We are at a point of having to make a major decision on which disease my guy choose to die from,not to say he wont die from something else beside the PC Cancer or PSP diease.My husband PSA is 299 and...
My husband has another life altering disease so when he finished the one year of HT and he was 0.01 undetectable .We decide not to do PSA testing for over 2 years.We had it done and the PSA came back...
Thank you Beth We are going to see the neurologist first. We had talk to our oncologist when he was first diagnosed with PSP and at that time it was to do nothing for the PC but at that point his...
Dose anyone have a PSA of 22 (there abouts)and if so what treatment are you doing? Thanks Deidre...
Hello All Been a while due to that fact my guy has another illness called PSP and the out come from it is pretty crappy.We stop doing testing a few years ago when it 0.01 which was great after being...
I would like to add that Neil was diagnosed with Parkinson's first. I do hope this information may help ,even if its one person to get a early diagnoses because this progresses very fast. Stay well...
Hello all I'm going to try and get the word out for Prostate cancer to anyone who will listen and also about all the support that Heallingwell.com has given myself and my husband over the years.My...
http://neilsbucketlist.blogspot.com/2013/10/a-helluva-ride.html Neil's Bucket List In 2013 Neil was diagnosed with Progressive Supranuclear Palsy (PSP). Before the disease robs him of all mobility,...
Maybe take a look at this. Progressive supranuclear palsy (PSP) is a neurodegenerative brain disease that has no known cause, treatment or cure. It affects nerve cells that control walking, balance,...
Thanks for your reply He is still getting his PSA tested every 3 month . Aug PSA test still 0.01 Stay Well Dee...
My husband had his last HT shot in June,My question is how long before it leave his body. Thanks for reading Dee...
Hi just a little info on my husband diagnosis. Progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and multiple system atrophy (MSA), are little-known but disabling brain diseases,...
They say it hard to keep a good man and I guess its true ,Good news Deidre...
Thank you David . You have a large plate full yourself.I sure hope you catch a break soon and that you will get the help to living a pain free life soon. Deidre...
Hello All Its been a while ,Hubby PSA continues to be 0.01 and that is at 9 month of HT .The Doc said he can take a break in September if it stays the same.Which is great because now more than ever...
Hello All As I posted before the Dr has said to take my husband off all meds. My husband was on Mirapex and did nothing for him and is now on is on Levodopa Carbidopa(Sinemet) 100/25,2 pills 4 times...
Lizzy Yes he has been diagnosis with it being a more advanced form of PD.The info on his cancer was just that.Maybe a little venting.The doctor he has seen is pretty much the top PD Dr in BC.He had...
Well its been awhile since I posted,My husband and I went to see the Dr in the Parkinson center which is 8 hours away.My husband was on Mirapex and did nothing for him and is now on is on Levodopa...
Hi thereNot sure if this will help,maybe worth a read. www.hrpca.org/myers425.htm . DrCharles Myers.Other will chime in Deidre [tr ][td width="100%"] ...
Congratulations! /community/emoticons/smile.gif Its a good thing.....
You all make me smile .. Thanks everyone...
After 2 month HT treatment the test results PSA Sept /12 10.3 and now NOV/12 0.01 Testosterone Sept/12 10.30 and now Nov/12 0.4. I do believe that this is the best we could of ask for Thanks for...
# 1.54 at dx#2.Parents -22&24...
It has taken my husband years to read anything on this site.This helps a lot .We needed a good laugh,very much enjoyed reading . You guys rock Thanks Deidre...
Hi All Update on my hubby’s Oncologist visit,We talk to two Two Oncologist and they both said they feel his cancer is aggressive and that its time to start HT treatment and to test his PSA every 3...
Thanks to all ,only time will tell and please know your words mean a lot to us.Its just nice to know your are not alone in this ugly fight.Thanks Deidre...
Hello All We are about to go in uncharted waters. My Husband PSA has reach 10.3 He went from 3.20 in March 2012 to 10.3 August 2012. A fairly big jump. I was really hoping to catch a break for a...
Mary I have been watching for you and hoping it would be good news ,Please know that we are praying for Willie tonight, and for you as well... Take Care Deidre and Neil...
Hello To All Husband had his surgery in 2006, radiation after that. PSA number are still going up.He was doing not to bad until last few months,but as of late it is bit more then dribbles.He has...
After 10 months my husband is on mirapex at .75 mg 3x times a day.Its is not helping at all.What kind of pills at a year's time are you all on,I know everyone case is different.Thanks for reading...
I hear you loud and clear,you have to find something that is just for you and is going to make you feel worthwhile.I do not have the answer but I can relate some what.TAKE CARE OF YOURSELF FIRST,if...
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Thanks for the story,so sad. I have placed it on my Facebook page as well,asking all to repost.Deidre...
MaryI too echo all that has been said,Stay strong Mary our thoughts and prayers are with You and Willie Deidre...
Thanks for reporting in Mary,Been thinking about you and Willie.Real glad to see your post. Keep your heads above water. The best to you both Deidre...
Hi everyone Just wanting to know if anyone has any info on how willie and Mary are doing. Thnaks Deidre...
Very well done David,it nice to put a face to the name. Thank you Deidre...
Mary I'm very impressed with your strength in dealing with all that you have dealt with. Stay strong Mary and tell Willie that a lot of people are pulling for him. Deidre...
Well it turns out it is Parkinson diease ,So the long road begins. Thanks for reading Deidre...
FAIRWIND YES THE T NUMBER'S ARE DONE DIFFERNT IN CANADA FROM MY UNDERSTANDING THEY ARE STILL IN SOME WHAT OF THE NORMAL RANGE,SOMEONE ELSE WILL HAVE TO EXPLAIN IT.HIS DR IS A ONCOLOGIST AT THE...
Congrats .Great news Deidre...
I guess I should of done some more reading on this site ,seems to be a running argument on the when to start HT.more is better in this case.Deidre...
So guys and gals after talking to the Dr he ask me at what number do you want to start HT treatment and Of course my question to him what do you think.He said anywhere from(PSA numbers )5.00 to...
Hello everyone I have not posted for a while but do lerk pretty much everyday. Our plate seem to be getting bigger and bigger .After talking to 9 different Dr they have diagnosed my Husband with...
HI As a wife of a guy with PC I totaly understand how you are feeling.We are also in the waiting game his next pas test is in June.All I can say is hang in there,and as you know there are a lot of...
Hello Mary I have been watching for you to post.I'm sorry thing are not going well.I hear you as far as Dr are concern.It maybe what I call standing on the desk mode until I get some answer that make...
Hello You can read my Husbands,not sure if it help's you.He is due in June for his next PSA test.His Last one was 1.50. The Waiting Game Sucks Good luck Deidre...
Hello Well it's pointing more and more to parkinson diesease.Just wondering if anyone else here has pc and parkinson..Could use some advice . Thanks Deidre...
THIS HAS BEEN GOING ON SINCE 2009, THIS WHEN WE STARTED TO NOTICE A CHANGE AND IN THE PAST YEAR THINGS SEEM TO GETTING WORSE He looks like he is in deep thought ,scratches his head and neck this goes...