Todd, I haven't been here in a while but I'm glad I came back to read your article and post. Thanks for giving words to what may of us have been going through! Ted...
Hi Michael, I did/do have bone mets in at least one area. I had early chemo on the recommendation of a doc at Dana Farber who tipped me off about a presentation at the ASCO meeting last year that...
Hi all, It's been a while since I've posted here, but have a question. I've been on Lupron Depot on and off for a couple of years and it seems to have been doing well keeping my PSA to undetectable...
Thanks for the suggestions, guys. As with anything else PCa, it's shades of gray. I'll take a SWAG and go from there. Ted...
I'm doing a little exercise with visualization and am trying to figure out when my PCa really started. I was DXed in April of this year, but it's obvious that the cancer was cooking along quite a...
Hi proscapt, Actually, both my RT (which starts next week) and HT are adjutant therapies. Rather, they started out as adjutant and in light of my rising PSA seem like salvage. So, I am already on...
JAVGuzzi, The copyright date is 2007. I just got it from his organization, Prostate Forum. It is a little dated, but the hormone drugs he mentions (Lupron, Casodex, and Proscar) are still in use and...
Just finished reading Snuffy Myers' book, "Beating Prostate Cancer: Hormonal Therapy and Diet." Several guys here had mentioned him and I wanted to check out what he has to say. It's very informative...
So, I went for the imaging a couple of weeks ago and of course, I had a full bladder. After they took the pictures of my guts the three techs were talking behind the wall and I was feeling like my...
iamretired, I was in pretty much your position not too long ago. Unfortunately, I had Gleason 8 PCa and was told by the first uro that I needed a radical prostatectomy. It's not that I didn't trust...
Not trying to be a fly in the ointment, but the more data I hear and read about PCa therapies, the more skeptical I become that anyone has much more than a clue as to how to treat it. After my RP...
Susan, I don't know if an x-ray is done for prostate cancer. In my case, they did a bone scan, which required drinking a liquid and then taking a scan of my bones to see if there was any detectable...
Interesting - I was prepared to read that statins cause prostate cancer. I've been taking one statin or another since I was in my early thirties. I found this sentence somewhat amusing: "Not only...
Thanks, Jerry, I appreciate the offer. I'm interested in reading what Dr. Myers has to say. Ted...
Thanks again, guys. Based on the fact that I'm also headed for RT, and after reading the posts from guys who have been through both, I am starting to think about canceling my upcoming triathlon....
Thanks, Terry and Robert. I actually googled Snuffy Myers and found his book available for $25 (plus a hefty shipping fee). I've seen one of his videos and am impressed enough that I think I'd like...
Peter, Thanks for the link. I had never heard of Dr. Myers. I checked him out on Amazon and his book, Beating Prostate Cancer (Hormonal Therapy & Diet) must be very popular because the cheapest...
Thanks again, guys. And I get the schadenfreude. First, my onc said 4 - 6 months on Lupron. Of course, I know this could last longer. Peter, I'm starting to hit the rower and weights again, but...
I feel for ya. I had to wait over a month to find out the result of the pathology report after my RP (and it seemed like it was presented as incomplete, though it wasn't). Hope you hear soon. Ted...
Thanks, guys. I kinda figured one of my docs would have warned me off Viagra/Trimix (what I've been using) had there been any issues with Lupron, but was interested in hearing first-hand experiences....
...does my voice sound higher? Of course, I'm kidding. Trying to find some humor in an unfunny subject. Just hoping I can maintain some sense of humor through all this. Otherwise, why go through it,...
Thanks for all the responses, guys. It's always good to know that others have come through the other side in one piece. Ted...
That's great news, David. I hope your wife's recovery is speedy and uneventful. As for you - I hope you can find a solution to your own discomfort. Take some much deserved time for yourself. Ted...
Well, I get my first shot of Lupron tomorrow. Going the one month at a time route just to see how it sets with me. May then go to a longer lasting version. Pay me now or pay me later is a good...
