I did have one in 2013, about five years after the last surgery and the Dr found no inflammation....
My only regret is waiting as long as I did to have the surgery. I started out with a temp. Ileostomy to try and let my lower GI tract heal, but by the time I had that first surgery, the damage was...
I used to come on this site often before and after my total proctocolectomy. That was around 2006 - 2009. I have been completely symptom free since having my entire Colin/rectum/anus removed with a...
PB4: Although the rectum may be 'easy to treat' for some, it isn't for everyone. My rectum was completely destroyed by fistulas despite constant treatment. I eventually had to have the entire colon,...
i filled it out as well....
I too had a NG tube. I had mine for around 5 days, about 1 week after getting back from the hospital. The NG tube was a total nightmare, but I made it through! Glad to be done with that and ever...
Hello everyone, its been quite a while since I visited this site. I had a total procto-colectomy back in November 2008. Ever since my life has been great. The recovery was pretty long considering I...
It hurts a lot less than the symptoms they prescribe it to alleviate do....
Zena Warrior Princess please let everyone know what you find out... - Nat :turn: :turn:...
Well then, I guess that's at least two of us that can appreciate a pharmaceutical company then!...
I received an email today from Abbott Labs, they have introduced a new component to their Humira Patient Assistance Program to help people who have insurance, but still have a large copay. check it...
Trad: Many people have Crohn's isolated to their colon/rectal/anal area. PB4.... I had a total proctocolectomy (they took out the colon, rectum, and anus). Now, there is some chance that I will get...
I also had some hemoglobin issues after my surgery, but everything eventually resolved on its own. I hope things work out for you....
Sherry Ann. Flagyl actually helped me as much as Remicade, Humira, or anything else I tried. Fistulas = the worst part of this disease...
Navy.... Sorry to hear about your down and out condition these days. Not sure if it helps, but I remember feeling completely beaten down by this disease, for months on end before my last surgery....
sammies... I was fortunate in that I haven't had much of any disease activity in my small bowel. I did have to go back to the hospital about a week after being discharged. I had developed a lot of...
i have had that happen more than once... Tony, cool story..I have had my bag make some noise during a poker game at a casino....right at the moment when the entire table is silent and waiting for me...
I think you should try a different brand of pouch.... try one with a bigger ring of "Bees' Wax" on the part that goes around the stoma....it may last longer. When I have leakage problems, it is...
It's often said that California is a seductress, once you move here you never leave her for good. Good luck with your new job.... :0)...
Pibbin.... Yes, Dr. Targan is great. I am not sure if he accepts many new patients, but he sure does know his stuff. And his staff are all so nice and professional. My surgeon was Dr. Eiman...
San's see my post from today, titled "the times they are a changing" I had my rectum taken out, along with my entire colon and anus....I think it may have been the best decision of my life. The...
turn turn turn smilewinkgrin smilewinkgrin smilewinkgrin tongue tongue yeah yeah scool scool blush blush cool cool Hi everyone! Well, I have had Crohn's disease for about 16 years now. I think I was...
:turn: :turn: :turn: :smilewinkgrin: :smilewinkgrin: :smilewinkgrin: :tongue: :tongue: :yeah: :yeah: :scool: :scool: :blush: :blush: :cool: :cool: Hi everyone! Well, I have had Crohn's disease for...
I did have a fistula that led to somewhere along my urinary tract. The doctors could not locate exactly where it connected, even after lots of x-rays with contrast, and scopes of the worst...
Bummer of a story....I have had an accident like that on a date before, but fortunately it was with my girlfriend of five years, so she was more than understanding. In your case, I hope the treatment...
:turn: :turn: :turn: :turn:...
Thanks Cecilia OHIO and Chassity! still in California for now....good thing, I wouldn't want to be that far from my family just yet....but Vegas is still a distinct possibility for the future....
Hi everyone, I haven't been on the board in months, but I wanted to say I have recovered from my surgery back in Nov. They removed my entire colon, and made my ileostomy permanent. I no longer have a...
Hi everyone, I haven't been on the board in months, but I wanted to say I had surgery back in Nov. to remove my entire colon, and make my ileostomy permanent. The healing process was not simple, and...
thanks again everyone!...
Go Red Sox! Go Dodgers! Red Sox v. Dodgers for World Series 2008!!!!!!!!!!!!!!!!!!!!...
thank you so much ladies!!!...
i agree, while I know you have both been on this board a while, Slice and Vette guy, but perserverance6666 is trying to talk about this stuff openly here....let's not joke about it anymore......
Hi folks..... I really can't find any horror stories from people who had the total proctocolectomy, and trust me, I have looked really hard. Most people have really raved about how wonderful things...
three hours, huh? now that a pretty long intimate moment!!!! haha.......
i have been in the hot tub many times...and can't remember a problem.... to be safe, whenever you go in the water, make sure you have a spare flange and pouch nearby, and then enjoy yourself........
I wouldn't do it, one day = useless study, we all know that one day is not a good indication of a life with this problem... but, then again, maybe it could help some others understand our...
i get all kinds of leakage drainage coming out, not just at night, but all day...
I say everyone here votes for Obama!!!!!!!!!!!!!!!!!!! lets all get the health care we need.......
HI Amanda! Well, I can surely relate to your feelings, but I have to admit that I think I have gotten past worrying about what everyone thinks...the way I did it is to tell people in detail what the...
in a suburb just outside of Floss Angeles, CA!...
"he is able who thinks he is able" - Buddha. take the above advice and then get out of your house! you will be amazed after you get home how worried you were about nothing...once you make it a few...
well, in my case, my rear has not healed enough....so no reversal for me, I finally met with the surgeon again and am waiting to hear the date for my total proctocolectomy.....I am actually excited!!!...
i am hear for the moment....and they are hanging to the left!...
looks like this was already posted, sorry folks......
oops....i saw that you already got a negative test result, just stay vigilant...and enjoy the time off work, if you can afford it......
see the news story i just posted, get the antifungal treatments you need now, and see if you might need to get off some of your meds.......
another technique i use to deal with the nasty....a couple pantiliners in my underwear...and I am a guy! i agree, for problems like fistulas, there is no support system better than this site!!!! i...
CNN.com just posted a news story, along with several other news agencies about the dangers of HUmira and other Arthritis/crohn's drugs in the class...just what I needed to hear.....at least it...
well, jen, it's not like I would have no money, just some less money for a while, and I am on a thin budget.... good thing I won my poker game last night....hehe...guilty pleasure.. I am in much...