I have been on Lupron for a year now -- another shot next week. Overall I feel better than before -- the ache in my leg (mets?) has largely disappeared. Apart from hot flushes (only mildly...
The positive for me that the negatives are not nearly as bad as I thought. No libido, but I don't care, and I have found lots of other interesting things to do. Hot flushes are minor. An ache I was...
David, As you and I started here about the same time, I often read your threads, usually without comment. Unfortunately, any advice I have has already been proffered by others, so nothing new from...
Doug: Your stats are quite similar mine in the signature below, but I am six years further on. Good luck with the surgery....
First ene, welcome to the forum. I suggest try a pump (also called a VED -- Vaccuum Erection Device). Doesn't have to be expensive. Mine was a cheapie from an adult store and after a few running...
Instead a cock ring, consider using office rubber bands. I have used them with my VED for about 6 years. Mine are about 1/8" wide and 2" in diameter. I use 3 or 4 doubled over. Need more or less...
Thank you for the support everyone. We each have our own journey with PCa, some on parallel paths and others on widely divergent paths. We will all die eventually, and those of us advanced guys will...
I haven't been around here much lately, and as today is the sixth anniversary of my PCa surgery, here is an update. History Just over six years ago, I went to my doctor about a lump on a testicle and...
A little off topic but still cemetery humor... A light plane crashed into the cemetery today. So far they have recovered the pilot and 1867 bodies....
I'd also watch for colorectal cancer, which I have had. I have seen suggestions that PCa and colorectal cancer are linked, but this may be nothing more than the same lifestyle factors leading to both...
Thanks for that input. I have not tried the oral method, never for a moment thinking it possible to generate enough suction. An ounce of practice is worth a pound of theory! The pump part of my...
I have used a VED for sex and exercise for four+ years now and it works well. A cheapie made in China -- might have been called Handsome Up, but I've long forgotten. It has needed a few running...
I intend to live forever. So far, so good. Stephen Wright (American Actor and Writer, b.1955)...
Wondering, I am in a similar situation to you, except that my PSA rose from a zero base and I did not have radiation. Now it is a waiting game, waiting until my PSA gets to a high enough level to...
I started using a VED about 6 weeks after surgery and have used it fairly regularly ever since, now about 3 1/2 years. Have never had any incontinence issues. Obviously I empty a full bladder before...
Congratulations Mal! Whatever you are doing, keep on doing it....
This thread from a year ago indicates that M&Ms may be an excellent placebo ~ they work for children too :-)...
I don't rush to phone the doctor's office to find my results. But if I had a latest result in an envelope, I'd open it. Regardless of whether I know the result or not, my future course is charted. If...
David, your PSA is much better than I predicted and I am happy to have been proven wrong. As others here have noted, your PSADT is slowing which has to be a positive. Just as well as you weren't on a...
Only one wish so I'll make it a big one: health and happiness for all in the world. Except those who do donuts outside my house at 2am :-)...
As one who also has a rising PSA, I have applied my back-of-the-envelope methods to your numbers. You had a fivefold increase in four months. Assuming that rate continues, but slowing down slightly,...
I regularly use a cheap VED without any lubricant at all. I guess it depends on the pump, your anatomy and technique. (Secret: give everything a good shake to stop skin sticking to tube.) If you...
RayPat, sorry to hear your news. I have been down a similar path with colon cancer, and can tell you (and MiraBeau too) there is still plenty of hope. I had surgery five years ago, also had a spot on...
Robertcool, I like hummus for snacks too, especially on crackers with Marmite (or Vegemite) for a bit of extra zing. Dreamerboy, You have had a good reduction in your PSA in a period that might be a...
9 month update: Latest PSA is 0.7, up from 0.6 three months ago. Estimating when my PSA would have been 0.35, I get a PSADT of 11 months, a slight improvement on my previous 9.5 months. I still feel...
