Winter here, checking-in. I just finished my second year of HT and I am glad to report that I am < 0.03 since June 2012. Believe me, I feel very fortunate and lucky - things could of been and may...
I was on Zytiga for 6 months. I took my dose when I first awoke in the morning, then waited an hour to eat breakfast. This seemed the best fit for me. I had no sleep issues that I can attribute to...
Winnie, I am a high risk GS 7 who opted for neo-adjuvant HT plus RT. Not the same as your situation with SRT and GS 9, but I can share that the HT is not that bad for me. For me, exercise and diet...
Personally, I am still rooting for Provenge as a viable treatment, I just thought I would pass this along for any that are interested....
JohnKeats, you have to have hope - I take some of my strength from the kids I met in the radiation therapy waiting room - these kids were fighters and filled with courage. I hate to say it, but...
Ed, welcome back. You have a great eye for composition, thanks for sharing! -Winter...
I would add the question: Are newer HT drugs in pre-chemo setting worth consideration? For example, MDV3100, Abiraterone, etc. How about some of the more traditional ADT3 therapies?...
Tim, excellent work and kudos from the Puget Sound! -Winter...
Here is wishing the best possible outcome to both of you. Keep us posted on your continued success. -Winter...
Best of luck to both of you! I do not have an outstanding test result, but I will join you at the bar! -Winter...
Thanks for the positive thoughts. I was on Abiraterone/Prednisone/Lupron for 6 months. I tolerated it well. My SE were : I had to increase my blood pressure medication from 10mg to 20mg to counteract...
I finished 45 sessions of IMRT + Calypso 2 weeks ago. This was 1.8 Gy/day, so the total was 81 Gy. This was a wide pelvic treatment with a prostate boost 2/3 way through. I guess this standard for my...
Todd, I am wishing you the best possible outcome! Thanks for sharing you experiences, you are very courageous in action and deeds. -Winter...
I have been on Zytiga, Prednisone, and Lupron for 6 months now. This is the end of the active treatment phase of the clinical trial I am participating in. I will concur with Raddad's observations on...
Same SE effects as you but without "pins and needles". Maybe it is time to visit you doctor. If the hot flashes are really bothering you they can prescribe an antidepressant like venlafaxine. This...
Here is a working link http://tinyurl.com/nsu63p My opinion after reading this article is that TRT may be safe if you do not have PCa. I don't think many doctors would offer TRT unless you have had a...
It is very uplifting to share in your good news. I am wishing you continued downward velocity - impressive. -Winter...
Red, I know exactly where you are at - you have questions with no clear answers. I personally agonized over my choice of surgery + HT/RT or just HT/RT. The choice comes down to you and where you are...
Rodney, No complaints from me, I totally understand your point of view. PC is not worthy of hobby status. Thanks for the kind words and best wishes. -Winter...
Sickofbeingsic, Your said, I researched further and found no evidence that T feeds PC and then I got even more angry when I found studies that showed that low T levels was the most likely cause of PC...
Southern, 6 days a week and chemo? You are a monster! - keep up the good work. I am half way through 45 sessions of RT and still cycling hard 7 days a week. For me, exercise is essential to combat...
I am currently participating in a Phase 2 clinical trial. http://www.seattlecca.org/clinical-trials/prostate-7048.cfm I find my participation has many benefits: * Abiraterone is prescribed for...
Ice, as others have said, be sure to get a second/third opinion. Looking at your numbers, you would seem to be a candidate for other options. I have chosen neo-adjuvant HT with RT as my primary...
Wishing you the best possible outcome! And, I can't help myself: When you're chewing on life's gristle, don't grumble; give a whistle, and this'll help things turn out for the best. And... always...
VolJeff, Welcome. We are both youngsters at 52. This is one of the few bright spots of my experience - being called a youngster by the medical staff even though you are feeling like an old dog. ;) If...
Thanks for sharing - very interesting. Don't worry about your colonoscopy. The drugs I received made it painless. A walk in the park compared to the 3 prostate biopsies and calypso beacon insertions...
I have been taking abiraterone/prednisone/lupron for 4 months. I have experienced side effects common to lupron, hot flashes and zero libido. As far as abiraterone specific SE, I experienced...
David, I really feel for your situation, it is hard for me just to read your updates; you are dealing with this sh*t with dignity. You seriously deserve to catch a break - you are a trooper. -Winter...
I would agree , your father could of received better care, especially given his circumstances. Wishing you and your father the best possible outcome. -Winter...
I have been on Zytiga for 4 months and tolerating it well with only 5 mg of prednisone daily. My guess is that I was started on a lower dosage and if problems arose the dosage would increase. What...
Casey, thanks for all your work, your altruism is awesome. I am still in the game with bike commuting 5 days / week. I added spinning class and weights on the weekend. I have 2 more pounds to lose to...
Daily exercise , 1 hour is keeping me sane. If I miss a day I can really feel the mood and energy SE coming on . Also, healthy diet. For me, no sugar helps. Good-luck. -Winter...
Purgatory, Firstly and most importantly, from the bottom of my heart, you are in my thoughts and I wish you the best possible outcome. Secondly, take it as you will and with as much gentleness...
Bud, for me, things seemed to even out after 1 month. I am not experiencing the energy swings you are having, but I am hungry often. When I get super hungry, I try and fill up on boring stuff like a...
Raddad, I am three months into my Abiraterone+Prednisone+Lupron. My liver function and blood work have all been good. My last blood test had my Potassium level falling in the low normal range, so I...
142, John Denver ? - That is indeed a nightmare! ;) -Winter...
I received the results from my endoMRI last week. I know that interpretation of the images is not a perfect world, but since I am not having a prostatectomy, this will be the best staging I receive....
Jaxum, Looks like we started Lupron together in December 2011. I will repeat what other have said and verify it with my experience. I have found that exercise is essential for me. If you are able, I...
Comfort, You have my best wishes and thoughts. -Winter...
MDV 3100 holds lots of promise as not just a drug for castrate-resistant PCa, but possible early options for treatment in combination with other third generation PCa drugs. I found this recent...
Here is a working link http://tinyurl.com/6sne9ku Thanks for posting the article....
zufus, I am in total agreement - adding a AR antagonist to the standard HT makes total sense to me. MDV3100 looks promising, especially as part of a androgen blockade. There are cheaper alternatives,...
Dive, hang in there, I know and everyone here knows what you are going through right now. Like you, I am a "young guy" so you have some company. Like me, it sounds like you are diagnosed as "high...
Keeping faith, We are the same age with very similar staging, so I know exactly where you are coming from. Thanks for your thoughts and sharing your feelings - they really hit home for me. I reached...
Missyj, Here is a trial in the UK for MDV3100 , perhaps your husband qualifies. (post edit: sorry , this trial does not allow patients with previous chemotherapy. Maybe a triple hormone blockade of...
Shop, hang tough big cat - the week-end has arrived and a failed battery is a small thing. (Small thing but d**n frustrating when you are sitting in a a dead automobile). My EBRT starts in April - I...
Dime, so far so good - the 2 week and 4 week blood draw show no abnormal liver function. My fingers are crossed for the future. -Winter...
An38, I agree with you 100 %. I will add; Vive la difference! Sometimes I feel the posts have a bit of personal bias, but I love the cluncky anarchy and community here. I feel myself getting a bit...
bertb, I am with you - I should of started a more healthful lifestyle prior to my DX. Regardless, I have taken my new path by the horns. With no past regrets or guilt, I will try my best to not gain...
Excellent news mate - first shout is on me!...