Boogee is actually our screen name which was our Bulldog kennel name when we showed Bullgogs and it's short for our last name: Bugayong. My last post was our EM name reference. Sorry...
It is a combo of husband and wives names. Roland Cynthia = ROLNCIN We also have a Corvette with the same license plate: ROLNSIN spelled differently meaning just what it spells ....
Hi all, I like Donna and many others try and check in regularly and post when I have something to share. My husband has asked me to do the research, and we talk about what I find , as a team. We...
Hi John, Where in the country are you located. Perhaps someone can chime in with a MO or RO referral/ Good luck with your journey but know we are all here for your support and sorry for this blow....
Hi Paul, Glad to hear of your PSA drop. My husband started a 3 month Lupron treatment 6 years ago and his PSA also dropped substanitually. FYI my husband didn't get side effects until about the 3...
We have been long time members on HW but haven't posted in awhile. Just wondering if Tall Allen is O.K. as he hasn't posted in awhile. He always had good articles and studies to share. Thank you in...
To update the PSMA GA 68 scan we had applied for: It was denied by our insurance and reason that was given: Clinical studies have not proven that this service is effective for treatment of members...
We have been waiting for almost a month for this scan to be authorized by our insurance. I am hoping it to be paid for by our insurance, as I have scheduled an appt. for this scan at UCSF. Will keep...
TA, Thank you very en lightning article.We have already done 7 and 8 on the pet indicator. Perhaps we can do another trial if insurance isn't a covered benefit. BOOGEE...
Well TA, I don't know if the spot on his T-11 spine was either of those, blastic or lytic. The F-18 scan that was done at Stanford, was done in a trial . He since has had 2 other mets found in bone...
I don't know anything about these rules, but will answer that I am the wife of a patient. My husband wants me to ask questions and do the research then we make our decisions about treatment options....
My husbands new Oncol. changed his therapy from Degarelix back to Lupron 2 months ago. He had a good reaction of lowering his testosterone from 57-down to now 19, although his PSA jumped from .8 up...
Saipen. Did you mean the scan isn't reliable if the PSA is less than 1.0. My husbands PSA is now .8. His testosterone is 24 down from 58 and that was when he was on degarelix. So it has dropped with...
AK123 That's what our radiation Oncol. would do. My husbands past scans (traditional) have in the past showed mets so he has had radiation to his rib, spine and pelvis over the past 3 years Oncol....
My husbands radiation Onc. recommended the Axumin scan to to detect to find prostate cancer across local and distant sites. He had a traditional CT and and bone scan a month ago. CT scan showed a...
Sorry to hear of everyone's plight with not only this dreaded disease, but with the insurance inadequacies. Thank you to who have posted other avenues to follow up with help with coverage. BOOGEE...
Hello all, It's been awhile since I have posted but I have to reply to this post. My husband is 60 and has fought this battle since 2011 and although he has great medical insurance through his...
CURE, Did your Dr. tell you that at your young age of 56 that the PSA numbers you indicate are low? When my husabnd was DX at age 53 his PSA was 4-5 and was told he should be almost undetectable....
FUZZ, WHAT METHOD OF RADIATION ARE YOU HAVING DONE. CAN YOU ELABORATE A BIT MORE? MY HUSBAND WAS TOLD HE MAY HAVE DIHARREA AND TIREDNESS HOWEVER NEVER MENTIONED GAS WHEN HE HAD RADIATION. BOOGEE...
Horsegal, My husband was on Lupron for a few years with horrible side effects. Husbands Oncol. changed to Degarelix another testosterone lowering drug with hardly no side effects. Don't know how it...
Jerry, I would take those numbers and hope you continue to do well. BOOGEE...
Thanks Fairwind. I wish you well with treatment options. BOOGEE...
Thanks Guys, Perhaps my cousin (who BTW is my cousin) so it's her husband who is being treated, may have got the actual 70 treatments incorrect. She isn't as involved as many wives are in his...
Thanks to all of you. I don't really know how much research he did but has a friend who had it done and was happy. He is 65 and says his insurance will pay for it, but I too thought 90 treatments was...
