Sounds a little like my peripheral neuropathy. Common in the elderly with diabetes or nerve damage/pressure on nerves in the spine. Some numbness, cold feet with it....
Thanks for posting that article. Too many don't know Proton Beam treatment even exists....
There's radiation and radiation. Consider looking into Proton Beam Radiation. Not sure if they would consider it with your psa, but sometimes they split the proton treatment with iMRT. Protons are...
I've had the same Knife proceedure. I was put out and really had no pain to speak of. Catheter was only in for about 5 days. I peed like crazy for about 30 days and then the scar tissue started...
IMRT & IGRT are much better than the old Radiation, but if your concerned with precision look into Proton Beams. I understand that Loma Linda does some salvage radiation. Not sure what the...
Yep David, I'm doing very well. I realize that this forum is mostly surgery guys, but just want those that are not aware of Proton Beam Radiation to check it out. They also do some treatment after...
As usual no mention of Proton Beam Treatment. Amazing. If you are concerned about ED please look into it. Nuff said....
As the others have said the bounce is pretty common and the drop is sometimes very slow compared to surgery. I'm a proton Beam patient and my psa was 6.2 before treatment. Dropped to 3.1 at 3 months...
Tell your Proton friend not to panic. Some patients never get below 1.0 and bounces are common. I would talk to my proton Doc. Many Urologist don't know anything about Proton Beam Treatment. I would...
This forum is probably not the best place for info on Proton Beam Therapy. It's obvious due to the number of surgery patients here and the mindset of "just wanting it out". I also recommend the...
Go to a health food store and ask for Buffer PH or something similar. I'm on it as I tend to go acidic. Ken...
Seeker44, You probably are guessing correctly. I had burning like you mention for a good year. It was a stricture and was corrected by opening it up. Flow improved for 6months or so and has slowed up...
Real Ziggy, Glad to hear you are doing well and your psa is .3. Won't it be great when they find out that your proceedure is as good as any and admit it? /community/emoticons/rolleyes.gif Hope it...
Well, nothings changed. A question about Proton Therapy and mostly answers from surgery patients about how they have to have it OUT. That's fine if that's the way you feel, but are you influenced by...
Side effects for me and many others are frequent urination during treatment tapering off afterwards. Some have minor bleeding from the rectum which doesn't last long, but not usually. I had no...
Hi, There are a few of us here who have chosen Proton Beam Therapy. It's been almost 3 years post treatment. The side effects are much lower compared to surgery from what I see here and what I have...
I'm not sure the Doc's known what their talking about as far as the urethra being shortened. I didn't have surgery ( Proton Beams ) and I have the same results. Sure doesn't look like I was...
I'm sure they are all different. You need to check with them individually. Depends on the facility and how many they can handle in a day.Loma Linda is very popular as they have the long term...
Last In heard Loma Linda was backed up for 6 months, But one of the Gantrys is down for modernization and it should help a lot when it's up again. ...
Jack, I had my Proton beam treatment almost 3 years ago and am doing well. Lots of info on www.protonbob.com . Many testimonials on the site. There is lots of info on this site from Dave and maybe a...
I had the same problem and the same proceedure to open the restriction. In my case some of the scar tissue reformed as is fairly common. It's still better and the pain I had formerly is gone. Wish...
Pam, Welcome to Healing Well. Good to see another Loma Linda Proton Brother here. Haven't read your Blog as yet, but I'm sure it will be familiar. Continue your Healing and Live Life. Ken...
Vasectomy at 40 something. PCA at 75. Don't know about cancer, but I believe it caused my BPH....
After publishing a news article that omitted Proton Beams completely We patients, got this article....
Good to see this thread pop up again. Thought this "Brotherhood" Link would be of interest to those who don't know much about "Protons" MEMBERSHIP — 3,312 We added 39 new members last month. Our...
Jodyjames, What you are experiencing is common with a stricture problem. The depth of the stricture is what the problem is. I just had the proceedure and it was great for a few week. Mine was a...
