Yay!...
Thanks, Jordan. Prayers for you and everyone else who've had their lives rocked by this disease. Opie...
Thanks, Billy Bob. As I recall, the surgeon decided to add Casodex because of the nerve sparing RP and how close to the margins, as well as my husnand's young age. We likened it to a "belt and...
The time change Got to me! Correct March results:.25....
Sorry- forgot my signature!will see if this works!...
March results-.22...
If you have a choice- do the South loop of the tour.! Tons of info! More to see!...
We are in La Jolla right at this minute. We did a 2 hour boat excursion yesterday in San Diego Harbor which was excellent! Would highly recommend it. We went on the Admiral through the Hornblower...
Andrew- I am sitting on our sailboat as I read your poem. Eyes and heart are full. It is perfect. Thank you for sharing. Opie...
Thank you all for your input. I so appreciate you taking the time to respond! Opie...
Thanks Guys! NOW I'm thinking of more questions I wish we would have asked.(not that we would have gotten a definitive answer but the primary question is"Give me your best educated guess. Is this a...
Husband had his appointment at Mayo last week with Dr. Kwon. We had made the appointment due to a slowly rising PSA following RP in 2005. Two weeks before the scheduled appointment had his blood work...
Thanks, Andrew! Love your woodworking! What a gift! Opie...
Thank you, yk....
Logoslidat- interesting! Will keep you posted....
Pratoman- it is a relief! I try not to get too up or too down about the PSA's but I do have to work at it! Have you ever heard of a PSA being .14 then six months later .o8 with no treatment? He will...
Husband's PSA results are in and it has dropped to .08! It has been slowly rising-up to .14 in October 2014- after RP in 2005. We were pretty convinced it was going to go up again, so went ahead last...
Thanks, Break 60. Tumor was confined, both nerves spared, surgical margins were negative for tumor. Gleason 3+4. Lymph nodes were clear. I guess we will wait and see what next month's PSA test looks...
Thanks everyone for your thoughts. I can't tell you how much I appreciate your input. I learned so much about this topic 10 years ago when we were in the throes of it! I rarely asked questions or...
Husband diagnosed at age 48 in May 2004. Gleason 7.Nerve-sparing RP in July 2004. PSA has hovered around .05-.07. In March 2014, PSA came in at .11. In October 2014. PSA was .14. Next PSA scheduled...
Hi there, I am sorry to hear that you,too, have HM. I have had them for about 45 years. I am 50 now.your symptoms sound pretty typical. Just when I think I have figured out a pattern, something new...
I am sorry to hear about your son. I have been on verapamil for about 3 years. I have had hemiplegic migraines for about 40 years. I'm 49 now. My episodes are not very frequent . Maybe 1-2 a year but...
I'm sorry to hear about others with Hemiplegic migraines. My family has dealt with them all my life so it is comforting to know what they are at least. My grandfather, father, aunts and uncles,...
Has anyone had any success with Lactimal and stopping hemiplegic migraines? I think it's a drug for seizure disorders but my neurologist thinks it might help stop migraines with an aura and paralysis....
We live in Des Moines and surgery was done at Mayo Clinic in Rochester....
Answered prayers! Opie...
You are in our prayers. Opie...
Great news! Opie...
We've made several changes in our diet since my husband's diagnosis. While we've always exercised, maintained healthy weights, and tried to eat a balanced diet, we have made some deliberate changes....
Thank you for your kind words Susan and Bluebird. Susan, you are absolutely right when you mention factors such as faith, positive surroundings, and life outlook. I had shared with a friend whose...
Thanks so much to those of you who posted replies. Kitt, eglman, and mama bluebird, I appreciate your help in answering my questions regarding a low level. but rising PSA following surgery. Your...
Thanks to everyone who posts here. I have been "lurking" here for the last year and a half. I've learned so much from all of you who are so willing to share. Background: Husband diagnosed at 48....
I wish you didn't have to go through this. I have had hemiplegic migraines for about 40 years. I am 45. Thankfully, they are not very frequent. I had gone 6 years without having one and now have had...
I also have hemiplegic migraine. I'll try to answer some of your questions. Not sure how many people get these but they are quite rare. My family was part of a study that has tracked the incidence in...
We have been diagnosed with atypical familial hemipelegic migraines. My father actually takes nitroglycerin at the onset of a migraine. It does leave him with a headache but the paralysis and the...
My family has had this type of migraine for years. We have been followed by the Mayo Clinic for over thirty years and researchers may have isolated the chromosome where this is carried. Incidence in...