Friday I go for my second cell collection for Provenge. First one went very well including the infusion. No serious side effects. Just some tiredness. I am Alison on Lupron and Zytiga. My last PSA...
Thanks Tn.Lee. Have you had any side effects from the Provenge. Best of luck to you and fight on....
Thanks Faustman. Have you had any side effects from the Provenge? God bless and fight on....
Thanks Thomasjohn for you reply. I go have a port and they will use it for the infusion on Monday. I have not tried Xtandi but the Zytiga has me about a tank halful on energy. Yes I am in Southern...
Just had my first collection today for Provenge. Dr. Lam now has me on Lupron, Zytiga and now Provenge. Anybody else following this protocol?...
Looking to see if anyone else has done a clinical trial with Keytruda. If so I would like to know what you experience has been and if your PSA goes up after the first infusion does it that mean the...
The drugs are Lupron, Casodex and Adbodart. I am also taking Metformin, Celebrex and Lipitor. The chemo is Jevtana....
Forgot to give my stats....
I have been on triple blockade for the past 7 years. Dr. Lam put me on Jevtana plus triple blockade to buy me more time on triple blockade and my PSA went from .4 to 1.4 in 2 months. It seems strange...
I just came off my 5th vacation. My vacations only last about 7 months. I am currently a 7 1/2 years survivor of G9 4+5 cancer. Dr. Lam has now ordered Jevtana along with the Lupron. He is trying to...
Coming up on 71/2 years. Currently on ADT vacation. Gleason 4+5. Keep fighting the battle if your breathing you have a chance. Fight on....
I was in the punch clinical trial at City of Hope 7 years ago. It was a combination of ADT and chemo than a prosectomy. I am a Gleason 9 4+5. Although the trial failed as far as my situation was...
Another promising clinical trial. Inovio Pharmaceuticals Initiates Clinical Trial of INO-5150 DNA Immunotherapy for Prostate Cancer...
As I sit in my hotel room in Arizona after completing the C 11 acetate scan I am wondering after 5 years fighting this beast what the chances are of having boneinvolvement. Still no signs as far as...
Just came off my second vacation also short lived at 7 months for both. This time Dr. Lam ahs suggested the C-11 acetate scan. I have started the process of making an appointment. Hopefully the...
I'm part of that G9 crew that Andrew is talking about. I just came of my second triple blockade vacation with each one only lasting 7 months. Also my PSADT is about 2 months. Dr. Lam had me try...
Thanks Jim, I will look into the F-18 for sure. Thanks Michael, Soon we will all slay the beast. FIGHT ON...
Jerry The T starting coming back around the third month of vacation on both of them. PSA started rising around month 5 on both....
Thanks Andrew, We might lose some battles but we will win the war. Loads of options left. Including going back to triple blockade. Cancer is still responding to ADT....
Celebrex has been shown to slow down PSADT....
Just got my latest PSA back from Dr. Lam and it is now 1.1. This was my second vacation but both lasted only 7 months. This time we tried both Metformin and Celebrex to help pro-long the vacation but...
congrats Devastated. Let me add that I am also a G9 going on 51/2 years. My last PSA which was at the end of July was <0.1. I am on my second ADT vacation going on 3 months. The beast can be tamed...
I to am a G9 going on 51/2 years this month. With a great support team, great doctors and help from the lord above it can be done. Congrats devastated. FIGHT ON...
Dr. Lam has me on Metformin, Celebrex, Lipitor and Advodart. I am currently on my second ADT vacation and am currently into month 4 of it. My last PSA was at the end of July and was <0.1....
Thanks for all your replies. I will take the advice and just play golf instead of moving that certain way. I see Dr. Lam on the 4th of August and will bring it up with him....
I have recently have had some pain in my lower right back. It only hurts when I move a certain way like a nerve is pinched. It doesn't hurt while playing golf, bending or when sleeping. Is this a...
Scholtz and Lam in Marina Del Rey...
I am on ADT vacation my second one as well. Dr. Lam also mentioned that maybe I should go to the chemo + Lupron route when I start to have a PSA rise. I was in the punch trial at City Of Hope 5 years...
Fairwind, I have be following you since I joined the board. Our stats are somewhat similar along with all the failed treatments we have tried. I am 34 month into triple blockade but I am doing it...
Mel, I to am a patient of Dr. Lam and I am on my second 3adt vacation. The first one lasted 7 months. My response to ADT has been very good both times getting to <0.01. This time around he has me...
One more T3B for you. See my signature....
Hi to all the G9 crew. I just had my visit with Dr. Lam and I get to go on my second triple blockade vacation. My PSA is currently at 0.018 so I did get below the magical .05 for the second time. Dr....
Well it all started 5 years ago today. My journey down the path of PCA. As you can see by my signature I have been through the gaumet of treatments like so many of my brothers here. I am currently on...
Walk my daughter down the isle. (May 3 2014). Polay the old course. Play Agusta National....
Tony, I had blood in urine about 10 months ago. Scared the out of me. What I had was radiarion cystitus. Forgive the spelling. This can occur from 1 month to10 years out from radiation. It took about...
Biopsy showed 5+4. Path showed 4+5. What a break I got. Went through a clinical trial at COH. This is my second go round with cancer. First was Non Hodgkins Lymphoma. Since I beat that I thought it...
Yes and Yes again...
I know Lab Corp. does them if you have one in your area....
We are SC. FIGHT ON...
The original trials were done some place in Mexico. I forgot which city. If I remember correctly it took a week to have the injections. At least that is what I remeber....
This is really interesting. I spoke with one of their Doctors about a year a go to see if I could get in the clinical trial. I was told that I couldn't due to PSA being to low. It lookd like they are...
Dr. Lams nurse gives me mine....
I see you live in LA. I am in Orange County. What many consider a couple of the best urologists that specialize in PC are Dr. Scholtz and Dr. Lam are in Marina Del Rey. I suggest you make an...
Jerry I am taking the 1 month shot. I like to monitor it very closely since my PC is very agressive. My first vacation lasted 9 months. Just enough time to lose the side effects then went right back...
Yes Jerry this is my second go round with 3ADT. My PSA at the start of this session was .974. It is now at .058 after 2 months. Thanks all got your replies....
Can testosterone levels fluctuate when on 3ADT. First test showed testosterone was at 11ngl now second test 1 month later shows 18ngl. I know it is still castrate level but wondering. Dr.Lam said...
We live in Cypress California. It is a part of Orange County. We are 5 minutes from Disneyland and Knott Berry Farm. Twenty minutes from the beach and 1/2 hour from Dodger Stadium and the Staples...
Randy, I to am a G9 and going on 5 years with a QOL that is wonderful. It truly is what you make of it. I find attitude is everything. I have gone through Non Hodgkins Lyphoma and now prostate...
Paid $1000 for a 1963 grey VW in 1968. Also in 1968 I remember gas being 25 cents a gallon....
I have been married to my best friend for two years but have lived with her for the past 12 years. She has helped me through Non Hodgkins Lyphoma and now Prostate cancer. She has put up with my...