I had an AMS800 installed in April and activated in June. Although it is not a panacea, it is 1000% better than changing pads every two hours and fighting diaper rash all the time. I now wear one...
Hi lostsoul62 My first question: Is your doctor a urologist ? My next observance is that prostate cancer usually lives on testosterone and yours, at 42, doesn't have to go much lower to be at...
Hi Fulltlt, I am of the opinion that most people with prostate cancer die of something else. Even those who succumb to a metastasis of prostate cancer probably die of heart failure from too much...
Life is to lived abundantly so any nudge you can give it is not only acceptable, but preferred. Were it me, I might even lie to myself and say the uptick was a laboratory anomaly, which is indeed...
After 28 days of treatment, my PSA went from 8.0 to 0.3. The side effects are different for different people but my major gripe has been significant nausea with a headache to go with it. The antidote...
I have questions of alf203 regarding side effects he experienced with TAK-700. I am in day 10 of the trial and have been experiencing nausea for the past 4 or 5 days. The oncologist has prescribed an...
Hi Zufus, I have to admit I haven't cast my net for any of those remedies you suggest. I have been a patient of a great oncologist at M.D.Anderson for over 9 years and we have been testing his...
Thanks for those who responded. Alf, best of luck to you. I am being evaluated for the Phase 2 TAK-700 trial on Sept 22. After 9 years of CT and bone scans without remarkable results, and radiation,...
Is anyone on this board familiar with or know anyone who is on the TAK-700 clinical trial? This trial is for patients with non-metastatic castration-resistant prostate cancer and a rising PSA....
Hi Bill, Although the heal time for the incision is not bad, you sit on your bladder neck and may need to take a "donut" with you. Depending upon how much you are leaking may also determine how...
Had my AMS800 activated June 7th. I can't compare it to canned beer, but it really beats being wet all the time. This has been one of the most uncomfortable operation I have had since a meatomy back...
Shingles are related to chicken pox. There is an immunization shot you can get for shingles but I don't know if you can get it if you have a live case of shingles in progress. Our county health...
It may be my incision was directly into the scrotum because I had a bilateral orchiectomy at the same time I had salvage surgery in 2007. There are no testicles to contend with, making the incision...
On April 20th I had the AMS800 Artificial Urinary Sphincter installed. It is due to be activated in early June. At present I am doctoring an ugly scar on my scrotum and still enduring a persistent...
There are very few urologists that will perform surgery after a radiated prostate. The tissue is more rigid and heals differently. Incontinence occurs in a large percentage of these patients. Since...
Has anyone had any experience with neurological disorders after urethra dilation ? The front of my right thigh goes numb and burns. I had a similar procedure a year ago without this result. Don't...
Wonderful thought. Maybe a copy, paste, edit type of thing if nothing else. Dave...
Hi gold horse, You owe no one an apology. We should apologize to you. Forgive us for seeming so unwelcome of your experience. We need to give newcomers (and others) more time to read the fine print....
I had 42 EBRT treatments and six years of hormone therapy when I became refractive. A biopsy of the prostate at this point showed the right side to be filled with cancer (5+4=9) grade. I was offered...
Hello Piano Guy, I had surgery to remove strictures in December 2008. This was a result of a prostatectomy in August 2007. I was almost totally continent after the prostatectomy but almost totally...
Purgatory said: Good idea, and good list, James Pyridium prescription for burning urine after catheter removals if needed. I wholeheartedly agree but beware: Pyridium stains anything it touches a...
Last Christmas I was walking around with a Foley catheter with a urine bag attached while the house was full of children and grandchildren. Miserable!!! Wait until after the Holidays whatever your...
Zen, I don't believe anyone cares if Dr. Brawley is a black man. It is his position that is abhorrent to many of us. If or when we have government controlled health care, his opinion will become...
Finally, someone has provided an upside to incontinence. Now I won't have to cut down a tree to burn in my fireplace. How green is that ? Dave...
Hi kak, I would recommend pyridium as a pretty sure cure but if the baking soda in a half glass of water works, that would be preferable. Pyridium makes your urine turn orange and will stain anything...
