My Dad had the same dx almost 10 yrs ago. His PSA was only 9. They say the Gleason 9s sometimes have lower PSA despite the aggressive nature of the cancer. Dad's been fighting for almost a decade....
I know you’re discouraged but my Dad has a similar dx to you -G10, PSA over 9- he’s still doing well almost 10 years later. It hasn’t been a walk in the park but he still travels, does what he wants...
I agree that you need medical assistance immediately. My dad had spinal cord compressions and thankfully with radiation he was able to rid the pain. The doctor told him if he didn't take immediate...
Purgatory, Just want to wish you well as you take a break from the forum. Although I do not post frequently I always look for your posts when looking for advice for my Dad. Wishing you well!...
Allen and Sal, Thank you so much for the info!! I will check out the other thread and am interested to know your journey and what to possibly expect. Currently the radiation is kicking his butt with...
For some reason, I can never find my old posts to update on :-( Anyhow, this one is a different topic anyways.... Dad had the radiation for the spinal cord compression - 10 treatments. Doctors ran...
Hi Kathy, Welcome but sorry you have a reason to be here. I know your worry as my Dad has PCA (Gleason 9) as well. Some encouraging thoughts for you, my Dad was dx in December 2010....stage II3B. He...
Thank you everyone. He started radiation treatment - doctor thinks 10 treatments will do the trick. Waiting on CT and bone scan for next treatment options..... his team is thinking Xofigo.... or...
Hello everyone, Searching for some advice on some news we received. Dad has been having alot of back pain. Onco. ordered an MRI and called right away to say the cancer is pressing on the spinal cord...
As you may recall Dad recently did a clinical trial - which proved to only aggravate the cancer, his liver, kidney's etc. The drug (Galeterone) was basically a cross version of Xtandi and Zytiga as...
Will update on the results as soon as we hear. His next appointment (by the Clinical Trial date) is not for 2 weeks - so we may have to wait until that appointment to hear....
I promised I would given an update on the clinical trial and Dad... so I thought I'd check back in. The drug again is TOK-001 (Galeterone). Phase I of the Clinical Trial was very promising (although...
I guess I should add to the signature --- he has been on Zytiga for the last year... PSA has risen to over 10....
I've been absent from the board for awhile; Dad had an appointment today and the doctor is recommending a clinical trial of Galeterone. Apparently, it's a Phase II trial and the drug acts like a...
Hi everyone, Dad's PSA has been rising steadily for the last few months (his treatment is Lupron and Zytiga). However, after the first rise in PSA the CT scan actually showed the one lymph node...
My Dad's situation was similiar to yours but he was a G9 (5+4) at that. His doctor skipped radiation because of his incointence and along with the fact he was on catheters for several months. They...
I am so saddened to learn about this! Prayers for his family at a difficult time! May they find peace knowing what comfort he provided to others on here! One of a kind for sure!...
I would try Karmanos as well. We are with Dr. Elisabeth Heath who is head of the Prostate Oncology at Karmanos in Detroit. They also have satellite campuses so you may be able to find one in...
My Dad takes Xgeva and Zytiga together. He started last month - so far so good. No bone pain. They told him he could not take Prolia and Zytiga together that it had to be Xgeva instead. They didn't...
Try to find a "non-profit" cancer research center. They receive funding grants for that purpose and can take money from the grants for patients who need assistance with medication. I'm not sure where...
Learning Quickly: My Dad is a G9 with a rising PSA right after surgery. There was a disconnect between where his cancer was (lymph nodes or bones) since the CT was clear and the bone scan at first...
Zufus, One thing we learned about bone scans and lesions was that depending on where you had them read at you might receive totally conflicting information. For example, the bone scan that was read...
Vyo, My Dad has been battling Stage IV, Mets Cancer (G9), 12 of 12 cores, since the end of 2010. DaVinci surgery failed right away and Lupron only kept the PSA at bay for 18 months. He's getting...
JohnKeats: Sorry to hear you're in the same boat. Onc. said the bone scan showed a much "clearer" picture. The cancer is more solidified on these scans and mets is present in the spine, ribs...