Hi TC-LasVegas, We're all going to be good. It just takes time. Thanks for the kind words. Have a Great Christmas and a Happy New Year. I'll be spending Xmas with my 3 daughters....
Well, the urethrotmoy was done on the Monday 17th. Doc told my wife that everything went well and was as suspected. Scar tissue was obstructing the urine flow. I wore a foley Catheter until Wed...
I'll post after the treatment as to how it goes. I've heard that some proceedures create scar tissue again. This technique is supposed to lessen the likelyhood of that as its just cutting slices from...
It's almost 2 years since I finished my Proton Beam Treatment at Loma Linda. Side effects have been almost nil. Only problem has been urgency. My new urologist "Scoped" my urethra and found I've been...
Like Dutch Said. Loma Linda has 15 yrs. experience. Probably why they feel more confident....
Bluebird, Thanks for that link. I needed that to refresh that info in my little brain /community/emoticons/smile.gif Ken...
Hi Dave, My urologist thinks I may have some scarring in the uretha because my flow has reduced quite a bit and there is some burning. Won't know for sure until he takes a look with a probe up there....
Hi Dave, Good to hear you are doing well. Also glad to hear your Doc is not concerned about your bump. As you know I experienced the same thing at 12 and 16 months. My next Psa test is this month. I...
I'm with Dave. It will take a few years to find out the pros and cons of this abbreviated radiation treatment. I felt comfortable with Protons as they had a 15 year " testing period". Maybe they have...
Doston, Sounds like you are doing very well after your cryo treatment. I'm sure your positive results will continue. I'm the same age as you and I chose Proton Beam as my treatment. I'm 1 yr. and 10...
My first Gleason score was 4+3. Sent slides to Stanford for 2nd opinion. Came back as 3+4 which is much less aggressive....
That's great news Dave. I for one have been anxiously waiting for your first test results. Yours took a bigger drop than mine and now we are neck and neck:) Hope you have a proton friendly Urologist...
Lakeman, Your PSA is great, especially for the 1st one. I'm post Proton about 1 year and 8 months. My psa is now at 2.19. It dropped by 50% the first 4 months and 50% again At 8 months. That was what...
Guess I might as well chime in here, as besides Dave and Dutch I'm the only other Proton Beam patient here. I know you will be pleased with the way you are treated at Loma Linda and very pleased with...
Lee, The 2.19 PSA I posted above is my newest that I was waiting for. Seeing my NEW, "Proton Friendy", Urologist in a few days and see how " Friendly" /community/emoticons/smile.gif he is and what he...
44gpa, I had Proton Beam Radiation which is a little different, but I had Urinary Urgency and some burning during treatment. Do you have BPH? That makes it more difficult I'm told. I have BPH and had...
Lee, Thanks for the info. I do and have had BPH for a long time, so that info is helpful to know. My post has not changed so not quite sure ??? Ken...
I just had my PSA check and have a psa of 2.19 which is up a bit, but this time There is a free psa # of .33. can anyone explain what the free psa denotes?...
Good to see you're looking at lots of options. I've heard of the Cancer Center and it's great they offer many options, However I doubt they offer All possible treatments. Read as much here as you can...
My Oncologist initially wanted to do Seed Therapy to me and follow up with External Beam Radiation. I think it was Conformal at that time. After talking to me for 1 1/2 hours about my Prostatitus...
The Insurance Companies have been fighting this for 15 yrs. You may be able to fight this. Many have done so and won. I know Loma Linda has helped some patients in this regard, but you might need a...
I have similar symptoms even though I have had Proton Beam Treatment rather than Surgery. I can't say that treatment caused the burning and urgency as I've suffered with BPH for years prior to...
Well, Cedar, Nice to know you. I guess I'm lucky, as everyone in our little town knows about my Prostate Treatment and have been very supportive and all prayed for me. I spread the word as there is...
Cedar Chopper, You're correct, the beam is only about the size of a pencil. They have to force it to be larger as it comes out of the pipe and then it goes through a metal shield which contains it to...