Hello August Buddies, I have been a little MIA of late and apologizing although knowing I don't need to. A bit of denial, a bit of separating from this illness, a bit of life getting in the way. But...
Good luck, Pog. We look forward to hearing about your scan and your visit with the RO. So happy for your dry weekend! Judy...
TinFoil, Congrats on a great path report. Hope the healing goes easily. We used the bucket trick for the big bag at night near the bed but M preferred to wear the bag on his leg under loose loungy...
Thanks Josh for the update! Please let dad know we are all thinking of his recovery and sending positive wishes his way! Judy...
PCa is a "slow growing cancer" says most of the world - except for those of us who have had the misfortune to have it grow aggressive within a short period of time blindsiding us completly!...
So exciting about your news, Ray. So happy to hear you are in the Zero club! Hoping we are right behind you! Our PSA is in 3 weeks. <<< nailbiting is continuous>>> Judy...
Mr Bill, Glad the cath is out and you are on the other side. My husband had his Robotic surgery on 8/26. 3 weeks now and slowly but surely his energy is returning. He goes out for a few hours at a...
David, your courage astounds me! I learn a great deal from how you handle your life, your trials and your challenges. I am grateful you post so openly and so heartfeltedly. I wish you as easy a time...
Surreal is the word I used when we found out. Hang in there and once the biopsy results are in you can step back and make some real decisions based on good investigation. You are in the right...
It always surprises me how aggressive this "slow moving cancer" can be. Most people I have talked with say "Oh, it's great that it's JUST PCa. It's slow moving and he won't die from this". Well, of...
I appreciate all the commentary here and I can see both sides of the equation. Fair, I appreciated your grid and also felt you were spot on but I do believe that younger men need to be concerned...
Good luck tomorrow Anxiety .. My husband didn't think it was bad at all .. I was surprised.. and like Fair said, I think the wierdest for him was the blood in the urine and especially the dark semen....
Fair, so glad the cath is out and it wasn't so bad... M had 105 when his cath was taken out and didn't feel a thing! We are right here with you and looking to a long journey but one where the more we...
Best of luck tomorrow Billarb.. we are all here waiting for your return. You are ahead of the game in that you found this website before the surgery .. it helped get you to the right docs, buy the...
The only thing that worries me about AS is that as you are "watching" things can take a turn quickly. When M's PSA was 1.7, 1.8, 2.2 no one said a thing. It's WAY under 4. Then we watched it go to...
Aimzee, so glad Ron enjoyed his visit with the grandkiddies... it's so important for his recovery to enjoy as much as he can. I'm still so sorry he has the kind of pain and fatigues he does. Hoping...
Thanks Ed. And, good luck on your 6 week visit. M actually had an orgasm tonight w/out an erection. It was strange but enjoyable he said. I think any activity is good as it gets the blood going down...
Thanks much, all! I didn't mention but both people at both Sloan and Robert Wood are medical oncologists who specialize in prostate/genitourinary cancers. Gordy, We will look at Basking Ridge but...
Ok, so I apologize in advance if this question sounds simple but ... We are at the point now in our recovery where we are looking to choose a medical oncologist for follow up treatment for a very...
It sounds to me like the consensus is not too much information from the mouths of our docs .. but I respect all who share their own experiences and trust deeply your own anecdotal records...left...
Hi All, Yes, I have started other threads and received some good feedback, but I think there are 2 kinds of threads. This one, has been a collective sharing of people in relatively the same spot in...
Thanks Fair! I know those G8's and G9's puts it all in another perspective. I will dig out Walsh's book again. Promise!...
Thanks David. I'm sorry you have had the cath in for so long. I read your journey with each post and just cannot imagine the discomfort and frustration. I'm glad however you didnt have issues with ED...
M's Robotic surgery was 2 weeks ago. He has some leakage - more now that he is more active - but still not even saturating a pad. He wears a pad over the depends just to be sure and changes it...
Hi An, Thank you for thnking of M. His fever was gone in 3 days and still not sure what caused it but he has actually been out of the house a bit each day. He even drove us somewhere yesterday...
