MRD is quite close to LAX. We always stay at the Renaissance which is directly across the street from the Budget rental lot. Fly into LAX, get shuttle to Budget, get your car then check into the...
Thank you all so much for your responses! They are very helpful!...
Eric has pain in his left femur which based on various scans has been all but certainly diagnosed as bone met. He is scheduled for a bone biopsy to confirm diagnosis but we're wondering if it's...
Dr. Turner is great. We saw him regularly when Eric was a patient at Dr. Leibowitz's practice and his departure is one of the reasons we no longer go there....
Awesome news! We are in the camp of throwing everything at the cancer early to slay the SOB! Of course we are on year 7 but still throwing everything we can get our hands on. Stay positive!...
Eric had first cell harvest today. A little tired this afternoon but otherwise fine. Very interesting thread, thanks for starting. We'll certainly post anything we think may be helpful as we learn...
Thanks for the feedback everyone, it's much appreciated! Jack - Yes we are in the Atlanta area and would love to hear your suggestions....
Husband has ductal, diagnosed in June of 2007. Feel free to e-mail me, my husband would be happy to talk to you about his experience to date. Amy...
Eric and I have always had and still have the firm belief that finding the absolute best Pca Oncologist, including one who will prescribe an out of the box treatment plan, is the key to not only...
My husband was 7 years from diagnosis in June. He's never gone undetectable for any extended period of time but thanks to previously mentioned new treatments and doing very well. Current PSA is 1.1,...
Hey Lisa - Regarding travel for medical care, I think once you get your minds wrapped around it, it will become the obvious choice and no big deal. We live in Atlanta and travel to Los Angeles 2 or 3...
Hey Lisa - The only thing I want to add after reading your last post is that although there may be many, some undoubtedly very good, opinions on the agents and treatment protocol that seems most...
Hi Lisa - I just want to ditto the comments about "new normal". My husband was diagnosed in June of 2007, initially G8 then upgraded to G9. He has bone and lymph node involvement, is currently under...
Dreamer44, Sprycel was prescribed by Dr. Myers at the same time he prescribed the Xtandi. My understanding is that Sprycel has been shown to reduce the cancer that has metastasized to the bone. This...
Jim - I'm thrilled to hear about your results, for your sake and everyone else's that may benefit from this treatment. Husband, Eric, is also undergoing treatment through Dr. Myers' direction. F18...
Not sure if this was already posted but thought it was interesting. [color="#0066cc"]http://www.aetna.com/cpb/medical/data/800_899/0802.html [/u] ...
CONGRATULATIONS on your triple G news Sonny! Your positive life-lovin attitude is awesome and inspiring. Amy...
jpgr - No we did not speak to Dr. Kwon. The C-11 scan was something that we did proactively on our own and in fact had to pay for ourselves, (to the tune of $5k, still fighting with insurance company...
JL - Eric was on HT from Sep 2009 to Sep 2010 in conjunction with chemo from Sep 2009 through Dec 2009 as well as anti-angiogenics, (Revelimid/Thalomid, Leukine). He has continued the AA but has not...
I can NOT believe Gigi is one! How time flies. HB sweet little one....
Eric had a biopsy in late December targeting known cancerous nodes in the inguinal area using the Sand Lake scans from April specifically for the purpose of getting tissue for molecular profiling. We...
Philip - You will undoubtedly receive many helpful responses with detailed questions and comments regarding medications, but the best advice I can offer is to find an excellent oncologist who...
Hi Everyone - I am way way way overdue in posting an update on Eric. 2012 was a crazy year and I am very happy to say goodbye to it. Here is our timeline in a nutshell starting with Eric's dramatic...
I had a lumpectomy and sentinel lymph node removal on Nov 19. Everything is healing pretty well except I have this tight cord-like thing in my armpit which is very tight and makes it difficult to...
