Hi, I'll start by saying that I'm not looking for medical advice - - just input on how to manage this based on anyone else's similar experience. I have an ileostomy (16 years) and had a proctectomy...
I'm going on a 7 day cruise to Alaska and will be going on some side trips at each port and may not have easy access to a bathroom. I have an ileostomy and empty my pouch at least every 2 hours at...
Katie - thank you for the recommendations. It's definitely sucky. I feel pretty lucky that this is the first time in 13 years....
I have an ileostomy and have had the stomach flu for 4 days. Continuous runs, fatigue, etc. Went to the Dr today and was treated for dehydration with IV fluids. Although the diarrhea has slowed a...
Hi Ladies, This is a sensitive topic/question but don't know where else to ask. I've just had intercourse for the first time since my proctectomy in January. It was ok during, but now - afterwards...
Hi Eva, I've felt better - that's for sure :-). I don't have any drainage, and not really pain - just extreme discomfort. My surgeon ordered a CT scan to see if maybe there's some fluid in the...
It's me again and I'm just about pulling my hair out. I'm 3 1/2 months post-proctectomy and have been feeling nauseous with lots of pressure in my bottom. The wound is healed and there's no drainage,...
Yeah - the last thing I need is an infection there :-). Good idea about the Vitamin E. I'll try that....
Mine is also sewn shut and is getting more dry as it heals. My sutures have already dissolved so it's all good in that respect. I just notice a little tugging when I'm sitting and trying to get...
Hi Sue - Thanks for the suggestion. I bought a tube of Calmoseptine this morning and tried it out. The menthol in it was pretty uncomfortable so I'm not sure if I'll use it again. Did that bother you...
Hi, I had a proctectomy in January and am looking for an ointment that will help my perineal area not be so dry. Any suggestions? Thank you....
Has anyone used the ROHO Mosaic Cushion after their proctectomy? I've been using the Kabooti (?) one but it hasn't been helping a whole lot lately....
Poucher - I really appreciate you sharing how things went for you and your suggestions...as well as the smiles your post gave me. You're pretty tough to only use Tylenol...that's what I'm striving...
My apology for the confusion. I had a colectomy in 2003 and have a permanent ileostomy. My rectum wasn't removed at that point. Since my rectum was still there, the tissue was inflamed - proctitis...
Hi, Its me again now 8 weeks post op. Still having enough pain that I take the pain meds every day. Generally now taking one 5mg percocet alternating with ibuprofen. Then 2 at night. Pain Level of...
Hi, No wound vac - just healing on it's own. My surgeon said everything looks good and is healing well I guess I'm just frustrated that it's taking longer than I want. I've been told I'm kind of...
Hi, I tend to be a little wordy but will try to be brief here. I'm now 6 weeks post-proctectomy and it's healing very well. I was doing great with being able to sit longer periods of time, with...
Hi, I'm 6 days post op a proctectomy and parastomal hernia repair. came home yesterday. last night i was having trouble peeing; it would take approx 15 mins and only a little would come out. same...
Ok - those are the things that I have stocked up on as well. Great minds think alike :-). I thought about the raised toilet seat today; I had one with my last surgery and it was a great help. Thank...
Thank you all so much - sharing your experiences makes me feel more confident. Do any of you have recommendations for things I should have at home, when I'm discharged from the hospital? I bought a...
Hi and Happy New Year! I'm really glad to hear that you had a positive experience. I'm hoping that mine will be as well. Was it difficult for you to sit? I've heard that it is for about the first 3...
Hi, I'm scheduled for a proctocolectomy on Jan 16 (along with a parastomal hernia repair). I can't quite get a good "picture" of what to expect from the proctocolectomy - and literally what it will...
Thanks for your kind note. As nervous as I am about having to do 2 surgeries in 1, I think I'd rather have the hernia repaired now before it gets to be a big problem. It does affect the ability for...
So now in addition to everything else - I had a CT scan today which shows a parastomal hernia of about 10 cm. Dang! Seeing my surgeon on Monday to discuss. Needless to say I'm just a little more...
Hi, I've posted a few times with questions about my upcoming proctectomy (thank you Hodaya and others for sharing your experience), and just thought of another one. My sister will be staying with me...
I can't wait to be able to squeeze my butt and having nothing come out when I relax the muscles! That's soooo annoying. Surgery scheduled in December. I decided to jog today with my dog and 10 steps...
Hodaya, I'm super glad to hear that you're doing well, and that your pain has subsided. I've learned a lot through your posts, which I'm very thankful for. I've actually been using a squirt bottle...
Hi Hodaya, Just want to say hi and hope that you're doing well. I'm sure it's nice to be home recovering. :-) Would love to hear how it's going. Dianna...
So glad to hear that it's not as bad as you anticipated. I set my surgery date for 12/12 (my choice - best time for being off work). Were they able to do yours laparoscopically?...
Hi! I've been thinking about you all week, sending good thoughts your way. I'm glad to hear things are going well. Hugs to you...talk with you soon, Dianna...
2b and Musicmaker - nothing is TMI. I appreciate your openness - that's exactly what I'm looking for. 2b - I haven't actually seen the surgeon yet, not until 8/28. I started a new job at a University...
Hi 2b - I know your surgery is still a week or so away but I'm sending healthy thoughts your way. I'd love to keep in touch and see how you're doing; I imagine that I'll be in your "shoes" in a few...
This is very helpful! Your case sounds similar to mine. I'm really not sure how much of my sigmoid colon is left, but am having a sigmoidoscopy next week and should know then. I've been having...
Hi, I'm new here and have some questions about the surgery to remove my rectum. I had a colectomy in 2003 and have an ileostomy. I have no plans for a J-pouch and have continued to have problems with...
Thanks Alison....