Guess who's back! I'm not sure how often I'll pop up around here but I thought it was time I check in! Tony - thanks for starting this thread, I am quite humbled by the kind words! I won't spend time...
Ralph Alfalfa said... Great to hear, Dale. I'm so glad for you. Watch out for that first step....it's a lulu! Bob Bob can you send me an email - I have a question about an event in Kansas City...
I agree with the earlier comment, I was a survivor every single day after the day I was told 'You have cancer'....
David in SC: last June the pain in my femurs, hips etc got so bad I had to have 14 radiation treatments. At that time it was rather excruciating. Advil and Extra strength Tylenol did nothing....
I'm back.... PSA is now up to 402 but it's to early to bail out on Abiraterone. As discussed with the doc in Atlanta we need to give this up to 6 months. The good news is my symptoms (bone pain) have...
TC, Steve and I communicated quite a bit. i was quite saddened and almost drove up to Minneapolis for the service but life got in the way. I hate this disease...
I'm back! Well, I never really left. Since my last post: Jan 3rd - PSA was 142 so I stopped High Dose Casodex The Abriaterone clinical trial site in LA filled up (long story for another time) I have...
kak, I am also young and have adv PCa. I went through chemo in June 08 to Jan 09. For me, it was very tolerable with just a few side effects. Here are the things I experienced: - hair thinning, not...
Actually in 2010 the number is expected to grow to 32,000!...
I'm not a regular visitor here, off and on at best. Regardless I thought I'd take a minute and post an update. After 6 months on DES my PSA rose three months in a row and is now 81. (if you're not...
I'm a few days late as well. Happy Birthday....and many more!...
Joel Nowak, the publisher of advancedprostatecancer.net Just published a series of posts about 2nd line hormone therapy. They can be found at: Ketoconazole - http://advancedprostatecancer.net/?p=1958...
for the sake of brevity (which my post did not achieve) I left out the treatments I tried prior to this year. All dates are approximate: 2-2005 to 8-2006 Lurpon + casodex (nadir was .35 after 5...
zufus, I'll attempt to provide details without getting to long winded. I am still on monthly Lupron (28 day dose) and started DES this spring. After my second round of HDK+HC stopped working and my...
What was the search criteria you used or what is the specific trial number?...
I hate to butt in here, but let me make sure I've got this right: you've been off everything? Lupron, Casodex, HDK+HC, Nilandron etc? Why not go back to Lupron+Casodex if it worked the first time?...
two things: "To actually have visible bone mets on a scan i read your psa has to be at least a 10." Not sure where you read this but I not sure I've ever heard anything close to this? Every case is...
Just back from the Onc..... check out the PSA update in my signature..... For those of you keeping score at home, that's a 54% DECREASE from last month!...
TC - looks like the link is broken at the USToo site? http://www.ustoo.org/Shopping/productinfo.aspx?productid=17 Not sure who to report it too but it's kind of hard to sign up for the newsletter...
I'd be interested based on date/time and subject. Also, based on experience make sure you have a real good speaker phone on your end. Like a Polycom etc....
In my signature is my history so I won't go into the details. I had just turned 42 when I was diagnosed in 2005, I have been through many, many treatments and the ups and downs that accompany each....
Arno, Having gone through a similar path and diagnosis as you, I'd suggest considering a second line hormonal treatment before chemo. Look into HDK+HC or DES+Wafarin There is a lot of information on...
If you are one of us with Advanced Metastatic PCa, you can earn $50 just for spending an hour on the phone answering questions. They are having some difficulty recruiting enough participants so...
Thanks for sharing, our minds must be in the same place: http://prostatecancerat42.blogspot.com/2010/04/brothers-day_01.html...
the Yahoo link was broken, I did find it here:...
Here I go again with a dose of reality, sorry. As one of the commentors points out "Most importantly, the editor could explain how long it would take to get a product like this to market (~10-12...
Being that it was just successful in mice, I would estimate 5 or more years before it even begins Phase I human trials. If it even makes it that far... not to be negative, just trying to be...
IN this weeks update, the news gets worse. My PSA is up to 194 Next week I start DES or we find a location for the Provenge Phase II Trial more at my blog, link below...
If you go to the site www.hrpca.org Howard has a lot of very good information....
Well folks, as you can see from my signature my PSA is on the rise! After getting a high but stable result from HDK/HC for about 6 months, my PSA rose 50% in the last month. So now it's time for a...
TC - a big, big congrats! Though I don't post here at HW nearly enough you know I am always around on FB, email, blog or phone! One of these days we will actually meet!...
It's been quite some time since I checked in here at healingwell.com Things for me are stable, yes my PSA is high but my alk phos is normal and I had an updated CTC test earlier this month and it...
Actually the Mayo link says "To the contrary, there is some evidence that flaxseed may play a role in reducing risk of prostate cancer or limiting its spread." Here's another study from Duke...
I think for one that we need to ask questions. We are the most obese society on earth and why should my tax dollars pay for some obese person to be treated for diabetes, joint issues, heart disease...
try http://well.blogs.nytimes.com/tag/jennings/ He hasn't posted since September...
The fall leaves of the Northeast US always get the headlines but there is nothing like a fall drive through the Ozark mountains of southern and central Missouri. Tony, stopping LV is on my...
Here is the costs of my chemo treatment on 1-05-09: $24, 347 total bill $12, 479 insurance discount $600 deductible $9,507 benefit available $2,971 patient owes Yes it was a great start to the year!...
Dale Great post! I agree completely that's why we spent last weekend in Chicago. It rained most of the time but we made the most of it. [I have a list, but can;t call it a 'bucket' list. That infers...
I would like to add the we, men, are at fault here. Particularly when Sonny related the story of the breast cancer survivor. If men were more vocal, and responded to these issues as a group things...
I tried to find the old thread about my status but couldn't? Anyway, one month on HDK+HC and my PSA fell 10%!! Down to 88, high yes but the trend is broken and I'm feeling really good! Peace, out...
Speaking of Facebook - I have added my profile to my signature - good place to meet up, exchange things, Tony, you agree?...
What a stupid post! OK, just kidding, making sure you are all paying attention! It is one of the best posts I've seen in a long time (IMHO). How we cope is as different as we are individually. I...
I started a list right after I was diagnosed: 1) Go to a Super Bowl 2) Travel to: - Italy - Paris - Ireland - Poland - Hawaii - Alaska - Grand Canyon - fly fish in Montana - NYC w/Mary 3) Meet a...
Worried Guy - a great place to potentially meet would be the PCRI.org conference in LA in September. I went in 2007 and met a few folks from different on-line forums. I also walked away with a tom of...
Very cool Dale!!...
I smile on the outside too! Particularly today, my 18th wedding anniversary!...
Not to minimize the seriousness of your situation, but as Tony points out there are a number of guys out there with G9 that have survived many. many years. In Milken's case he did have lymph node...
I guess I need to find more time for HW, didn't realize I was referenced in this thread until tonight. Here are my thoughts, a layman's perspective; With a PSA of <.03 the number of prostate cancer...
It's been a while since I posted or even commented on a post. I have been enjoying my free time with family and have become fascinated with Facebook. Don't laugh, the fastest growing demographic on...
I hope this passes the forum rules since I'm not asking for $? My PCa foundation held our second annual disc golf tournament of May 9th. I put together a movie with music and 330 or so of the best...