I've used canadadrugs.com and planetdrugsdirect.com. More satisfied with planet drugs direct....
Thanks, all. A little down at the moment. After RP I've been working on feeling better and recovering functions (incontinence gone and working on ED with Trimix). I actually imagined that there was a...
Thinking about you and your wife, David...and hoping for the best. Ted...
Best of luck, Upstate Guy. I started Trimix a little over a week ago. Finally was able to have sex at 28 units but unfortunately, it didn't last very long. My uro instructed me to increase the dosage...
Thanks, guys. David, I know it's ultimately up to me. I had hoped I wouldn't have to go the HT route, but was prepared for the eventuality. Apparently I have an angry cancer and it isn't dawdling....
Went for my RT picture and tattoo today. Rad doc said I should have HT along with the RT. She had previously said that HT would not be necessary with my adjuvant RT, but since my PSA has gone from...
Peter, In my Google meanderings I found something called an adjustable penile loop. It's made of soft rubber and has a part that slides to make it tighter or looser (important component for penile...
As I've mentioned in another thread, I'm using Trimix with limited results. My uro started me at 20 units and I've titrated up to 28 units. At 28 units I was able to have sex (not rock hard), but my...
So, I've taken all the great advice and not mixed pills with Trimix. Today I increased my dosage of Trimix to 28 units (from 25). The good news is that I got an erection that allowed penetration...
Peter, I am indeed at month 5 post op. I think the whole adjuvant scenario comes in play when they don't wait for a rising PSA (even though mine is already) but just plan on RT sooner. The rad doc...
Just wishing you both all the best, David. Lord knows you deserve it. Ted...
Congratulations, that great news! Should make your Thanksgiving even more special. Ted...
So sorry for your loss, Silverlace. Ted...
Thanks, guys. Just got back from my first PCa support group meeting. Should've gone sooner. Good to see guys who've been through more than me who are still walking and talking (and laughing). Good...
So, anyone else been in that nice bubble that comes after treatment when you think and feel like things are turning your way? And you start to believe that you may have turned the corner and are on...
Hi sanbenito and welcome, I've also just started using Trimix. My uro (nurse practitioner, actually) started me on 20 units and suggested I titrate up 5 units until I get the desired result (it only...
Wow, I'm glad I didn't try the pill + shot method. I thought I'd read that someone on this board had tried it and thought it might be a valid method, but I'll forget that now. I actually saw the...
Tried Trimix for the second time about an hour ago. First time (at Uro's office) was .2 mL (20 units) and that got me about 60% there. Tried 25 units tonight and it didn't seem to make much...
Thanks for the info and suggestions, guys. What I especially love about prostate cancer is the well-defined paths to take. All I have to do is look around me 360 degrees and choose the right one....
Thanks for all your views and suggestions, guys. First of all, I gave a wrong figure for my PSA (wishful thinking?). At last count, it was 0.6, not .06. The numbers in my sig lines are correct. PSA...
So, I've been going along for a few months with the idea that I would have IGRT/IMRT starting at the end of November (already have it scheduled). This was recommended to me by 3 docs, my regular...
Good on ya, David! Glad to hear that you're not depressed. Mind if I ask what you did to improve? I'm mostly ok, but do go through bouts of some depression. Don't want to add meds to my regimen, but...
Great news, man! I'd love to be able to reach 4 years clean. Enjoy your peace of mind. I'll lift a beer to ya....
Thanks for the replies and suggestions, guys. I have enough energy to do some rather strenuous things (shoveled 3 loads of wet manure yesterday - that's another story) and can walk a few miles. I'm...
So, 4 months post RP and I'm still feeling fatigue. Not the kind that lays me low or causes me to take a nap (which I haven't been able to do since I was 4), but just a general tiredness and lack of...
Thanks for the thoughtful replies, guys. I'm going to call my uro and set up an appointment for injections. Last time I saw him he mentioned using a pump, but from what I've read it leaves a lot to...