I just saw the same article now picked up by NBC news. Interesting, but it's not really very clear - I hate when stuff like this comes out and they leave out some major details! Unless I'm missing...
Hi all - I'm about 6 1/2 weeks post op and about 5 weeks post cath. My continence at first was almost non-existent - ok sitting or at over night, but up walking and I was leaking like crazy. Did my...
Hi all - I'm about 6 weeks post op and my doc's ED treatment seems to be Trimix. He started me on it about a week ago and had me start with a very small dose - 10 units. With that amount I was at...
Wow 2ndtime - nice to hear from someone on my same "schedule". So did you have open? Age? How long was the cath in? Mine was in for about 12 days - certainly nice to have it out but now dealing with...
All - so I'm not quite 2 weeks out from Open RRP and just had the Cath removed yesterday. I think I'm doing ok, but the incontinence for some reason is really a punch in the gut to me. I'm sure it...
Just to chime in - I feel like I'm one of the "poster boys" for PSA screening. I'm only 49 and my PSA wasn't that high, but it kept going up every time it was checked, about .5 ever 6 months to year....
Thanks All - yeah, I'm pretty happy with the report given where I was going in. It certainly wouldn't have changed my surgery decision, in fact it confirms my choice and I'm even happier I had the...
Hi All! So I'm one week post op (open RP May 09) and doing well. The first few days were rough, but I'm certainly getting better. The worst part was getting my "system" working again - which was more...
Thanks everyone! Tooyoung4this - sorry to see you were so young, but it's a HUGE comfort to know someone else that was young and a 9 and your in the ZERO club! That's what I'm aiming for and it's...
Well after all the research, all the meetings, all the discussions - I'm finally scheduled for surgery. I'm having the open RP performed by Dr. Catalona. Just to recap - 49 years old, great health. I...
Thanks all for the replies and input - I would totally be fine waiting and that would have been my plan before meeting with the Doctor this week. I certainly plan to wait for the 6 week mark post...
Here is an article you might want to read: "The clinical features of anterior prostate cancers." www.ncbi.nlm.nih.gov/pmc/articles/PMC2239295/ Thanks Nellie - that's an interesting read - not sure if...
First the background: 49yo, good health, slow rising PSA from 1.5 to current 3.56, very low free psa 3% Long term propecia use (12+ years) 1st biopsy - May 2011 - negative MRI - Feb 2012 to look for...
I'm with Davidg - I'm hoping to make it to my 80's, I'm 49...not that I'd want this at any time, but I'd take it a lot better in my 80's! I'm not even sure I'd be all that aggressive at that point. I...
Thanks again Jerry - I really do think I'm in a fairly good spot, with the one bump being the 8 or 9 rating. I see the Doctor tomorrow, so after that a second opinion, I will likely move on to...
Thanks again Jerry, sorry for the late reply - I finally put down the phone last night :) So I had an MRI before I had the biopsy so the doctor would know where to aim when doing the biopsy. Since...
No problem, it's nice to have someone to bounce things off. My biopsy was March 16. One core out of 13 positive and depending on pathology report one says 15% and a second opinion says 40%. I also...
Jerry, I went from 1.8 in late 2008 to 3.56 now. Last May, 2011 I was at 2.9, so in almost a year I'm up about .65. Again, right now at 3.56. Seems low but I've been taking propecia for about 12...
Thanks Jerry - great to hear from another "youngster" and someone else with a G9. Sorry to see yours came back, but your numbers are looking great! Good luck man....
Going for brachy, that wasn't the question. I totally understand removal of the prostate after the cancer has metastasized will not remove all the mets. The article said removal would accelerate the...
So looking at the HAN tables to try to get the percentages for BCR based on PSA, Gleason, and Stage - I'm wondering why the big differences if you use the pre-op model vs. the post-op model. If I use...
Thanks guys - that was my thought too, I had never heard of this but since it was on the yananow site, I didn't totally discount it. My case seems weird to me - but I'm learning that this is such a...
Just a quick question - I'm 49 and recently diagnosed with g8/g9, depending on pathology report, either way it's high risk, so while I'm leaning towards surgery, I'm also reading all I can about...
Thanks Casey - honestly I'm sort of amazed at the response to the question - and yes I guess to be honest I am more interested in those in the High Risk category and if they regret going through...
Yeah, I'm actually a patient of Dr. Catalona, so I'm aware of his stance - not sure I agree completely, but I'm open minded. There seems to be several follow-up studies that claim the first study was...
