Can anyone elaborate about DBS? Experiences, efficacy, risks? Also more re. Sinemet experiences? I am feeling very uncomfortable and am thinking about taking it, after having put it off for a while....
Hello Jen, Regarding Azilect: I was on it for a short time and had heard a lot of good things about it as well. Unfortunately I seem to have bad side effects from all the PD specific meds I've taken....
Thanks Linx. I am indeed fortunate to have a supportive wife & friends. As I said, I was just feeling overwhelmed yesterday. In more of an accepting mood today. Good luck w/ Georgia plans - and I do...
I currently live in upstate NY and my family & I are planning to move south this summer (to VA) where the winters are not so loong and intense. I suppose I'm feeling somewhat useless and sorry for...
Typing and using the mouse is a challenge, coachlu - my right hand is really uncoordinated. The Q-10 study is ongoing. Apparently there were some positive but inconclusive results in smaller studies...
Hey coachlu, I was started on Mirapex initially, but it made me feel queasy all the time. We then tried Azilect and I developed rashes in addition to the stomach issue. BTW neither seemed to...
Hi all, about a year ago I purchased a CD online from "Health Journeys" entitled "A Meditation to Help With Parkinson's Disease". I have a small CD player on my end table, and I play this CD low when...
Hi Goofy, When I was first dx'd I was numb. It didn't seem real to me (despite the tremor in my right hand!). I thought, "It must be something else" (read, denial). Went for a slew of tests, got a...
And also cv, I do not attend any support group. I live pretty deep in the sticks and would have to drive an hour to get to one....
Hi clover ann, I have also had problems w/ meds (especially Azilect): rashes, nausea, anxiety, apathy (you name it) - but no dyskinesia. I have been resistant to taking Sinemet so far for fear of TD....
Hi clover ann - Your early symptoms sound a lot like mine, i.e. right hand tremor - now to my right leg. I was dx'd @ 53 - almost 56 now. Also new at this online talking. I'm finding it too be a...
Definitely apply for disability. I applied as soon as I couldn't work & was approved in 4 months w/ retroactive $. He's probably too old to change IRA to a Roth; I don't think it would pay. If he...
Hello All, I had major dental surgery some months back and was prescribed a narcotic painkiller. Amazingly, I noticed that my PD symptoms were greatly diminished during this spell. Has anyone else...
yekkimo, I'm assuming Sinemet is the next stop on this train. I was on Azilect for a short period, but had nasty side-effects, including red spots (petechiae) on my extremities. I am also somewhat...
Many thanx, Linx. I also live in upstate NY and have trouble dealing w/ the winter weather and getting outside (In fact, my neurologist is located in Rochester). Never used to mind the winter that...
Hello All, I'm new, 55yrsold, diagnosed 2 yrs ago. Have a lot of difficulty w/ fatigue and depression. Currently on Mirapex & Effexor - neither of which seem to be doing much. Wondering how others...