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Hello and welcome to Healing Well. The progression rate of Parkinson's Disease ( PD) is hard to project. Everyone is different. My doctor said usually you progress at the same rate as you did your...
Max, Welcome back to Healing Well. I have no medical training ... just have Parkinson's. I think that it sounds like depression. Depression is a tough one. First the person has to admit they need...
Dena, Covid-19 has certainly caused a lot of grief for a lot of people. Obviously you are feeling the pain. I also am a long-timer - dx in 2001. I have been very fortunate (until Covid-19) to have...
Archie, Yes there definitely are PD meds that can cause low blood pressure. However. l don't know where to find a list. I did some google searches, but didn't have any luck. One PD med I take that...
Hibee, I have not heard of Korean Ginseng. Hopefully someone who is familiar with it will respond. Thanks for posting. lizzy4451 ...
Welcome to the :PD Support Group. I'm sorry it took so long for me to get here. I was having issues logging in. Sorry your Father is having issues. There definitely are PD medications that can cause...
[blue] Archie, Lightheadedness can be caused by PD meds. If it's a problem, I would talk to my doc. lizzy4451...
Archie, Here is the definition for those who are not familiar with Xanax: Xanax is used to treat anxiety and panic disorders and is the single most prescribed psychiatric medication in the United...
The article says:'Kynmobi is expected to be available in the U.S. by prescription in September'. (2020) ...
The following is from the Michael J Fox organization. Supported by Early MJFF Investments, New Parkinson’s “Off” Therapy Receives FDA Approval Kynmobi films and foils Image via Sunovion...
Do you feel that PD has brought out your creative side? If so, what creative thing would that be? I definitely think it has for me. I did jewelry making for a few years and now do card making...
[purple] Audreestas, welcome to Healing Well. Thanks for sharing your poem. I can definitely relate to a lot of things that you wrote about. lizzy4451...
Fire362, welcome to HealingWell! I think your best bet is to talk to the medical staff. I didn't see any specific Parkinson's issues other than the hallucinations. That is a common concern with...
Jjsum, Welcome to Healing Well, I am having a similar situation regarding my husband. Because of my PD it's highly unlikely that I can do some of the things we thought we would do in the future. I...
Hello Roberts89, Sorry about your Mother's diagnosis. One thing you'll find is that no two people with PD are the same they will have different symptoms, respond to meds differently, etc. Your...
Michael, A belated 'welcome' to Healing Well. Are you are saying your sleep is adversely affected because you are up in the night more frequently taking meds? Is that correct? I think a lack of...
Here is what I found. This doesn't answer your question - I hope someone will - but at least let's folks know what it is. Nuplazid (pimavanserin) is an antipsychotic medicine that works by changing...
Welcome to healingwell. Thanks for posting. I'm not familiar with that medication. Is it for Parkinson's ? lizzy4451 ...
Susan, I should have first said 'Welcome to HealingWell! So ... 'Welcome!!'. I don't mean to sound adversarial. It's just that I'm not sure folks know how much MJFF does. But I also understand your...
Susan, You sound very discouraged. I'm sure it is difficult to see the changes in your husband. I don't know where you live, but I would recommend researching to see whether there is a Rock Steady...
Bella, Thanks for your reply. Hopefully someone who has tried cutting the patch will respond. lizzy4451 ...
Bella, Thanks for your post. I am not on the patch. Whether the medication is delivered in pill form or in a patch form, some medications are not equally distributed throughout. In this case it...
DidNotSee, I live about 2 hours from Cincy and have a support group. I like to learn about things that other people are doing and resources available. So I called the Cincy organization (see...
DidNotSee, Welcome to HealingWell. Thank you for posting and sharing your story. You said you are looking for a caregiver/wife support group in Cincinnati. I searched online and found a Parkinson's...
