Hi Jane I'm really sorry to hear that your husband's PSA has started to go up. As far as radiation treatment goes I think it is really important that you go to a hospital that is considered really...
Hi Jane I have been meaning to reply to your post for ages now. Colin had his Robotic Surgery at Southmead Hospital in Bristol. The consultant there is David Gillatt who has done over 1000 robotic...
Hi all you guys ! Thank you so much for asking about my husband - I haven't posted on the forum for a long while but still try to check in at least once a week. Life seems to have gone back to its...
Hi there ! My husband is 2 months post robotic surgery (nerve sparing right side), but he had a long recovery and catheter only came out about 3 weeks ago. He has been on 5mg Cialis per day for just...
Hi Mike S - your idea of breaking down any incontinence improvement into small steps has made it much easier for my husband to understand ! He now has some goals to try to achieve. We do a lot of...
Jane - my husband starts on Cialis next Tuesday, so a week after his catheter removal (which you already know was in for 6 weeks). The informational clips on www.mskcc.org website are worth watching...
They took out my husband's catheter straight after they had a good look at the cystogram. We did spend the whole day at the hospital - they like to make sure that everything is working normally and...
Hi White Bird Great to hear that you are having some improvement in the incontinence department - my hubby is very frustrated that he doesn't have any control ! I keep telling him that things will...
Hi Jane My husband also had a problem with internal leakage and fluid collecting in his pelvic area post robotic prostatectomy (11th Jan). They left his catheter in for 6 weeks in total and he had to...
Hubby is really grateful for the support from all you guys ! He likes to read all the posts in bed at night - I might even get him to join himself so that he can post on the forum too ! I have been...
My husband finally had his catheter removed 2 days ago (was in for 41 days). The removal was done by a student but it all went fine ! BUT not so great trying to manage the incontinence - no real...
Thanks Bronson for the ladies only links - have saved them all in my favourites folder and will take a look. However, I think this forum provides the best advice and seems to be really busy. Nice to...
My husband's post-op PSA test is coming up in 2 weeks. In the UK they do not do ultra-sensitive PSA tests. The standard PSA test goes down as low as 0.1. I am sure I may be able to find a private...
Yes it appears to be. While in hospital the JP drain kept filling with urine - a CT scan showed a collection of fluid in the pelvic area (but not enough to drain). The drain actually fell out after a...
Hi Boogee I have read with interest your post on the F18 Sodium Fluoride PET Scan - this certainly sounds the way forward with your husband's post- op rising PSA. No question that if they can locate...
Hi Can't help you with radiation as my husband is still waiting for his first post-op PSA reading (in 2 weeks). As far as the perineural invasion goes my husband's path report stated that there was...
Just an update - husband went to hospital yesterday to have a cystogram. Unfortunately still evidence of urine leak from urethra/bladder (less than last time, so it is healing slowly), so catheter in...
Thankyou all for your helpful and reassuring advice. At now 4 weeks with the catheter in my husband is longing for the day it will be removed. He finds it difficult to do anything much with the...
I have found this a very helpful forum over the last few weeks since my husbands PCa Dx in Oct 2011. Although grateful we do not have to pay for medical treatment in this country we really had to...