InfoHound: We were just at the doc with my Dad and asked about bone pain (he too has a rising PSA). The Onc. told us bone pain that comes and goes is likely not from the cancer. It would be more...
I haven't posted in a while about Dad - although I do check up on everyone regularly. We had an appt 2 weeks ago. PSA was up from 0.6 to 2.7 (YIKES). Doesn't take a doctor to realize that's alot in...
You can get PTSD from anything that happens. The mind is a funny thing and even when we think we are "braving" something the body can be affected. If you think you are suffering from PTSD or know...
That bone scan report looks pretty good. When I read Dad's it said "consistent with metastitis" throughout... so the one above looks good!...
Prayers for you and your husband C.C!...
SteelGuy, Please consider researching Dr. Elisabeth Heath at Karmanos Cancer Institute in Detroit. My Dad is a G9, Bone Mets and she has been a Godsend to our family. We live 5 minutes from U of M...
When I get my blood results it will normally state whether or not it's in "normal range" (for any type of test). Our lab then gives the normal range and will issue a "H" or "L" after the number if it...
Hi all, Been a while. I frequently log on and check up on everyone, just hasn't been much new with Dad, except he still has the cough I mentioned a while back. Crazy enough, we met with the...
Mark_D: My hubby had the same thing a couple years ago. He was lifting a piano and tore his labrum. He has a hip disease which complicated matters (has had both hips reconstructed already). They...
We met with the oncologist yesterday for Dad's appointment. 2 weeks ago when it was time for Dad's Lupron shot his PSA had risen from .03 in January to .19. At the oncologist yesterday they tested...
Awesome news!!!...
Fairwind, The urologist does the Lupron shot by our request. It's a 1/4 mile to his office verses 30 miles and downtown Detroit for the oncologist. The uro is out of our local (yet very well...
Thanks everyone! To answer the questions: Southern Comfort: I previously asked them to check his testosterone and they did. I do not know if they checked it this time. I will have to have a look at...
A friend of mine's...friend.. has this. She's 43. I will find out who her doctor is....
It's been a while but I have a question about PSA and Lupron. Dad went to the urologist today for his shot and his recent PSA test the PSA to be .19. (The test was last week Fri). The previous PSA...
We met with the oncologist again yesterday. The goodnews is the PSA is <.01 so we are elated that Dad is still part of the "zero" club. She is recommending "Prolia" which apparently is simliar to...
Firecracker, Sorry to hear about the report. Positive lymphnodes means the cancer did extend beyond the prostate capsule. Next step will be to meet with the doctor, I would reccommend also finding an...
F8, Yes! Thank you so much!...
Hi All, A few weeks ago someone posted a link to the blog of a HealingWell member who also has a blog and foundation of some sort (i think it has to do with bracelets)? My point... I can't find that...
Hi All, Has anyone experienced high blood pressure after starting Lupron? We met with the oncologist yesterday, no real "new" news. We just discussed what she told me over the phone w/Dad. My...
Mr Bill, I remember the post too...think I commented on it. My Dad's PSA was only 9.7 when they found his cancer, he was a Gleason 9. At the time, abnormal bone scan but uro wouldn't confirm mets. We...
mydadhaspc, I second what bestdadever said -- positive wishes your way. My dad also has prostate cancer, just found out a couple weeks ago it is now "confirmed" in the bones. We have an appointment...
Interesting but I can tell you my Dad has never ate an egg in his life, won't even eat chicken, never has (and I do mean never)... and he was a Gleason 9 so while it could be true that eggs are...
Hi logo, He does not read these post. I wish he would but he doesn't like to talk about his PCa or read about it since he finds it overwhelming and depressing. I think he's afraid to learn more...
Logo - Thanks for the suggestion about the signature. I've input it and hopefully it appears upon submitting the post. Dad's spirits are broken right now. He usually rebounds quickly but this is a...
Fairwind, I am printing this out and putting it on my list of items to ask about at his next oncologist visit. We have only really consulted with the oncologist up to this point...previously he was...