G Man, Welcome to Healing Well! It sounds like you have your hands full. The involuntary muscle movements you have are probably dyskenisia. It is probably caused by the carbidopa levodopa. Recently...
taylymy, welcome to Healing Well. Thank you for following the rules and receiving Peter's permission to promote your study. It appears this is a one-time study - not on-going. Is that correct? I...
straydog, Just as an FYI ... it's estimated that 70% of the people with Parkinson's Disease have tremor. lizzy4451 ...
Lendi, Welcome to Healing Well! The symptoms you mention are not typical Parkinson's symptoms, but everyone is different. Other national organizations with reliable information are: National...
WorriedUCer, welcome to Healing Well. One thing that might help you understand your uncle would be by reading some reliable information. One of the PD national organizations is the Parkinson...
Painting123, welcome to Healing Well. Glad to hear that Amantadine is working so well for you. That's wonderful! I knew the FDA recently approved controlled-release Amantadine for dyskinesia, but...
cured4real, Thank you for your response. Best of luck to you. lizzy4451 ...
Mrjambu61, Welcome to HealingWell. I am not a medical person - not a doctor or nurse. I'm a person diagnosed with Parkinson's disease since 2001. The symptoms you mention are not typical for...
Pat55, Welcome to HealingWell. It must be sad and frustrating to see your Father's behavior. I don't think it's the Parkinson's causing the behavior. It may be Alzheimer's or dementia. Not all...
Droptine185, Welcome to HealingWell. I don't know the answer to your question. Hopefully someone else will reply. However, I believe it's been proven that the incidence of Parkinson's in people...
audie1959, Welcome to Healing Well. Sorry to hear of all the challenges you and your Mother are experiencing with your Father. I don't have any magic solution. I assume you are comfortable with the...
Chris/Capot1948, Welcome to HealingWell! I'm not familiar with the symptoms and situations you mention. Hopefully someone else can offer a response. You indicate you are a Veteran. There is a site...
Zenfinity, Thanks for the refresher. lizzy4451 ...
Here's a caregiver site that looks pretty informative: https://www.caregiver.org/parkinsons-disease-caregiving lizzy4451 ...
Mrazek, welcome to Healing Well. I have never really looked for caregiver information, but hopefully you'll find something helpful. I agree with straydog in the previous comments that a caregiver...
Below is a write-up from the Michael J Fox website about a medication just approved by the FDA to treat dyskinesia (uncontrolled, involuntary movements that can develop with long-term levodopa use):...
NewbieWife, Welcome to Healing Well. Sorry to be so delinquent in replying, but I've been without internet access for a couple of weeks. You mention Sinemet. Yes, it is the gold standard. Responding...
You can 'google it' for more info, but here is the Wikipedia definition: Parkinsonism Parkinsonism is a clinical syndrome characterized by tremor, bradykinesia, rigidity, and postural instability....
DashGirl, I'm not familiar with Amino Acid Therapy. What does it do and how does it do it? Please share. lizzy4451 ...
deen521, Thanks for sharing. I've never been to the Unity Walk, but have heard great things. Thanks to you and your team for raising so much money for that wonderful cause. That's fabulous!...
Dan, good to see you. I don't have that problem - my blood pressure is average or low. Just wanted to say 'hello'. lizzy4451 ...
April is Parkinson's Awareness Month. Please share if you are doing anything to raise awareness or money for Parkinson's in April. The tulip is the symbol of hope for people with Parkinson's....
Anna, The following information is from the Parkinson's Disease Foundation (PDF) website: Why Aren’t There Tests to Diagnose Parkinson’s? There is no standard diagnostic test for Parkinson’s....
Ospy, I had not heard of Opicapone (unless it's also known by a different name). Thanks for sharing. I wonder why we haven't heard more about this? It's not a new drug. I hope someone who has...
Anna, I'm curious to know what your doctor considers to be a 'test' for PD. If you have the opportunity to find out, I'm curious. I suppose some doctors might consider taking SInemet for a few...