I’d just like to again say thanks all you folk who responded to my previous post titled “G'day to you all” on August 3, 2013.There is not a great deal of good news following my recent procedure –...
I thought I might post a line or two to let any of my ‘old pals’ know where I am and what I’m up to. And perhaps provide some insight for newbies on some aspects of medicine as practised today. I...
No worries Hanmei. What I cannot understand is why Prostate Cancer Foundation of Australia refuses to acknowledge the site or provide a link. Yet if you go to Support Groups you'll see that the only...
It is not a Forum, Hanemai. The URL I gave is to the index page of the section of my site where men relate their prostate cancer experience from the time they are diagnosed. They provide updates to...
12 minutes, not 30 - and some very interesting questions. I know, from my experience of running a Forum how people object to completing questionnaires, but I don't understand why. 12 minutes out of...
One of the difficulties in setting up a website is that you are never certain how anyone gets onto the specific pages of the site and how they then find their way around the site. I have recently...
Errr......the British used to imprison rebels, traitors and even some of their Royalty in the Tower Of London and I reckon a Tower might be the ancient equivalent of a penthouse. And what abour...
Tony is a knowledgeable man on matters PCa related, but he seems a bit of course on geography. Australkia is actually at the TOP of the world (and is ahead of the rest of the world, but for a few...
Thanks for the kind words. I just want to add one point. For years I have tried to get the PCa organisations, like US-Too and the rest - to publicise the Survivors Stories section of the YANA site....
As the number of men sharing their stories on my site (YANA - You Are Not Alone Now www.yananow.org ) kept growing to over one thousand, I knew there had to be a better way of handling the task of...
I too wondered whether it would be possible to develop a scanning mechanism that could be allied with this concept. But I did think that it might be possible, if this experimental use of 'dyes' was...
I have been a bit busy of late and may have missed some posts on what seems like something that could resulting an amazing change in the way surgeons identify tumours – and the nerves for nerve...
Thanks Guys - and especially for the study Sonny - that made very interesting reading. I'll be updating my Yana and myProstate entries later today or tomorow but essentially, my PSA has been rising -...
I’ve just had my fourth bone scan, which was clear this time – the last one had an area ‘suspicious for metastasis’ which was enough for the oncologist to accept it as definitive. But….knowing how...
I was wrong. When I said I was closing the Experiences pages of the Yana site for new entries or updates of existing entries I thought that everyone would transfer their stories to the myProstate...
Kev, It is a "Don't Panic" Button actually:-) Thank you for your kind words guys. I really appreciate the sentiments that you express. Just a couple of things that have come up from mail to me: 1. If...
When I was initially diagnosed in 1996 I was told that I could expect to live 3 – 5 years if I did not have immediate invasive therapy. I did not accept that advice. Once I had learned a little, I...
OK, OK, you youngsters have no respect......... I too thought it was an excellent survey when I completed it....when was that....some time back I think????? Should have realised you were so far ahead...
I was taken to task by the Director of Marketing & Development Dattoli Cancer Center & Foundation for my post on the grounds that their site on the grounds that there was nowhere else that supported...
Regrettably, I have not received the promised studies from Dr Dattoli that demonstrate that the statement Studies indicate that the younger a man is when diagnosed, the higher the chances are of his...
There is a page on the Dattoli Center website which lists and compares virtually all available therapies for prostate cancer at TREATMENT REFERENCE CHART The relevant entries about surgery clearly...
Tony, There can be no disagreement here because I am not arguing about anything. I have said absolutely nothing about if it is wise or not for a young man to defer therapy, no matter what his...
I have to say I'm not too interested in Breast Cancer, but Prostate Cancer. I got to my mail asking for details of the rellevant studies referred to in the mail from the Director of Marketing &...
Ever since I was diagnosed as a ‘young man’ I have been told that tumours diagnosed in young men are more aggressive than those diagnosed in older men. At the time of my diagnosis I and another...
.... And YES, Tony, I think an update would be in order! Good news is always worth posting!...
Kev, That's not a "PANIC BUTTON" It's a "DON'T PANIC BUTTON." There is a difference :smilewinkgrin:...
Thanks for the kind words, David. Ooops. that address should be YANA - You Are Not Alone Now www.yananow.org...
For the sake of any newbies I’d just like to mention that my YANA - You Are Not Alone Now www.yananow.net site has contributions from more than 1,000 men giving their experiences following their...
No, no, Tony - after all I have been to Vegas, so can face up to anything so I'm not giving up but...you can lead a horse to water but you can't make it drink I just thought that I might get more...
Thanks Guys. Maybe it wasn't such a good idea, given the response. Apart from Rob Parsons, only one other person has listed any books - this after posts to Forums and Lists with more than 3,000...
I have set up a page on my site that I hope will work. If you go to PAY IT FORWARD BOOKS you can either detail any spare books you might have or ask for any of the books that have been listed already...
A recent post to a prostate cancer FaceBook page got me thinking about all the thousands of prostate cancer related books that must be lying around the world. :idea: Men will often have read these,...
Every now and then there are discussion about the theoretical level of ultra-sensitive tests after surgery and when these should trigger salvage therapy such as EBRT (External Beam Radiation...
Rob, You are correct when you say that I have collected a good deal of informaiton over the years and that I am indeed sifting through it. What my posts to this and other Forums is about is checking...
Regulars will know how often we say “Don’t make a decision on one PSA result. Look for a pattern.” That advice is rather ironic in the light of my latest result – 2.9 ng/ml. Is that a good or bad...
Most men who have been in this Forum for some time will be aware of my (strictly non-commercial website) YANA – You Are Not Alone Now Originally set up to provide basic information in clear language...
Thanks for the input Chris. I always appreciate such comments. There are two aspects I considered in this reagrd. In the first place, there is a limit what can be put in one line without that line...
Thanks guys. I think it is a worthwhile site although over the years many of the 'scientists' mong us have argued that anecdotal evidence has no value and that it is very dangerous for anyone to make...
What a trip indeed!! Anthea says it is the last - but then she also said that in May last year when we got back from the US - and less than six weeks later spotted the ad for our winter cruise!!...
My apologies, Tony. I should have realised that you would have got onto it and checked before I posted!! I'll post another link then. If anyone wants to see what I got up to on my vaction can go...
Before I went on my recent vacation I set in action a project to make some significant changes in the Yana site. These were aimed at allowing me to process information more rapidly as the numbers of...
As my dear old Dad would have said in the circumstances: "Don't confuse me with the facts - I've made up my mind" :smilewinkgrin:...
So! Given that worldwide there are very similar PCa mortality rates - between 3% and 4% - does your "intuition" tell you that this is a worldwide conspiracy with some hidden figure controlling all...
Errr..... Would that be high-intensity focused ultrasound ( HIFU ) ?...
Thanks Ziggy. I hadn't seen that piece. Very interesting....
I had an enquiry off my site for more information on Laser Hyperthermia treatment by a newly diagnosed man who said he was surprised that none of the men who contributed their stories to the site had...
Great that you taped your meeting - wish more people did that (with the doctors knowledge and permission of course). Earlier this year I was providing input to one of the (US not Australian) doctors...
Bronson, At 14 years plus I would regard myself as falling within your definition of a long term survivor I certainly embrace my joy of life as I have written and said for years. I keep putting out...
What do you not understand about the constant spinning of pollies? But here's a thought, IF the 'dissident voices' being raised about BCa are correct and there IS over-treatment of that condition,...