I am sorry to post this but I thought you would want to know on January 8th at 8:27 am my husband passed away (on my birthday). Don't be sad for me he is in a better place now he died in our home and...
Thank you all very much :) for all the beautiful words:) I just wanted to say that last week my husband and I cuddled on the couch and watched the Christmas story after wards we talked about...
:cry: well things have progressed my husband is now in a wheel chair and has a catheter taking enough morphine to knock out 5 people he was walking around on Sunday but couldn't on Monday he is...
Thanks c.c. For sharing. Cool granddaughter. The guys and gals on here seem to care a great deal about the two of you. It would devastate my granddaughters ages 4, 6, 11, 20 to see their very special...
Until 3 days ago things have been going pretty smooth no serious changes then 3 days ago my husband went on a rant to me and my mother inlaw and our very hurt granddaughter :( he complained about...
I want to thank everyone for all the love and support and amazing words and prayers you have given to my husband and I. Things have been crazy here hospice is now settled in and going smoothly we...
Yesterday after noon i called my husbands onc about his weight loss and the muscle loss....it wasn't good he informed me that my husband has cancer cachexia(wasteing disease ) it is when no matter...
Oh and my husband is in the late stage of mcrpc and we just found out friday he has cancer cachexia....so we have run out of time for a cure for us but pray that the mdv3100 will be a big help for...
although I agree with some of what fairwind said I do not agree with all of it !!!!There is not any where else to go other then here and get a straight answer !!!! not even your doctor!!! Although...
Dear tednsal hi my husband had same dx back in 2008 age 56.....gleason 9 now about your journey there are alot more options available since 1999 YAY!!!! my husband did taxotere then jevtana then...
I am wondering if anyone else on the MDV3100 clinical trial has had any side effects my husband has been complaining for the last 2 weeks he feels like he has the flu it will go away then come back...
My husband had a great response on the zytiga it lowered his psa for 7 months no side effects at all but it didn't stop his bone pain:( he is MCRPC GLEASON 9 he is now in a clinical trial for mdv3100...
HI mbisoux, it is possible the larger ones on the films are just arthritis most cancer spots are small dots and grow as the cancer spreads (still look like dots but patchy) arthritis is more solid...
hi sorry to hear its not working for you, u lasted longer on it then my hubby did so thats a wonderful thing, if jevtana is out have u thought of zytiga it worked for my husband for 7 months he is...
YAY!!!!!!!!!!!! :) GOOD JOB!!! HUGS AND PRAYERS for 0 psa cc...
I really liked the story of the dream :) i also have dreams dreams that a cure is found and i have "hope" that its in time for my husband I know that is a slim chance i stay up on all up and coming...
yay!!!!! concrats !! so happy for you and mz Bud and GIGI hugs and prayers:) C.C....
ty goodlife:)...
thank you all so much :) yes it will be nice to have a break for a while :) he does have to go back in September but thats just for his lupron injection:) then nothing til October yay!!! now just...
ty bud and mz bud yes it is good we are very happy about it :) he is still refusing to take and I quote"pot pills " lol so not sure what we will be trying next :) ty c.c....
well we got the results earlier this afternoon......psa went from 202.1 to 152.07 yay!!!we are very happy with that we do not have another checkup for 8 weeks :/ not sure i like that idea but its how...
Dear jitter99, I am sorry you are here but it is the best place to be to get information about what you are going through .. My husband also did the taxatere the jevtana and the zytiga and now he is...
nhwife, i am sooo glad things are going good and boring for you lol it has to be a very good thing cause here things are not so good I have been on the phone wednesday thursday and friday with ctca...
devastaed1, we had great results on the zytiga we were on it for 7 months it was wonderful he had no SEs on it and he felt really good and our of insurance covered it so we only had to pay our copay...
It has been a week and a few days since starting the mdv3100 clinical trial. He has improved on swallowing the large pills:) We have had a couple SEs nausea ,increased bone pain,and lots of...
