring alcohol on a wound. OUCH. The Miralax does not burn. Once you get the MOM...
Woo Hoo!! It's a Poop Party!!! Jenise, I've been refreshing this site every 30 mintues just waiting to hear that you FINALLY POOPED! YIPPIE! YAHOO!! I'm dancing the jig for you! I am so glad the...
Jenise - I forgot to mention that I was using enemas in the beginning to relieve the pressure. Jose told me to buy an enema and pour out the liquid, then fill the bottle with warm tap water. I still...
Rosemary, I agree. Jenise - A warm water enema might feel like heaven and it would decrease the pressure. Can you call your nurse into your room and ask her to call the dr and ask about an enema....
Jenise - In the beginning, the pressure never decreased which is why I was sleeping on the toliet when I first started to go. I always felt like something was there. Even now I have pressure a lot....
Jenise - I had tons of pressure. It was extremely intense. Try not to stress over it. Stress plays a huge factor in your recovery. Try to relax and allow you body to work naturally. Too many times we...
When I had a bag, at least once a week while sleeping my bag would leak all over my bed. My hubby and I used to call the cleaning of the sheets, mattress, and, comforter, our "Date Night." Because we...
Have I been nice this year??? I guess that depends on who you ask. For Christmas this year our goal is to experience the spirit of Christmas. We are not going to buy any gifts. We are either doing a...
Lizzy - WHAT THE HECK???? How can they send you home like vomitting? Is there another hospital you can go to? My father-in-law has pancreatic cancer and has been suffering with some very serious...
Jenise - I am not sure the Dr's care about our stay as much as the insurance companies. The insurance companies want patients out as soon as possible. The require dr's to follow standards that they...
Lizzy - So sorry darlin'. I'm glad you're going back to the ER....
I only have a few minutes but I wanted to check on a few of you who have been on my mind lately. Hodaya - Alcohol sugars, like any laxative, are depleting. They pull electrolytes and salt into your...
Jen - Your right, the cramps after eat are bad. Your poor stomach and intestines are trying to heal and yet we are forcing them to work when we eat. I had forgotten how bad they were until I read...
Jenise - hang in there. It took 3 days of walking to get my bowels to move a bit. Then my bms were bloody...which is normal. There's blood in your intestines from the surgery so don't freak out. I am...
Sheesh! I spent an hour the other night reading and playing catch-up. Then I spent another 1/2 posting and it never came through...GRRR! I am not sure what happened to my post. Hodaya - Alcohol...
Lizzy - did you go to the ER? Please send me an update. I will look for you on FB later. Poor Jen has to stay in the hospital for longer than expected. Poor thing! She is so unhappy. As for...
POOR JEN! She announced on facebook tonight that she is back in the hospital. I am not sure of the circumstances. Hopefully, she will be able to update us soon. If I get more details, I will let you...
I have CI and it is hard to say what the answer is without a viable cure. Many patients have had a total or subtotal colectomy due to CI and the results vary depending on the patient. It is my...
Rosemary - just an update. I drank and drank and drank yesterday. I had several drops of pee (which was an improvement) but I gained 8 pounds! GRRR! I woke up at 3am and decided to go on the scale...
Jen - be careful. You might want to consider taking pain medication. Also, it may help you sleep so your body can focus on rest and healing. Remind me, what was your surgery date? What exactly did...
Rosemary - thanks for your comments. To answer your previous question, I normally drink between 100-130 ounces of water a day. Since my reversal, I have been drinking less b/c I exercise less while...
Hi everyone - I am ghosting and reading trying to play catch-up. Things are ok. I still have bad butt burn and teaching cycling classes is not fun at the moment. I have been struggling a lot with an...
HAPPY, HAPPY, HAPPY THANKSGIVING! Tomorrow is going to be crazy! I have to start cooking at 5:00a.m. I doubt I am going to have time to pop in here and read your posts. So, I wanted to make sure I...
Trigirl - I love the way Cymed products feel b/c I need something low profile while I teach spinning. Unfortunately for me, they leaked after 3-4 hours. If I could have gotten themn to last 2 days or...
MESSAGE FROM JEN: I am still in the hospital recovering from the emergency surgery last Tuesday. Have been real sick but today seems to be a turning point. Ate some solids and cramping is at a...
Booty Update: Doing better today. I didn't eat much to give my backside a rest. Lizzy - Thank you for being proactive and getting in touch with Jen. I feel awful that she is going through such...
Rosemary - It passes very often. My small intestines does not pull in water so the little bits of grapefruit are dry and cause lots and lots of irritation. I only have 1/2 a rectum and as soon as I...
Stacey - My symptoms stated when I was about 12 and now I am 35. I had a sub-total colectomy when I was 24. It improved my bowel habits quite a bit. Like you, no laxatives would work for me prior to...
Judy - I am hanging my head in shame. Today I was tempted and I broke....I ate 1/2 of a pink grapefruit. It was so good. I felt like Eve in the Garden of Eden so tempted to eat the forbidden fruit,...
Connie - I had a sub-total colectomy in 2001. They left about 6-8 inches of my colon which connected to my rectum. For years I believed that this remaining portion of my colon was causing...
Hi everyone! My surgery date is coming up quick (Nov. 23, sigmoid colostomy) and I have a few questions for all of you amazing people who have been through this....here goes... 1. What kind of...
I wish I could sit at my computer long enough to read all of your posts in detail, but my butt is sore! I went to the gym this morning and the instructor was ill. So, I offered to teach. My legs,...
Has your dr seen this? My stomach would get distended but it would pass when my stools would move through. I had to drink prune juice to get them to move....
Lizzy - I have 3 types of poop - watery, skinny (worm-like), and solids (pc. of apples or lettuce). It's 4pm and I have not had a BM today. This is normal for me. Normally I have small pea size poops...
Did anyone respond to this? I hope someone can benefit from your offer....
www.ostomysecrets.com - Also, I went to Walmart and bought the tight fitting under garment that flattens the stomach area. Then I cut a small hole in it for my stoma area as to not block the stoma....
Jen - I am glad your surgeon is taking your changes seriously. Please keep me posted after you see him tomorrow. I hope you do not have a complication. I am glad something is moving through -...
Hello Healingwell Family – I am still alive and doing well. My reversal recovery is moving forward and I am learning something new about[b] my body all the time. Last week was a tough week. I ate a...
I only have a moment and that is not enough time to read all of the previous posts...so, I just thought I would chime in and let you all know I am thinking of you...when I have more time I will catch...