Hello All, I'm a stranger to most of you here now! But, I was a regular about 5 years ago. 43 @ RRP Oct. 17, 2006. Had trouble getting dry. Had AUS Aug. 22, 2008. Just a light liner for daily use....
Ron, I had my AUS done 2 years ago and everything has been great. I do still need a light panty liner for some dribbles during a normal day. When I play golf I need a depends guard for the leaking....
Tom, I had the AdVance sling done and it did me no good. Then I had the AMS 800 AUS done by Dr. Morey in Dallas. It was the best thing I did. I would look into the AUS if I were you. But, I know you...
I would talk to your doctor to see what he thinks. I would be afrade of doing damage to the cuff portion of the AUS. I know I can feel mine in the perineal area. It seems to me that is where alot of...
Hey MSP, Sorry to hear about you trouble. First thing I would do is hire a Lawyer and sue the crap out of them. Second, if you are anywhere near Dallas Tx. or would consider going there, check with...
Hi All, some of the old timers here will remember me from my AUS Journey!!!!! Doing very well with that. I went back for another 6 month PSA the first week of July. Got the results last week! I had...
I can drink as much of anything that I want. The only feeling you get with a full bladder is the same feeling you got before PCa. When you gotta go.....you gotta go!!!! But with the AUS, when you...
A blip!!! Just got my results from my last PSA and it was 0.24!?!? Still basicly a 0 but I had been getting 0.00. I am still on 6 month testing so I go back in Jan 2011. Will see what happens next...
Mine came out very easily. Just a strange tingling feeling when it came out. I was a leaker from day one. My cath never did completely seal off. There were times that it would seal. But other times I...
side effects seemed to come and go. I did not notice too much difference betwee the name brand and the ADC generic. KW...
Tallguy, been a while since I checked in here. Wish you well with the AUS. KW...
Knot, I would highly recomend having the AUS given that your Doctor has done many of them. The bicycle thing is something you will need to talk to your about . Myself I still need a full Depend's...
You can read all about my journey in the links at the bottom of this post. I knew going in the AdVance Sling would probably not "cure" my leaking by I had hoped it would make it more managable. In...
Tall, Feel free to holler if you go the AUS route. The "leakers" here like I was before my AUS know exactly how you feel. Wish you well. KW...
Swim, Glad to hear you two are doing well. I would not have made it through my Journey without all your kind words. KW...
Just checkin in on the "leakers" here. I know how you all feel when trying to make the treatment decisions. All I can say is not to give up and try not to beat yourself up on the "could have, would...
I have used a pill splitter I got at wal-mart. The side effects seem to vary from time to time with me. Headache, stuffy nose even the "blue vision" a few times. With Cialias I seem to get more of...
I may be a bit late on this but I had a couple of flexable scopes done. I also had a few colligen injections into the sphincter using a rigid scope!! The flex scope was nothing but a little pressure....
I would wait a year. You never know how your body will heal. Hang in there. KW...
Hi Fellow Leakers!!! My recomendations would be first of all take your time. Give your body a year to heal and try to learn to work agian. I would also look for a physical therapist that uses...
I would highly recomend the AMS 800 AUS. My only suggestion would be to find a Dr. that does them on a almost daily basis. KW...
Even after having the AUS installed I still use a womens liner for a few drips and dribbles. I also wrote Depends about making a light weight male liner but got a standard reply about the Depends...
I also watched what I drank. Not sure if it helped but I was trying anything I could. Good Luck KW...
Having had both the AdVance Sling then having to go on to have the AUS I would say take the time to let you body heal. Just because you may feel good your body needs time to completely heal. Don't...
You may want to think about this one too! If you go to a "teaching" University Medical Center the Doctor you book with may not be the one that actually does most of the surgery. The "teacher" will be...
Jersey, I also had the AUS installed by the same Doctor that Gene used. You can read my links in my signature. I was a heavy leaker. I tried the AdVance Sling by AMS and had no luck with it. The AUS...
I would suggest a visit to a physical therapist that works in this area. They have equipment that will let you know if you are actually working the pelvic floor muscles. It was my experience the it...
Ike, I have been posting 0's since my RRP in Oct, 06. I go for my next test first week of Jan. Should be a 0 too. You should do great for many years to come. KW...
You really need to remember that even though you are having robotic and it is sold as "less invasive" The only thing that is different than the " open" surgery is how they get inside. Your body will...
Everyone will have different reasons for the choices we make. Myself, I was 43 at diagnosis. It was very likely if I had waited till 50 to get my first test the PCa would have jumped outside the...
Tallguy, Sent e-mail reply from my normal address. Basicly what I said was if you are a heavy leaker 6+ pads a day I would probably jump right to the AUS. I know it is a hard decision. Good Luck with...
Defender, I think most of the time during the prostate removal surgery ( open or robotic) they really can not tell how your body will react to the changes. Your body needs time to heal first and for...
Hey Guys, I was one of the "expert" leakers here. From what I went through, I was told by a few different doctors the what you have at 9-12 months is what your gonna get. Please do not get me wrong....
Sorry to hear you are having problems with your sling. I may have missed it but did you have the AMS AdVance sling or another brand? I know how the bladder pain thing is cause my catheter plugged up...
I did not see your age. But that would be a major factor in my decision if it were me. I would probably try some of the other testing methods or even a saturation biopsy with many more samples taken....
My understanding is the nerves that are mentioned are only for erectile function. But, I may be wrong! KW...
Just wanted to say to any of you "leakers" out there, Don't Panic or get down. If you give you body time to try to recover and you still leak. There are options to get your life back. I know giving...
For me I could sit or lay down and retain urine. Once I stood up I would normally feel a gush at first. Then it would constantly dribble out as my body produced urine. If I bent over, coughed,...
MSP, I was also in the severe catagory. I tried the AMS Advance Sling mainly because I was afrade of the AUS. In hind sight I wish I would have saved the time, money, time off work, and PAIN, and...
Hate to hear about the troubles you all are having. I thought being a "leaker" was bad. Keep your spirits up. KW...
I also had a hot spot on a rib in my scan. A chest pannel with many different view cleared that up. I think sometimes the Dr's order these test to cover their behinds. With insurance I think it is a...
Sorry I missed you. Would have been nice to see ya. See ya, KW...
All steps of treatment and their complications are important. I only suffered temporary and minor ED. But, I was a "leaker" that eventually had to have the AUS installed. The leaking was the worst...
Sorry....wish I could help. Have not heard of anything like this. Wish you well with all you have going. KW...
I'm sorry to see the problems you are having. Having had both the AdVance Sling and the AMS AUS (artificial urinary sphincter) I am lucky not to have any pain at all. WIsh you well with your...
Honestguy, I use the Always Ultrathin with wings, regular size for daily drips and dribbles. I still need a Depends Guard when playing golf. I don't know why some doctors out right lie to their...
This summer the wife and I took both of our mothers (yes that means MY mother in law!!!....lol) on a trip to Northern California. We took in the sights around San Francisco, Redwood National Forest,...
Honest, I am also a AMS AUS Guy. I know we all wish we were 100% were we were before surgery. But, you have to admit 99% is a whole lot better that were you were. I was a 8 + pad a day before my AUS....
I had the AdVance sling by AMS. This is the newer version. I really do not remember what the difference there is between the AdVance and the InVance. I have never looked into the Virtue. My sling did...
Piano, I would hold out for atleast 6 months. You never know how your body is going to adjust to the changes. If for some reason it does not then you can decide which direction you want to go with...