It’s been a long time since I’ve posted so I thought I would give an update on what is going on with Eric. As of the middle of 2011 his PSA started to rise rapidly from .8 in June to 2.7 in October....
sword - My husband was diagnosed with Ductal Variant in 2007. Feel free to e-mail with questions. I need to post an update, it's been a while since I've posted so I'm trying to find the time to write...
SuperFantastic news! Todd I can't tell you how happy I am for you! I'll be toasting to you later. Congratulations, you deserve this good news....
Thanks for the update. I'm sure you are so happy to be nearing the end of your treatments. We are on the same path but are waiting for answers to some specific questions before we can move forward...
With the help of Leibowitz's staff we were able to get 250 mcg vials, (instead of the usual 500 mcg), which are apparently concentrated and need to be diluted prior to injection. But at least we have...
Couldn't be better! Congrats!...
We get it through CVS Caremark. After working through our Dr., we were able to get the smaller vials which are concentrated and have to be diluted. But at least we will have about a month's supply....
We tried to order a new supply today and were told it was recalled and no supply available with no future date of availability. I haven't been able to find anything online about this yet. Has anyone...
Wow and Wow! What a incredible result. Huge congrats, I'm lifting a glass of wine to you now! How long will you be on it? Amy...
Sonny - Planning one leg at a time is a good idea for such a long trip, especially considering the circumstances. I'm sure you are still in a bit of a fog. You may want to keep your options open and...
Sonny - This sounds like a fantastic plan! Sorry we'll miss you in Atlanta. Safe Travels!...
Hi lingling - Yes your stats are serious which just means you'll have to work harder to beat this, but there are many nuances of additional treatments available. I strongly urge you to research and...
Hi jliggett - My husband is about to begin this program and has been told he will be on HT for 3 months prior to heading down to get the treatments with Dattoli. Would you elaborate on your treatment...
Congratulations! Looking forward to positive reports regarding results! Isn't anyone going to ask Todd what his splurge was? Okay I will. Todd whatever did you buy on Saturday?...
Sonny - Eric and I are so very sorry for the loss of your beloved Lynn. You gave each other so much strength up to the end. I hope that knowing her last moments were peaceful gives you some comfort...
Eric's PSA is at 3.6 and has been growing since last September. Considering he's had a prostatectomy, salvage radiation and already gone through HT, chemo and is on numerous anti-angiogenics as well...
142 - Thanks for the great advice. We will absolutely heed it. We did try to get pre-approved for the Sand Lake scans but they were denied due to "not enough evidence of recurrence." Huh? Guess...
I have some anxiety about how much of this will be covered by insurance. It did not cover the Sand Lake scans and we have no idea how much of the upcoming treatments, if any, will be covered. I fully...
We just had our follow up call with Dr. Myers to review the findings of the scans that Eric had at Sand Lake in April. Findings are: Quite a bit of disease. Lesion on 3rd rib on the right and...
I would do both. Getting the perspective from Mayo can not hurt and will provide additional educational benefit and I assume will be covered by insurance. You'll have to come out of pocket for Myers...
Sonny - I have no words, just tears for your incredible strength and pain. You and Lynn are in our thoughts and prayers through this extraordinarily difficult time. Peace to you. Amy and Eric...
If you've never tried Arby's Jamocha shake, it is YUMMY! jliggett - We are on the same path with Sands and Dattoli, about a month or so behind you. We're currently waiting for final report from Dr....
jligget - Do you know yet how many rounds you will have and how long you will need to be in Sarasota for your radiation treatments? Putting Eric on HT was not mentioned to us so I didn't expect it,...
Sorry for the confusion. David is correct, Dr. Bravo is at Sand Lake in Orlando and he is the expert at reading the scans. Dr. Dattoli is in Sarasota, FL and will develop and administer the specific...
No HT is not going to be part of the treatment plan at this point. Eric will receive radiation beam targeted with pinpoint precision to the exact nodes that exhibit cancer. Dr. Bravo explained that...
tarhoosier - No Eric did not have HT prior to RT or with RT....