It is quite normal for you to have pain when you sit for a while. Many of us have used "donuts" to sit on after any kind of surgery around the bladder neck. I don't know where your doc has spent his...
Hi rondeb, The effects of EBRT can sometimes be delayed and continues for nearly a year or more. I would let it do it's work and see where your PSA is on July 31st. Don't feed your PSA anxiety. Have...
Hi Cheries, If the only information you have is a 9.2 PSA at the state fair, you may not have to worry about cancer treatment at all. You could have an infection, BPH, or other things that could...
Hi Steve, I am going to bet my money on that new mattress. Symptoms, particularly painful ones, don't ordinarily show up with prostate cancer until late stage. I am assuming you have already...
One of the things you might learn from us older dudes is how to make things easier on digestion and relieving oneself. Drinking more plain water and perhaps even taking a fiber additive like Citracel...
Hi Teddy, Outside of kegels, walking is one of the best exercises you can do to help yourself heal and become continent again. Just don't go overboard. Good Luck, Dave...
There are a lot of statistics bantered about and a lot of believers in the mathmatics of Prostate Cancer. I was reminded of a site, by a friend from Spain, with a message for those whose mathmatical...
Hi 55 and healthy living in NJ, You are asking the one question we are never supposed to ask ourselves. Since the option we chose is life-changing, and in many cases irreversible, there can no...
Hi John T, I think you may be over-thinking this. The first physician a patient talks to about his confirmed prostate cancer is a urologist. One of the arguments given to advance the surgical option...
Hi Jim, Sorry your post-surgical statististics were not more promising but that's not the end of the story by a long shot. Keep in mind you debulked a lot of cancer by removing your prostate. I am...
My local urologist had another article in our paper today and I quote:"The American Urological Association has come out strongly in favor of PSA testing. Unlike some of the agencies questioning PSA...
The AARP magazine was founded by an insurance company, United Healthcare, I think. They are frequently on the "get someone else to pay" bandwagon. They wrote an article several years ago touting a...
I am offering an observation over ten years rather than any scientific proof. It seems that younger men (30-50) can have very aggressive cancers with low PSA's. Most of us can agree that the (0-4...
Thanks for bringing this article to our attention. It brings some sanity to the argument. My local urologist had an opinion about these articles and stated "The doctors providing opinions do not have...
Hi coach4life, I engaged intermittent therapy if for no other reason than to prove the efficacy of 42 radiation treatments and 2 years of combined Lupron/Casodex. My urologist was 100% against IADT...
I had salvage prostatectomy at M.D. Anderson in July of 2007. After intermittent Lupron therapy started failing, a prostate biopsy showed the rt. lobe with Gleason (5+4=9) cancer. The only other...
Hi Oceanwave, The magic number is usually determined by the individual physician. I am sure it is probably based on PSA level at time of diagnosis, post surgical Gleason scores, and the extent to...
One more Dave...
Hi Amy, Is your husband seeing a medical oncologist ? Is your husband taking Casodex, Avodart, or anything other than Lupron ? I'm sure we all are praying for the best outcome for your husband. Dave...
Hi realziggy, Sorry I put a burr under your saddle. I will apologize for not having read the entire ABC article. I read the first two paragraphs and stopped, as many men might do. Those two...
The test or not to test argument rears it's ugly head all too often. And, like the ABC article that starts off quoting experts from the Netherlands and then jumps to a partial statistic on US men...
Hi Jetlagged, I am a patient at M D Anderson Cancer Center in Houston. In 10 yrs I have never had an ultra-sensitive PSA test. I have asked both my urologist and medical oncologist why I never get...
Hi Fred, Although I agree that starting hormone therapy is the thing to do at this point, your wife's uncle should engage a medical oncologist, preferably one specializing in genitourinary cancer....
For John T, I stand by what I said John. If you have new data from Europe that hasn't been published yet I have two questions. If it hasn't been published has the information really been vetted by...
Hi Oncas, You should never feel pressured to make a decision about something that will effect the rest of your life and may ultimately determine how long and how good the rest will be. I agree with...