After biochemical failure of proton therapy and a couple followup clinical trials, I had SBRT radiation to lymph nodes after a DCFPyl PET scan identified spread (June 2017). Also a part of the ORIOLE...
I had the same experience. I live in Delaware & my oncologist is at Johns Hopkins, MD. Video appointments were working fine and then, some months ago, I got a call indicating we could no longer use...
This might be interesting... my RO ordered a genetic test of my biopsy slides (from back in 2009!). He said they had a 50% chance of getting useful results. The testing company's name is Tempus....
FWIW, "Under the Prescription Drug User Fee Act, the FDA is scheduled to make a decision on the NDA by May 28, 2021" FDA grants priority review to PSMA PET imaging agent 18F-DCFPyL for prostate...
#1 Moderna on Jan. 17th. Slightly sore arm and a red area. Both lasted about 4-5 days. #2 Moderna yesterday, Feb. 15th. So far, just a slightly sore arm. No red area (yet). ...Jerry...
I also had SBRT to lymph nodes as a part of the ORIOLE trial. Click on my story below. ...Jerry...
Congrats, Trailguy. I was also part of the ORIOLE trial (out of Johns Hopkins). As you can see if you click on my story below, my PSA dropped to 0.2 and has stayed there for the post two years. I'm...
I guess I wasn't very explicit with my post. What I was actually interested in was the vitamin D deficiency rate of the population that this hospital in Spain serves. The study reports 80% of the...
That's very interesting but the question I have is, What is the deficiency rate of the general population? ...Jerry btw: I am taking daily Vitamin D...
Yes, although the pandemic has dealt a blow to getting out. Here's my Flickr account if you're interested: Jerrys Photos ...Jerry...
We're in Limestone Hills, about 2 miles from Plum Run (and 70 miles from Johns Hopkins :-) ). Some 20 years ago, we lived in Fairway Falls, within spitting distance of Plum Run. I enjoyed playing...
Just found out my PSA test results and I'm holding at 0.2 since December 2018. Woo! Hoo! I was first diagnosed in September 2009 and after initial treatment, biochemical failure and various clinical...
Many years ago, I fell and injured my knee. A week or two later I started seeing swelling in my ankle. While playing golf with a friend who was a nurse, I pointed this out to him. What gives? I...
Don't know about Gallium Based PET/CT but see this press release in December 2019 for DCFPyL. “Based on these positive results, we plan to submit a New Drug Application (NDA) to the U.S. Food and...
Here's a recent video on Covid 19 and Ace Inhibitors . This physician's recommendation is, if you are currently taking the "il" suffix hypertension meds, you should continue. Of course, he indicates...
More Lisinopril info. Seems like Dr. Anthony Fauci is a bit more concerned about Lisinopril but is making a lot of assumptions which may or may not be true. Here: JAMA Network The video is queued up...
I also take Lisinopril. There is lots of detailed information in this video: MedCram Medical Lectures Watch it to the end. The bottom line is that this presenter feels it is probably better to take...
Best of Luck! If you run into problems, there is a link at the end of that article where you can submit your specifics and you might get some help. ...Jerry...
Not related to Lupron but a similar situation. NPR Bill of the month ...Jerry...
First off... congratulations! I retired at age 54 and am now in my 18th year of retirement. One of the best decisions I've ever made. Haven't run out of $$$ yet but I'm working on it. [grin]. I...
Easy bruising can be associated with low platelets. Have you had a recent blood test? ...Jerry...
Ten years ago today, I had a Digital Rectal Exam that indicated a lump on my prostate. After my initial treatment at Florida Proton in Jacksonville, FL resulted in biochemical failure, I decided to...
Thanks so much. I was concerned that there might be some security issue that prevented public view. ...Jerry...
I'm canceling my internet hosting account and want to see if the html link to my new signature with PCa history is working. Can someone click below and tell me whether it's working? ...Jerry PS: to...
Here maybe: Assessment of 68Ga-PSMA-11 PET Accuracy in Localizing Recurrent Prostate Cancer: A Prospective Single-Arm Clinical Trial ...Jerry...
