Thanks for all the well wishes. I go back on Tuesday for a fill body bone scan, CT scans of the chest, abdomen and pelvis. There will also be a lot of labs. I will also take the second two hour IV...
The first trial is called; "REFMAL" This is a Phase 1 clinical trial using a drug called AZD4635. It is an immunotherapy where they are working on "reactivating" the T-Cells in your immune system...
Thanks. I'll keep you posted....
Hi all. I have not posted for some time. I hope you are progressing on a good track as you go down the path of PC progress and treatments. I now have advanced, metastatic, castrate resistant...
Get the biopsy, is my recommendation. The younger you are when PC is found, it usually should be treated to avoid getting to involved. I can only give you personal experience. My PSA rise was about...
Again, thank you for all the posts. Ted....
I can only give you my own history. I had a G6, and thought; Whew, they caught it early, it is a low grade, therefore it should be cured when I get my prostate removed. As you can see from my...
Thank you all for the posts. Makes me feel like someone is out there.... LOL...
Yes, it was 6, and all margins were negative. The Dr told me that the left apex and nerve bundle was involved, and he had to take more tissue than he first thought. Regardless, the theory is that...
I added an update to the top of this post. Thanks, Ted...
Ok, Here is another update today, 05/12/2017; I started the Zytiga + Prednisone on April 5th. This is my last few PSA results as the Lupron started to lose it's efficacy to prevent the PSA from...
Thank you for the additional posts. I appreciate the additional input and understanding of your experiences. Thanks, Ted....
I appreciate all the posts. You have provided me with some great insight on what to expect, and your experiences are giving me some hope that this stuff may help. Thanks, Ted....
Well, I have not posted for quite awhile... Thought I'd post an update. I am now at the CRPC stage. Failed surgery, failed radiation, failed Lupron and Firmagon.... Insurance denied coverage for...
I had my first Lupron shot today..... I will try to follow up as to the side effects as they occur. As of today, I had the shot at about 9:30 AM. It is now about 10:30 PM. I have a small amount of...
I never saw your latest responses until now. I want to thank you all for the responses. I will try to digest the responses after 9/26. It looks like I received some great advise and that brings me...
Thank you for the responses. I guess I will just have to experience this to understand then.......
Well, after a failed prostatectomy, and failed radiation treatment, my PSA is now back up to 6.32 with approximately a 6 month doubling time. Therefore, my Dr is recommending that I start taking...
Ever optimistic, but the problem is my optimism has not proved to be reality. We will see....
I thought I would provide an update on my progress. I have been monitoring PSA since RT in 1Q 2011. My last visit was about a week ago and my PSA is now up to 1.63. The Dr said that it is now on a...
You make me feel so good..... lol Thanks for the kind words. This is one time I am really looking forward to surgery!...
Thank you James. I'll keep you posted after Tuesday's events....
David, Your PC team members are sending you all the positive vibes that are available. We wish you the best. Ted....
I am just glad I don't need to be concerned about this anymore. I love my penile implant. It is really great to never have to worry about achieving or maintaining an erection. It works all the time,...
Some time ago I submitted a post that I was experiencing chronic back pain. It advanced to the point that the pain went down my leg and even impacted the two outside toes on my right foot. At the...
David, thanks for the additional post. I will keep you posted on what turns up after my Dr appt next week....
Thank you all for the replies. I have been out of town all week and was not able to get online to see the responses until now. The Dr took x-rays, never found any mass or anything that they could...
bump...
For those that may be wondering… I made the decision in 2009 to go ahead and get a penile implant. It may not be a decision for everyone, but for me, it was the best decision I could have made. It...
I have been experiencing chronic hip pain since May 2012. I am concerned that it may be either associated to my growing prostate cancer (i.e.: metastasized into the bone) or maybe associated to the...
Humm.... last time I played roulette; I only played against red-black, high-low, and odd-even runs.... I won $800... Don't think I will change my strategy......
Maybe I need to stop eating that NY strip every night..... Just kidding… I have been a vegan or at least a vegetarian most of my life… that never prevented me from getting PC…...
David, I think of you often. You know all your friends here are thinking about you and wishing you the best. I am glad to hear that the meds have relieved 90% of the pain 90% of the time. In the past...
Mike, Congratulations! I hope you never have to deal with any PC impacts in the future. I would also just like to say that a little worry may be good. Even though it has been 3 years, you need to be...
If you have ever had a shot of potassium chloride you would know it burns like heck..... that probably is what gave the heart attack. /community/emoticons/skull.gif ...
David, I appreciate the response. At this time we are in NM on a family medical emergency visit. I hope to return to NC sometime in May, so maybe my wife and I could hook up with you and your wife in...
David, I am sorry to hear about the news of the "spot". I hope the new medicine helps control the pain. Please continue to provide your updates. I have been following them for a long time. I wanted...
Been there, done that.... ha...
Wonderful. Congrats....
I tried all the pills, the pump, the shots, and ended up getting an implant. I really like that fact that i don't have to worry about getting a prescription filled, taking the pill, refrigerating my...
Take it easy and give yourself some time. Enjoy what you can in the meantime....
We wish you well and hope to hear the progress when you get back online....
I love my penile implant, so if anyone wants information on my choice, let me know....
Interesting comments. Thanks for all of them....
Thank you for posting. RalphV, I hope you are correct....
Glad to here that things are going so good. You provide us all hope. Btw, my Dr gave me a good tip on something that has made a real difference in helping with my cholesterol. he told me to start...
Thank you guys for reading and posting on this thread....
I am not a proponent of Watchful Waiting, or Active Surveillance once you have a biopsy and it was confirmed that you have cancer. My personal experience was that my PSA was very low at only 3.83, my...
I recently, about two weeks ago, started using Menogest (natural progesterone) cream. I put it on my wrists (pulse points) twice a day. I asked my surgeon about it and he said that there is no...
Newporter, What is your story? Is it already posted here? I was not taking Pomegranate supplements, but I have started trying to eat a more healthy diet, etc. I have also recently, about two weeks...