Huband has been experiencing pain in right leg, along with significant swelling of foot and ankle, thought to be lympodema. On Thursday he is due to start a second round of external radiation... 13...
From what we are reading and watching on tv, the US and in particular NYC is really doing it tough. Keep your chins up and dont give up!! In aust things not as bad, but social distancing really...
Hello all, I have not posted for a while but have been reading other posts with interest. My husband had his specialist appointment on Tuesday, so thought I would update, particularly for those who...
Hello all, Its been a while since my last contact, but I have been reading posts regularly and following progress every week or so. My husband had his latest PSA test results today and it indicates...
Hello all, Its been a while since I posted information on my husbands progress. Signature below tells a grim enough story, however, since my last post a long time ago, my husband has had many...
Trying to type onto a tablet in bed so brief answer from husband s experience. When doubling time was less than 3 months, then Eligard started. That was a fortnight ago. Psa was 5.9 in late june but...
I personally find hamsters particular cuddly and loving!...
Dear Mary, I follow the posts regularly, and am also deeply saddened to hear news such as yours. It IS hard to imagine life without your partner, but I hope you have family members and others who can...
Yes, they WERE pelvic lymph nodes. But I certainly will ask radiologist next visit which is soon. Somehow, though, I feel I get better information on this forum, particularly from people such as...
In a different post I said that my husband had a PSMA PET scan done on Friday, and that the results showed some "multiple and intensely avid" lymph nodes (to cut sentence short). My question though...
Radiation was one of the options mentioned and we have been referred on to appropriate departments and people. Extra radiation is certainly one of the options which may be available. I was surprised...
I had written in a previous post that waiting for test and scan results is often the worst part of this disease. We had a trying weekend waiting, and as I posted elsewhere, I not only opened the...
And what, pray tell, is the problem associated with 12 cushions on the sofa and 8 on the bed??????? This is not a competition I know, but I hasten to the "boudoir" to take account of the number of...
I think 81GyGuy said it all in his post regarding Huffington article waiting for results....
Its not that I personally try to interpret them, I just like to be prepared for whatever comes. I too freaked out at the first PSMA PET scan my husband had when I saw all the bright colours, however,...
My husband had a PSMA PET scan done yesterday, and our followup appointment is not until Monday. Of course, the first thing I did when we got the booklet of scans yesterday afternoon is to open the...
Allen, what on earth would I do without you?????...
Good morning all, Although I have read most of the posts for quite a while now, it has been quite a long time since posting, as my husband has been on a "wait and see" regime. Long story short, there...
Hi Beth.. Bone scans came back relatively clear...relatively as they have indicated some arthritic changes in several spots which glowed white. I even worried about those in case the white dots were...
I realized I had not updated this post for a while, and am doing so, as I know there are other men out there who are G9 and who (like me) look for progress or otherwise. I had posted that I was...
Seeing I started this I thought I would have my 10c worth, now that a couple of years have passed. I regret to say that size has not altered. This worries my husband a great deal more than it worries...
Thanks highlander, you are probably right. As I mentioned we are away from home and therefore also away from my scrupulous note taking. Thanks for the clarification....
Hi everybody, My specialist says you can define a recurrence in two ways. 1. A rise to 2 above lowest nadiir OR 2. Three consecutive rises of psa with intervals of at least 2 or 3 months in between...
Hi chas... what is tne name of the trial at peter mccallum centre? I would like to look it up re criteria etc. Cheers...
We too here in queensland have this machine in several Brisbane centres. We were told that costs are not yet insured and we paid $700 aud for the scan. However, as we have been covered for nearly...
Thanks to all, Allan, although I did not say so in my post, we did talk about the earlier hormone therapy, and we even had a printout of the abstract with us. Specialist agreed that there is a school...
Hold on tight...... one day at a time...
Hello All, Some of you might have read about my husbands biochemical recurrence after his primary treatment of Hormone Therapy, TURP, High Dose Brachytherapy and External Beam. Everything was ok for...
No wonder I use this forum for all my questions re P. Cancer!!! Biker56 hit the nail squarely on the head! Yes, we are in Australia, and yes we do use nmol/L. Everything I looked up talked about...
My husband is due to see specialist on Mon and we have the latest results : Psa = 1.5 (risen in short time from nadiir of 0.26) Testosterone =14. I looked up information regarding normal testosterone...
On the off chance it DOES come your way, here is what I learned after being directly hit with cyclone Marcia in Queensland (Aust). Have CASH. (No power = no ATMs etc. ) Refuel your car, your mower,...
You most certainly have had your run of bad luck... bound to change soon! My husband too had a melanoma cut out (in his leg). At the time, after surgery, it did look terrible, as it seemed like a...
Wow! You guys have me really thinking. Talk about a roller coaster of emotions. I really do appreciate the time and effort you have taken to explain much of this, particularly in such a way that it...
Hi Todd, Read your blog, and you are right... things don't often get worse than your day! Nice to put a face to a name, even if the face was covered in spray from waterskiing. My husband also popped...
Thanks for your assistace. Am I understanding you correctly that a bone scan, no matter how detailed, will generally not show up any mets in soft tissues, especially with a relatively low psa. If...
Hello all, Due to a rising PSA, our radiation oncologist suggested a bone scan to see what was happening. This was done several days ago, and the scan was clear, ie, no mets found. This is good news...
I was always under the impression that bone mets were part of the skeleton, because, all bone is somehow related to the skeleton as a whole. However in some reading today, the men with "ordinary bone...
Hi again, Tall Allan, Docetaxel WAS one of the pathways (or treatment decisions) specialist mentioned, as well as a list of others including restarting hormone therapy which he had a few years ago....
Hi JoJoLA You are absolutely right. I did ask for a repeat PSMA CT scan at this stage ( I'm sure it was a 68 gallium) and not wait until January, however there are only a few of these machines in our...
Hello all, We had our 4 monthly check with Radiation oncologist yesterday after a worrisome and steady incline of PSA over the past 12 months. He looked at the PSA numbers and conceded that it is...
My late father in law was diagnosed with very aggressive PC when he was 90. The family was called in and told he only had days to live. His response was along the lines of "Rubbish!". He chose a 6...
I can answer Sheepguys question directed at Bolidat about the reference to Paul Anka. The song "I did it my way", which was sung by Frank Sinatra was actually written by Paul Anka. It has lines in it...
Hello to all, Don't feel too depressed regarding your partners needs about your loss of libido. Most women who experience menopause are going and/or have been through exactly what you are now going...
Hello Susan, We may be continents apart, but I can feel your sense of loss and heartache across the miles and the seas. It will be a tough time ahead of you as you adjust to your new life, but no...
Thanks to all who have replied. What a great group for seeking advice, sharing thoughts and feelings and receiving some much needed morale boosting. After reading all the posts carefully... and most...
Hello all, As you can see from signature, we have not had an easy run over the last several years; however, my husband has always been extremely optimistic and laid back about diagnosis and prognosis...
Hi, The specialist my husband sees suggests that "three consecutive rises" MIGHT be recurrence - not WILL be. Husband had PSMA PET CT scan after three rises, but it showed nothing conclusive. That...
My own saying: If it doesn't fit, you're not pushing hard enough!...
I agree with positive thought idea. My father in law was diagnosed with advanced and aggressive P.Cancer when he was 90 years old and due to age and some lung problems, many forms of treatment were...
Hi ARD9-7, Its very difficult to work out which way to go. Luckily in my husband's case, we were able to consult a clinic in Brisbane (Australia), which had a multi-modal team. In my husband's case,...