Thanks for the information and support. I did find a bladder cancer support group on the American Bladder Cancer Society web site. They have been very helpful. I also have had some good news. My Uro...
Hi all, had two cancerous tumors removed from bladder last week with a non-invasive TURBT procedure. I should get biopsy results within the next day or two. It's unfortunate that Healingwell does not...
Halbert, funny that you mentioned the auto paint operations. When I was a kid my grandparents lived on the second floor of a tenement with a big open back porch. We would stay with them quite often....
Interesting JNF, thanks for the info. I have been an occasional cigar smoker through most of my 40's and 50's. perhaps that is the culprit. I have a history of prostate cancer in my family, no...
Too bad, should have figured as much. Attended a couple maybe 8 or 9 years ago. Nice to meet and chat with other forum members....
Thanks for the comments and good wishes. Really bummed out that I have to deal with another bout of cancer, but I was very lucky to beat Pca and have 10 years cancer free. Hopefully, this will be...
I spent a lot of time on this forum 10 years ago and found it very helpful. I had my prostate removed in 2009. In 2010, after a rapid increase in my PSA, had RT and HT. PCa seemed to be cured and I...
Thankfully bleeding stopped. It was going strong all day and really worrying me. Perhaps it was the pulled pork sandwich and glass of wine I had for dinner did the trick. Still going to get to...
Continue to bleed all day today. This didn't happen before. Will try to get into see urologist tomorrow....
Thanks, really lucky to be cancer free. I seem to have dodged the bullet on the PCa. I contrast the bladder issue may be a minor inconvenience....
Haven't posted here in many years but visit periodically. I had salvage radiation with 1 year of ADT in 2010. Radiation completed in Sept 2010. Treatment was successful and my PSA has been...
Tarhoosier, thanks for the information. I am now seeing Dr Petrylak at Yale/NewHaven. He didn't recommend metformin, avodart or the supplements that I was taking, but didn't suggest that I stop...
Sorry to cause a ruckus. Just wanted input from any other members who have doctors that recommend supplements and what those supplements are. I don't advocate for supplements and honestly probably...
Thanks for the info on Berberine. I am checking it out, I can buy this on a reputable on-line site for a reasonable price. Hoping that I would hear from some forum members that had supplements...
Hello all, I haven't posted here for almost two years, but I lurk periodically. I was a patient of Dr Myers, until he retired, and on his PSA suppression program. He had me taking avodart and the...
Agree. I think the clinic is closing. I am asking him for a referral....
This may have been posted already, but I didn't see anything with a quick review of recent posts. I received a notice from Dr Myers office a few days ago saying that he is retiring from his practice...
Hi Jeff, I haven't been to a GFMPH in at least 3 years. I just had to cancel a 2 week vacation in late September and would love to get away to lovely Rochester NY for a few days. Can you send he the...
Thanks Fred and Fairwind. I agree that we are getting ripped-off by US pharma industry. I got tried of paying $800+ for 3 months of avodart. Dutasteride costs me $140 at AllDayChemist....
I have been getting dutasteride from AllDayChemist(india) for almost a year now based upon a recommendation from a member of this forum. I recently received an order form from Global Pharmacy Plus...
From my experience, 5 years ago now. it seemed like each doctor/treatment center had their out protocol. I saw 3 medical oncologists and got 3 different opinions, 3 months starting one month prior to...
I feel very lucky that my GP referred me to a uro when my PSA jumped to 3.6 on my annual physical exam at 56. I ended up with a G8, surgery, BCR and radiation within 18 months. That was 5 years ago....
Lab results received today. I am very happy to report a PSA < .01. Now over 4 years since SRT and HT. I think that my medical oncologist is going to cut me loose from annual appts soon....
For lodging north of Boston you could try the Kendall Square Hotel. It is a nice small place just over the Charles from Boston. We got into Boston late one night from a west coast trip and were...
Once I had a recurrence of PSA I said good by to my URO (I had not continence or ED issues) and he was fine with that. He recommended a radiation oncologist and a 3 month shot of Lupron, but I saw an...
Had a blood draw on 8/31. Should have the results in a day or two....
I agree with Fairwind on the testosterone test. If your going to have another PSA test getting the testosterone tested at the same time would make sense. You want to make sure that lupron alone is...
Others here at HW are much more knowledgable than I about this topic. I can tell you that from my own experience that medical oncologists disagree on when and under what circumstances HT should be...
I was declined from a long term care policy that I applied for with my wife. At the time they said it was because of the recurrence of cancer that I had requiring radiation. They said that I would...
I had SRT 5 years ago with 12 months of ADT3. Going in Drs that I consulted with all told me the chance of a cure was at best 50%. I am now 4+ years since the end of HT and PSA is still undetectable....
It is helpful to get several opinions. I spoke to a local RO recommended by my urologist and also got a second opinion from a RO at Dana Farber. Get as much info as you can and get to best...
Thanks Nomar/Jim, I will send you an e-mail....
Thanks Robert that would be great for my pocketbook....
Last time I got a 90 day supply of avodart it cost a little over $800. My mail order company just informed me that me next shipment would cost me $919. When I contacted my local CVS they said it...
Very sad. Rest in peace Zufus. You fought the good fight and helped many of us along the way. You will be missed very much....
PSA still coming in at > .01. Celebrating tonight with my "Father's Day" lobster and a nice glass of brandy....
Mickey, It's great that you are getting a second opinion on treatment. If possible get a third from a specialist is prostate cancer. Best of luck BB....
Peter, Prato and NKinney: thanks for your responses. I had done an internet search without success. I will check out my local pharmacies. Frank...
I have arthritis in my feet that has been getting progressively worse. I want to take glucosamine, but not chondrotin. My doctor has advised against it. He tells me that it is linked to prostate...
Urgency was not an issue with me, but my continence regressed after RT. I was almost fully continent after surgery, but after RT it regressed a bit. Some uncontrollable dribbling after urinating. I...
Hi Sonny, I had hot flashes after coming off of HT. I had used estridol (SP?) patches to avoid the hot flashes while on HT. I stopped those when I stopped HT, but it was way to soon. Did you do...
Best of luck Sonny. Enjoy the Florida sun. I've got 2 feet of snow on the ground and freezing weather outside.BB...
Good question Rigby, I don't know. With my history, G8 with organ contained tumor, BCR within 1 year of surgery, and rapidly increasing PSA - .07 to .5 within 5 months, it was most likely that cancer...
thanks for pointing out the date problem Rigby. I am taking avodart....
I also see Dr Myers and have been on his PSA suppression program for almost 4 years now. It has been successful for me. Although I had a much more rapidly increasing PSA ad started with SRT and HT....
I went the early SRT route based upon the advice I received at the time, almost 5 years ago now. I was recommended by my uro/surgeon, two radiation oncologists and 3 medical oncologists that I spoke...
Dr Myers has me on avodart to extend my HT holiday, but I am hoping for a durable remission. I asked him about switching to Proscar, but he said to stay on Avodart. I can't remember if his rationale...
57...
Hi all, I haven't checked in since the summer. Very busy finishing construction and moving into a new home. Not new construction but extension remodeling. Things continue to go very well for me. I am...
Hi Startech, meet you in Rochester in 2011. Sorry that your PSA is up. I have changed my diet to mediterrean (sp?) and take some supplements. Best of luck. Don't know if I'll make it to Rochester...