I've been taking propecia for years - probably close to 12 years - for hair loss. It seems to have worked and I didn't really lose more. Anyhow - as you may know I've now have a dx @ 49 years old...
So I had the nurse send over my actual bone scan report - I'm getting all me reports together for a 2nd opinion. I probably shouldn't read these - they always scare me! Anyhow - my PSA is 3.56 (long...
I'm 49 and on my second biopsy (3/16/2012) the results came back with one core positive, 10% to 15%, Gleason 3+5=8 - not what I wanted but I felt somewhat good that it was only one core and a small...
Just an update - when I requested to have my slides so I could send them to John's Hopkins, I assumed they were giving me all 13 cores/slides. Rereading the Hopkins report it shows that they only got...
Thanks guys for the support - it's weird, it's almost like a de-sensitization system, every time I get more news about what may be going on and then the confirmation that it's an 8 and now that it's...
Thanks Southern - makes me feel a little better. I was really getting ok with the 3+5, but this 9 just blows my mind. My PSA is only 3.56 - but I've been on propecia for about 15 years, so that would...
Ok, I was holding it together but I'm not sure I can handle this. I had a biopsy about 2 weeks ago and the original results were 3+5 = 8 in one core out of 13 with 10% to 15% of the core involved. I...
Thanks guys for the responses. Alf - I'm actually currently waiting on a second opinion on my biopsy - sent my slides to John's Hopkins. That was the first thing I wanted to validate - the 3+5...
DX 49 - PSA 3.56 (long term propecia use, so that's kept it low) Slow rising PSA from 1.5 in 2008 Free PSA 2% Gleason 8 (3+5) one core, 10% - 15%, out of 13 - all others clear. Bone and CT Scans...
When I first saw Catalona back in January, he told me to quit taking propecia. It was obvious he hasn't changed his stance, in fact he said that's where we find the 8's and 9's is after long term...
Some good news - I had my bone scan and CT scan - both came back negative :) I've sent my slides off to John's Hopkins for a second reading, just want to confirm that 8. Given that the scans were...
So I'm new to all of this - recently DX, 3+5 = 8 - so far my scans have all been negative and it appears to be very small. I'm likely leaning towards surgery as my first line option. Anyhow - I don't...
I'm newly dx with 3+5 - so a Gleason 8. On the plus side it seems to be very small and at least it's more 3 than 5 (trying to stay positive) - anyhow I'm seeing a top notch urologist/surgeon but now...
Thanks so much for the replies guys - really appreciate the feedback. Newspaperlover - do you mind me asking how many cores you had positive, the % and where in the prostate? You had clean margins,...
So looks like I'm where I don't want to be, no offense, just was hoping for a negative biopsy. My PSA has been going up about .5 over the past few years and last year my doc said it was time for a...
Sorry, I'm sure I'm over reacting - still waiting for my biopsy. I had an MRI because my last biopsy was negative and they've found two small areas to target for the next one. One question I have, on...
Thanks all - I'm pretty convinced there's some amount of PC - just keeping my fingers crossed that it's early. Since the last neg biopsy - they did an MRI and there are two suspicious spots, so they...
I'm really confused - I know something is going on and I'm waiting for a biopsy (shed 3/16) - the wait is killing me. In the meantime, the Doc had me take 2 weeks of Bactrum to rule out infection....
I'm 49, and my PSA has been steadily going up the past few years - had a biopsy in May 2011 that was negative, but since it keeps going up my doc ordered an MRI and at the same time had me take...
12 cores were taken - felt like 100, but only 12......
Oh I am enjoying the news, believe me - if nothing else it tells me that even if it's there, it's small and staying on top of testing should catch anything early - which is where you want to be.......
Ok, so I'm not complaining - just got a call from my Uro and my biopsy was negative - great news! I of course was convinced I was going to need surgery next week, you know how you're mind can go.......
Well that's just what I needed to see the day before a Biopsy, as if I don't have enough to worry about....and I just went to China literally 1 month ago. I want to know what's causing my PSA to...
Thanks guys - I've done a lot of searching and did find one guy that appeared to be down to 4% fPSA and his biopsy was still neg - so I guess there's still a chance that may be my case too. I'm...
Just had my tests last week, waiting on Biopsy. I'm 48, my overall PSA is 2.9 - been climbing at about .5 for the last few years, and my free PSA is 3.4% - so I know there's a good chance where this...