Have any of you drank a Kefir probiotic shake while having an ileostomy? I want to try it (my husband loves it) but am wondering if the probiotics would be good or bad for me. Curious on your...
Suebear - You are absolutely right. The difference I feel already is absolutely amazing. I knew I would feel better but honestly, this is unbelievable. I guess I didn't realize how bad I actually...
Hi all! It has indeed been a long time since I've written. To make a long story short, I had my first surgery toward a j-pouch last Tuesday, October 19. I feel fantastic (I already see a huge...
Well, I started the Sulfa today. We'll see! Keeping my fingers crossed....
I am a female, too, but I am going to comment anyway! You know what I have always found to be sexy and attractive to men? A strong woman with a strong mind - someone who knows what she wants and...
Thanks for your help! My surgical consult is scheduled for August 2nd, so I am going to give this Sulfa a try while I wait and while I taper off the Prednisone since it is no longer helping. Keeping...
This is SO HELPFUL. Thank you!!!...
Giving it a last ditch effort while going through the Remicade pre-approval and testing process and while simultaneously having a surgical consult for a j-pouch (trying to make a decision between...
I am so blessed. My husband is amazing. He supports whatever direction I need to take for my disease - Remicade or surgery. He is my best friend, and the only one that I can really talk to about my...
My approach has always been that I do what I need to do. I have personal and professional commitments that mean a lot to me. Unless I am unable to get out of bed (which has never happened), I'm doing...
My concern with the Remicade is that it is only a temporary solution and that I will end up having surgery anyway. So, really, why not just have it now?...
Thanks, Sue. That is exactly the approach I am planning to take - Remicade while having a surgical consult. I appreciate the validation!...
A quick update on my situation: - 5-ASA meds have stopped working for me. Did take Asacol for 6 1/2 years, but it is no longer working, so I am weaning off of it. - 6-mp did work for me (provided...
I used Rowasa throughout my entire pregnancy without any problems. I used Asacol as well, but as you said, it wasn't reaching the lower end... where most of my troubles are. Do your OB and GI work...
I get a flu shot every year. This year, I also got the H1N1 shot. My immune system is suppressed with the Prednisone and 6mp. For me, not getting the shot is not an option. Next year, I will also get...
Congratulations! Just curious who your CC surgeon is. My GI is there and I have consulted with a surgeon there....
The below conversation takes place between my mother and I at least once per month when I am in a flare: Mom: How are you feeling? You haven't said anything about it lately. Me: Lousy. Lots of pain...
MyUC - Yes, that is exactly what my GI said. Taking me off for now mainly because of the WBC count. Once that comes back up, we will try a 50 mg dose of 6 mp with even closer supervision. If that...
Old Hat! I'm so impressed you remembered me! My son is great... 2 years old now and tons of fun. Definitely keeps me busy! MyUC - My WBC is 1.48 and by liver enzymes are 48/41....
I've been taking 6 mp since October 2009. I was on 50 mg from October-December, then went up to 100 mg in January and have been on that ever since. I can't say that I feel ill... other than I am...
I always use Colyte. Yes, it is A LOT of liquid!...
I just read my actual report, and my white blood cell count is LOWER, not higher. The nurse said higher before she put me through to the Dr. but that was obviously incorrect. Sorry about that. My WBC...
OK... so I have been in the midst of a very stubborn flare since August 2009. I have been on 100 mg of 6 mp since January and it is working for me. I am now in remission (finally!). I have felt...
No, Entocort oral (3 pills per day) in addition to the Prednisone oral. I did use Rowasa PRN during my remission. When I sensed rectal inflammation, I would start it. It kept it at bay. Then, it...
My GI is suggesting I move from Asacol to 6-MP. I have done a ton (and I do mean A TON) of research and am concerned about the risks. Has anyone had any positive experiences with 6-MP? Did it put you...
Hi all! It's been a very long time since I last posted. To catch everyone up, my son is now 18 months old (and so, SO much fun!), and I was in remission until 2 months ago. Hence, my lack of posting...
I had a c-section a little over 6 months ago and did have to stop my Asacol. I was supposed to stop it beforehand, but my son unexpectedly arrived several weeks early, so I wasn't able to. I did...
FANTASTIC NEWS!! I am so happy for Bratcat (and for you, too, Bennie, now that she can get back to helping out around the house!0....
The only problem I see with this is that I usually have my morning BM around 10:00 or so, while I am at work! Ahhh... if only I could lay down on the floor of my office for 45 minutes each day. If I...
I am glad to hear that everything is going well. Compared to how my two friends with j-pouches have described their recoveries, it sounds like she is right on track. They have both said that it took...
I have been thinking of you guys....
I am not sleepy all day from the mild sedation....
I would never do a colonoscopy without any sedation. You won't be able to completely relax enough, and it will be painful. You could also get hurt. If you are not relaxed enough and jump or startle...
I eat corn ALL THE TIME. It is definitely my favorite veggie, and I don't seem to have any problems digesting it. If my husband is traveling for work, and I am on my own for dinner, I have been known...
Everyone recovers and recuperates differently, but I think going back to work on Monday is a stretch. My husband was off work for 2 weeks. Sometimes he will milk an illness for all it's worth, but I...
My husband had his tonsils and adenoids out (and a deviated septum fixed at the same time!) four years ago. He was 33 years old. He was in pretty bad pain for about 7 days, but it was nothing that...
I forgot to add... the company we deal with is New York Life....
We have life insurance but after the birth of our son six months ago, we decided to purchase more. I was approved for an increased whole life policy, even with my UC. I didn't get the top-level...
Tressa - This is the exact dose of both medications that I take when I am flaring. I remain on 12 Asacol per day when in remission but eliminate the Rowasa. So, I don't think your dosage is too high....
Pred always kicks in within a few days for me as well. Although, I will say that it seems to take a bit longer with each round....
I actually have the complete opposite issue. When I am flaring, I have very few BMs in the morning. They seem to really get going in the late afternoon/early evening - after lunch, basically. I...
I am 36 now and was diagnosed at age 31....
I, too, suggest that you get it checked out. It could be something serious... or it could be something so basic as you have a foreign object in it. One time, I had this pain in my eye for several...
It sounds like a flare to me. While I don't have any experience with your heart medications, I would make sure your GI is working with your cardiologist to get all of that figured out. Are they...
Bellski - Old Hat's article is indeed great, and I am certain it will help you and your husband to make the best decision for you. I still wanted to throw in my own two cents, though... My own...
Beth is right... and I would simply add that everyone is different. It is really just about figuring out what works for you. For me, I can't handle wine. It is actually the only food/beverage that...
Good news, Beth! Are you still going through with the consult for your surgery? Or did you already have it? (Sorry... I'm losing track...)...
I get a noisy stomach, too, from time-to-time... even when in remission. If it continues for more than a few days in a row, though, I usually find it to be the first sign of a flare coming....
The pills. I hate taking pills. I do it... but I hate the act of swallowing pills. It creeps me out (I know... I'm weird.)...
I am the same as bellski - breakfast, lunch, and dinner....