Hi Nhwife just wanted to let you know how it is going here :) No major SEs but he is tired and having leg and back pain but he did that before mdv3100 but with in 45 minutes of taking them he is out...
he took the first dose of pills this morning at 10 am of the mdv3100 :) I just got the psa results this morning to so put them both as of today even though the psa test was done yesterday cc...
I was looking at husbands lab results and his p.s.a has jumped from 81. to 202. now thats a big jump and it worries me alot also there was a test for free p.s.a 11.3 i do not know what that is and...
Thank you everyone for the well wishes and hugs :) nhwife I do not have to write down when he takes them but keep track of any SEs he has that he didnt experience before or if they are worse.. yes we...
Well we went to the doctor today had blood work and ekg all turned out good for the clinical trials yay!!!! we will start taking the pills at 10 am tomorrow morning :)Looking forward to sharing our...
wooohooo!!!!!!!!!!!!!!NHWIFE I am so glad you all got started on the mdv3100 You have been in my thoughts daily we have been having alot of visitors so i have not had the chance to get on much :( We...
Dear Richard in 2008 my husband was dx stage4 with bone mets they gave him 6 months ...2010 he be came hrcp April 2011 they gave him less then a year .January 2012 he was dx with dead jaw or onj and...
Don't drink 3 days before or 3 days after and drink lots of water when your body is dehydrated the meds do not get diluted as they go through your system there for you will have more side effects it...
thank you everyone :) i just talked to our care manager at ctca and she said they are not sure when it will be but he will be getting the mdv yay!!!but when is the question :/ it is frustrating...
David Sorry it didn't go your way and you had all the bumps and bruising to go with it ... kepp your head up and get some rest hopefully they will figure out something else for you prayers sent your...
Got a call today to let us know that the mdv3100 will not be in until after July 23rd !! uggh Really!!!I asked so what day is the appointment I was told they will call after the medicine comes in...
I want to thank everyone for their response to this post :) RANGERTUG thank you so much for all the info you have given us on the mdv3100 and what your experience with it has been .We are looking...
His psa is now 81 it was 78 his psa test are done every 3 weeks they consider this stabilized psa . Thank you all for explaining i think i get the gist of it now lol:) the reason I asked was I did...
Your Results Learn more about your results below. Survival Probability 1 Year 35% 2 Year 8% Median Survival Months 9...
Months Slope Log (PSA) 0.48 Doubling Time 1.44 months Velocity 15.44 ng/ml/mo Years Slope Log (PSA) 5.77 Doubling Time 0.12 years Velocity 185.28 ng/ml/yr i do not know what any of this means...
Buck naked, I am sorry about psa going up but it is really great news on the lesion part..... my understanding is the lesions is what causes death sorry if i am wrong (i am alot these days lol) I...
Thank you all for the response I did some research on sleep apnea the last few days and talked to the nurses in my family it should not effect the clinical trials but sleep apnea does affect cancer...
We just got our results from husbands sleep study and he has moderate sleep apnea i cant see where this would effect clinical trials.....but does anyone know if it will???? ty C.c....
nhwife that is so awesome!:) we will be going back july 16th also yay!!!! i look forward to comparing notes with you.... congrats !i believe this is going to be a great thing for us:)...
well we went and drove 3 hours to find out that we will not be starting mdv3100 til July the doc assures us my husband will be part of the trial but they do not have the pills yet so I do not know...
My husband has had prior chemotherapy and it all failed for him or he had such sever side effects they had to stop it . we are lucky on the travel part it is 2 and a half hours away from us in Tulsa...
i so forgot to mention the ensure i make smoothies with those :) half ensure and half yogurt 1/2 scoop of protein powder add what ever fruit you like but berries are the best and the yogurt is better...
David I am sorry you are going through all this but it sounds so familiar as my husband is doing this too but he has always been a small man he can not afford to lose the 4 pounds he is losing every...
Zimac no i have not heard of it but will ask onc about it Kathy thank you very much :) Goodlife no there is no placebo in this trial i will let your know exactly why when I find out but my...