@pcdave and Dutch: I am doing my fitting for my pod on Thursday - how are things for you guys lately? Have looked for recent posts with updates but saw none. Hoping all is well and numbers great!...
@skeeter - you're waiting for insurance - how's that going? I know I was a wreck just waiting for the "treatment denied" phone call. Anytime you want to email, my address is there on my "info" page....
Thanks for all the replies, and for those who emailed, too! I have been accepted into the Loma Linda proton treatment, insurance has cleared, so now it's getting close....
Lewvino - thanks for that input, good to hear. My best to your father, for a continued success. It looks like your surgery worked well for you, keep those numbers coming! Feel free to give your dad...
My best to you Skeeter. Good luck with your insurance. It's an extra fight that no one needs to be faced with. Keep the faith!...
Yes - I've been on that site numerous times. I just found out today that UPenn did the proton treatments. I used to live in Cherry Hill, NJ - so that's familiar territory for me. Wishing you only the...
As I move swiftly down the path to choosing treatment, Proton sounds very positive. My neighbor had t three years ago, and he remains the distance-running coach at a local high school. At 63 he can...
I like the way your guy sounds. Knowledgable, thoughtful, willing to use his experience to make decisions. From what I read, it sounds like a pretty good report? I will keep nothing but the best...
Finally a chance to post a good update! Through some persistence plus divine providence I not only had my CT scan today, but also got the results back from the radiologist. Except for some arthritis,...
@ Sag. - I'm a Sag, too - Nov. 30. Watched the video, not sure what to make of it. Hoping obviously for a "no spread" outcome. Wish my urologist was as clear in his dialogue. Even if he had shown me...
Thank you all! @ corvetteman - used to have a perfect 66 roadster - made a big mistake letting go of it, but I also had a 67 GTO, and loved that even more! Long story, but basically my sister ended...
After lots of anxiety looking at over a week to get in, persistence paid off this morning. I was able to get squeezed into a 3pm CT scan today. Relieved because I'll now get some hard data sooner,...
@tarhoosier - I'm assuming the CT scan is because my prostate was enlarged on the right side, thus indicating the cancer was growing? Then they do the scan to determine spreading, if any, to lymph...
Joey - my heart goes out to you. I am a 60 year old dad, and my 18 1/2 year old son doesn't yet know of my cancer. We will be telling him soon, but he's been busy with something that's important....
My pathology had two notes under "diagnosis." "Revised report": adenocarcinoma with varying neoplastic glands, combined Gleason score 6 (3+3), involving 5% of tissue, one of two cylinders. Then it...
Thanks - I added my name and location to the list, although I think it's already in my profile. My head is just doing cartwheels, and I get some relief / comfort emailing with a few who I've made...
Leroy Highland Ca USA...
Great to hear! Hang on!...
As I am new to this board, I hope I am not getting out of line with this post. As I search through the posts, there are many people whose story I would like to pursue. However, many seem to come and...
@pcdave - I am just past diagnosis, and am trying to get my head around a treatment choice. I live very near Loma Linda, so I already knew of their program. How is your recovery coming? The two...
Hey Startech - thanks for pointing me this way! So MD Anderson, sounds like proton? I'm working on a consult at Loma Linda, meanwhile got the authorization for the CT scan, so should have a date for...
@Startech - yeah, I'll talk to urologist about it. Hard to get talking to this guy, he's kind of in and out, only have met him three times now, so little connection going on. I just want to make sure...
So my urologist has sent in for an OK on CT scan. I see so much here about bone scans - should I be getting that too, or will CT see the whole deal? Can't believe I have to wait for some group to say...
Thanks all - calm still there, but definitely being replaced by fear of the unknown, along with just plain old fear. One thing that has changed my mood is researching the "staging" that i have so...
Results are back. Cancer. Right now all I know is Gleason 3+3, 5% in one of 5 cores. So - off we go. Setting up CAT scan for soon, need to start digesting options in the meantime. Really not in favor...
Wow! So glad for you! It's great you found the right person, someone with the guts to help instead of following rules. Send her some flowers!...
Absolutely understand. I find that I try to read things into every little detail, both positive things and negative. Doing it does us no good, but how do you get your brain to stop "going there?" My...
If it helps any, I just had a biopsy done Thursday. While I had read of a whole range of reactions, it was not a big deal for me. Minor discomfort with the insertion of the probe, minor pain at each...
Purgatory - thank you, and I will keep you "posted." I will include you in my thoughts and prayers....
Biopsy over. At the moment, nothing to report - it was in itself not a big deal. Need to call Wed morning to see if results are in, 9 am appt in case they are. Doc only took five cores, out of the...
Clocknut - thanks for that. I agreed to a biopsy immediately. Definitely not one to run from the truth. Lots of cancer in my family tree, so I know way more than I'd like to about the disease. It...
It's the morning of my biopsy. Can't shake the negative thoughts. The more I research, the more it seems this path has only one direction. Feeling like my whole life is on"hold."...
One positive in this adventure - just happened to be within my Open Enrollment period for coverage. Being the anxiety lover that I am, I was looking forward to being told my insurance wouldn't cover...
Thanks, Startech - I know all the right things to "say" to myself, just a lousy listener - hardest time is the getting to sleep / waking up time when it's just me and my brain. I wish you the best in...
Saturday morning early and what am I doing? Reading my iPad about prostate cancer! Still five days to biopsy, but have learned way more than I want about this process. Can't shake the negative...
Yes - it's the not knowing, of course. Never been good with uncertainty. The more I learn, the more I realize that even a negative biopsy is uncertain, but I'll sure as hell take one! I've got a...
Thank you all for your replies. I know where each of you has been, because I'm there right now. The not-knowing is hard to manage, but certainly a zero compared to what many of you has managed. I do...
Ok - just new to this. Doc found swelling on one side of prostate, PSA 2.7, but was .8 two and a half years ago. Referred to urologist, he found same thing - one side bigger, not hard, just different...
Ps - if you look under migrainous stroke on this site you will see a post by miss molly, which I responded to last year. Her experience plus my more lengthy reply might help. There's not lots of info...
Sounds familiar - similar to my experience three years ago. Migraine with aura but little pain followed by stroke. No lasting effects here either, but still dealing with the psychological aspects....
Dear missmolly: Just found your post as I was researching migrainous stroke. Almost two years ago I had a migraine, then experienced stroke symptoms and ended up in the hospital for two nights. I was...