HI Fairwind, I am so sorry to hear the report was not as good as we had all hoped. You know M is virtually in the same spot. I am hoping your recovery from the surgery is going well. Our doc said the...
Hi All, Infection is gone. No fever 2 days running. He is feeling when he has to pee and is not soaking through one pad but changes regularly just in case. This is good. Now, to find a PC specialist...
Fairwind, you are in my thoughts and prayers. You have been here for so many myself included and now we are waiting to hear good news from you as well. Rest, drink, walk and heal quickly! Judy...
Hi all, I was so ready to run to the ER last night but decided to take a watchful approach through the night knowing the tylenol was keeping it down to 102 - 103. So happy to report that we made it...
Hi David, I didn't give the full details perhaps. We DID see the doc yesterday and he took an ultrasound of his bladder. All looked good. He gave M an injection of antibiotics to go wtih the Cipro. I...
So interesting. Just read the thread about the things they "leave beind". My husband is having high fevers and we really don't know why. He is urinating fine good color. good amount. no bad smell....
Aimzee, so happy to hear Ron had 2 dry nights. Every step in the right direction. Of cousre sorry about the continued pain in his testicles. Im sure it is uncomfortable and might also be waking him...
Geezer, I totally get it. And thank God every single day that we chose to have that beast removed! I am impressed with the amount of control he has already. He can't stop it but he knows when it's...
Jeff, y ou are so right. Even in the face of bad news it's important to know there is hope and to see that others are struggling with the same decisions on treatment. We must share our experience,...
Thanks all for the care and comments! I came home today from work to take M to the doc to get the cath out and found him chilled and shaking and sporting a fever which HAD to be over 103 .. he was...
HI, Some know that hubby went for Robotic surgery last week. Path report is back and we were surprised to say the least. Yes, we knew there was "a lot of cancer in there" (said the doc) but he also...
Hi all, First let me thank you all for your comments about friends not showing up when they should.. some have .. most have nothing to say .. people are afraid ... to say the wrong thing .. Aimzee so...
Hi Tinfoil AND Pocketman, I totally know what you are talking about .. the fear completely over took us .. my husband diagnosed end of June and surgery last week ! Prior to the surgery, my first post...
David, my thoughts and prayers go out to you and hopes that the pain subsides. I cannot imagine the frustration and angst you must feel having to deal with it all. I am amazed at how open and giving...
Aimzee, waiting to hear about Ron's progress. M has stopped taking his pain killers altogether and is doing a great job of changing his catheter bag while I am working. He spends lots of time alone...
HI, My husband just had DaVinci on 8/26 and was released from the hospital the next day. He used Percocet in the hospital and Oxycodone every 6 - 8 hrs for the first 2 days. After that, no pain...
It's amazing how the small things make us happy. Great news from the GP. Having a strong heart is a fabulous thing! Judy...
Very encouraging to us all, Arch. So very happy for your progress!...
Hi, My hubby (age 56) PSA's were similar starting at age 50 - 1.5, 1.7, 1.7, 1.8, 2.2, 2.5 and 3.2. Once it got to 3.2 the doc asked us to check it in 4 mos when it came back at 5.8. Positive DRE at...
Hi All, M is doing amazingly well. He has been eating soft foods - lightly throughout the day - no BM yet. He is taking colace twice a day. His level of pain also amazes me. He has been using...
Hi All, Thank you all so much for your concern and support. I wasn't on much over the last few days enjoying time with M and preparing all the post surgical things we needed in the house. I am happy...
I wish you luck Retire .. you expressed yourself beautifully .. I so totally agree.. "We have to make decisions with incomplete information and face outcomes that are also somewhat uncertain. The...
NEIrish, Told you M and I are right behind you ... congrats on being a big fat ZERO!! So very happy to hear the great news. Keep up the great work - you two! You give hope to us all! Judy...
NEIrish, Hope the news tomorrow is good! (fingers crossed for your entry into the zero club) I totally get the comment "addle brained comments and advice" from well meaning friends .. I am amazed at...
An, Thank you for adding M to the list on 8/26. Ger42 we are connected across the miles my friend for same day surgery. What a wonderful idea to share the month's surgery dates and share in thoughts...