Congratulations Tony. Of course it's too early to be thinking about "cure", but looking good. Go celebrate with a salad ~ low cholesterol dressing :-)...
It's interesting to hear the latest news from Squarf, still alive and well as of this year. He disappeared completely for a while, and I wasn't sure whether PCa got him, or whether he continued with...
For those getting inconsistent results, I would suggest a few office rubber bands or a VED ring around the base of the penis at injection time and for a few minutes afterwards. My theory is that it...
Nearly four years ago with non-nerve sparing planned, my uro mentioned this, and I got the impression it was not very effective as well as expensive! And I didn't fancy the prospect of a sore leg as...
Another thing I would ask about is testosterone testing, before and during HT....
El Chele, another welcome to the forum. My uro had me with my first injection exactly one month after surgery ~ and no ill effects :-) But your uro may have reasons for delaying. If he won't...
Mel, I also am sorry to hear your latest result. But to put a positive spin on it your PSADT seems to have slowed a little, something like a 20% slowing if the figures hold. Worth having! When I...
I always was a one-trick-pony, and too bad I never discovered the extra tricks to be had with Cialis. :-) Double bad, as Cialis now gives me zero tricks :cry: To answer Alf's questions: Can I get an...
Hi Cepas, Any treatment has side effects and brachy seems to offer you a better choice than surgery. Close to zero chance of incontinence, and at worst, delayed ED. I don't know whether you have...
I don't want to rain on your parade but like Zufus, I think you are over-optimistic about the cure. All of us here at best are "in remission" and are never "cured" until we die of something else (my...
Suppose you have an identical twin brother who is diagnosed with PCa at the same time as you, and you have treatment while he does not. If he dies of PCa and you do not, then you could say that...
I'm not a doctor either, but to me, with your low Gleason and undetectable PSAs since, it seems unlikely that your PCa would have spread to your bladder. There is a remote possibility of a completely...
James, I would take this as good news notwithstanding your doubts about the quality of the most recent results. You had an upwards trend becoming established and peaking with two results over 0.1....
Jerry, I am another Gleason 8 trying to postpone HT for as long as I can. Congratulations on the stable PSA ~ if you can hold it there, that is as good as a cure....
Sfigato, I like your analogy of the three-legged chair. Unfortunately all conventional treatments carry side-effects ~ and other treatments might mean losing a different leg, or the same leg but...
Here's another with zeros and deafness: A guy goes to his doctor: "Doctor, I have this terrible flatulence. Ferinstance, while I have been sitting here I have farted 5 times. But fortunately...
With the benefit of hindsight, I don't think Steve Jobs did the right thing in delaying his surgery. His survival time ended up being shorter than the 10-year norm. I think the vegetarian diet, at...
This previous thread is also relevant. It is interesting the spin different sources can put on the same story ~ this source makes it seem like a miracle cure. But the treatment is only for advanced...
Don't fix it too soon ~ you'll enjoy it in the winter time :turn:...
Just remember you will be on top of a super-volcano and it could blow any century now. It would be much more effective than the grizzly in ending your PCa. :-) Good luck, and enjoy the trip....
Welcome to the forum, John, and sorry you have to be here. Your symptoms resemble those of advanced prostate cancer, but it could also be a kidney problem. One low-cost test that you could have is a...
I agree that 0.51 three months after surgery is not a good result. However, it is all too easy to get the numbers screwed up with the decimal point in the wrong place. So the first step is to confirm...
Carl, I am basically on a vegan diet, the one exception being oily fish, like salmon, once a week. Vegan means no meat, dairy, or eggs and normally no fish. My story is here: Vegan diet - some early...
Carl, It has to be a good sign that your PSA dropped prior to surgery, and let's credit the Provenge in part for that. It's also good that your PSA dropped to undetectable after surgery ~ that means...
I also don't recall anyone here having had the Provenge, so you are a trailblazer. It seems a promising class of treatment, so I too will be most interested to hear how it works out. You didn't...