Very little of the response was from intraconazole, IMHO. I was only on the drug for 3 weeks. PSA dropped from 2.9 to 2.6 but (since I was taking triple normal dosage), I had to quit because of...
After failure of my primary treatment (Proton), I had SBRT on lymph nodes detected by a F-DCFPyL PET/CT scan in the Oriole Trial at Johns Hopkins. Haven't had ADT since April 2012. Take a look at my...
I've had cataract operation in one eye an am scheduled to have the other one done this year. When I had the first one done I asked my ophthalmologist about multi-focal. He said he didn't recommend it...
While my PCa history is not the same as yours I kinda ended up in the same place. I also had a 18F-DCFPyL PET/CT that indicated lymph node activity. I then had SBRT to those lymph nodes as a part of...
I was on the ORIOLE Phase II trial out of Johns Hopkins - similar to this study. I don't think the final results have been published yet but interim results are here: ORIOLE Trial Check out my PSA...
I was on Lupron + Casodex for 6 months some years ago. Never had one hot flash. However, I gained lots of weight (30+ lbs, which I have still have), lost all libido and lost body hair (the one thing...
I'm in Wilmington, De so it's an easy (well if you call I95 easy) 1hr 15min drive to Baltimore. I see him on a once every 3 month schedule. Don't know about how he would work with local physicians....
When you say "east coast" I'm assuming you mean east coast of the US rather than the east coast of Florida. I've been seeing Dr. Emmanuel Antonarakis at Johns Hopkins for years and would highly...
@GoBucks, I just posted my update as an ORIOLE participant over on the Australian study on radiation to mets thread. I don't know that it directly relates to you as I was not on ADT with I got zapped...
Back in 2010 I had Proton therapy which resulted in biochemical failure. Signed up for the Avastin+ATD2 trial which resulted in low but gradually increasing PSA for several years. Last year PSA...
I'm a chemical engineer (although I never worked in the pharma industry). I would be amazed if the pharma companies would build plants capable of producing large supplies of experimental drugs based...
I wonder where the pharmaceutical companies are going to get the supplies of these experimental drugs for desperate patients. My understanding is that in the early throws of development, supplies are...
I had Synergy SBRT. Currently Marketed Devices for SBRT ...Jerry...
Nature & Wildlife Photography. I can get out-and-about. And it gives me a creative outlet of images I can be proud of. Every few months, I post a Off Topic slideshow of my work on this forum....
I have a friend who drove to Alaska. Upon returning border security stopped him and and after a search found a Korean War compass (radium dial) that was setting off their radiation detectors. ...Jerry...
Well, mine was "sort of" upgraded. First pathology report was done by the service (Dianon Systems) used by the Urologist that did my biopsy and came in at 3+4. Then, prior to my treatment at UFPTI,...
Delaware reporting! About 5" so far. 5-8" or 6-12" predicted depending on which weather service you choose to believe. Happy Spring! ...Jerry...
I guess I should have mentioned I was given this test as a part of the ORIOLE trial. As I recall, I was given the option of whether I wanted to see the results or not. ...Jerry...
I've had that test. "No mutations were found". However, "A 'Variant of Uncertain Significance' (VUS) was identified. This is a genetic change whose association with hereditary cancer risk is not yet...
I'm pretty sure I was given .4mg twice per day but this was almost 8 years ago and my memory is fading. [grin]. ...Jerry...
I had the same issues after my proton treatment and was given double the standard dose of Flomax. After about a month, I was pretty much pain free and flowing well. I continued to take the standard...
"Has anyone else wondered why the low dose amount is precisely 81 mg?" One quarter of full strength aspirin which is 325 mg. Someone else can answer the question, "Why is full strength 325 mg?" :-)...
I've been taking a daily aspirin ever since the results of the study were published (mid 1990s as I recall). I still got prostate cancer :-( That said, I haven't had a heart attack. :-) ...Jerry PS:...
"Jerry it looks like your graft goes only through 2016. Are you still doing well?" Hmmm.... The last date on the x-axis of the chart is 12-31-2016 but the test results go past that. Last 3 PSA...
I had proton at UFPTI, Jacksonville, FL. 39 treatments for 78 Gy. (5 days/week). The balloon sounds horrible, but becomes routine rather quickly. ...Jerry...