Hi all, I asked questions RE: this treatment some time ago. Now my cousin has decided to go with this Proton beam therapy and he is a G6. They are recommending 90 treatments, which seems excessive....
My husband had testicular pain, was put on antibiotics, as his PSA was rising. Was DX at 53 with PSA of 6.3, had biopsy and the rest is history. Read sig. below Our Urologists suggested he probably...
Fairwind, Thank you for your reply and it's a good thing his PSA is so low. Perhaps they will be scarce for a long time at least that's what we are hoping for! BOOGEE...
MY HUSBAND'S PSA HAS BEEN STEADILY RISING ALL THIS YEAR AND IS STARTING HIS SECOND RADIATION TREATMENT TO ANOTHER PART OF HIS BODY, HIS PELVIS. HE TOLERATED RT TO HIS RIB HIS RIB 1 1/2 YEARS AGO AND...
AS and Andrew, I agree with you all that he should consider AS. I will again try to get him to get onto this wonderful site HW and hopefully he will consider AS. BOOGEE...
Thanks for all your reply's Will read TA's link soon I want to so much recommend AS but we all know each man's journey is his own, and your correct I would wish for my husband to have been DX with...
My cousins husband has just been DX with a G6 in 1-2 sample cores. He is researching but wants to have PBT. He just doesn't want to do active surveilence. I haven't seen much lately whether PBT lives...
Beth, Please read TA review links below Jaybee post if you haven't. I pray for you & Gary. BOOGEE...
Please keep us informed as to his progress. Thanks, BOOGEE...
Thanks Suzi and I can refer her to inspire. BOOGEE...
Thanks guys will read in it's entirety. BOOGEE...
I was just on the breast cancer site and noticed one of Veteran members posted about this BAT treatment (Bi Polar Androgen Therapy) for PCa. I don't see anything about it on PCa site and was...
I post on the prostate cancer site as my husband has PCa. Now I have referred my friend to this site who has survived breast cancer 6-7 years ago. She had another lumpectomy today but was told breast...
Snowflake, For you Dad's sig. to show up when posting you have to click one of the 3 boxes below the post, that says INC. SIGNATURE. We all feel your pain and we have all, mostley gone through your...
Snowflake, Just in case people may have missed this thread, you may want to start another post with just that question about Dr's in the Toronto area. BOOGEE...
Snowflake, Although I don't know your Dad's stats, and I don't have experience with Dr. Kwon as we live in Ca. I just want to to know never give up hope, stay positive and get other opinions such as...
BOBBY MAC, Have you thought of seeing a medical Oncol. who specializes in PCa? My husband is also a G-7 and started Lupron 5 years ago. Our Oncol. switched him to Degarelix 3 years ago without those...
BTW, I haven't asked several times I asked once and this question wasn't pointed in your direction exclusively, however thanks for the link. BOOGEE...
I HAVE ATTEMPTED TO ASK THIS QUESTION BEFORE: IS ANYONE KNOWLEDGEABLE RE: THE DIFFERENCES BETWEEN THESE 2 PET SCANS? MY HUSBAND HAD THE F-18 /FDG IN 2014, AND WONDERED IF THIS NEWER TEST DIFFERS AND...
Sean, That's terrific test results. We all hope the RP did the trick and that your PSA stays Undetectable. BOOGEE...
Hi Sean, How old are you as I don't see that in your stats.? It appears that you didn't get a second reading on your slides? It may be your Gleason-score could have been higher. My husbands case was...
Does anyone know the difference between this mentioned 18-FDCPyl pet scan and the older F-18/ FDG Pet Scan? BOOGEE...
Hi Cat, Yes that is what mets. mean metastasis. If you go to the prostate page look for the heading abbreviations it's the second title down. It will give you abbreviations for terms that people use...
Hi Diane , To clarify: Our Oncol. thought it was organ confined as he didn't see any cancer in any of the lymph nodes he examined.However Dr's can't see if it had escaped in blood . This is why Dr's...
Hi Diane, Actually our Urologists was almost certain it was confined until he had his first PSA. Most Dr's wanted us to do radiation but something told me not to., I thought it had already escaped....
Mark all the best wishes to you and please keep us informed of your progress with chemo. I hadn't heard of the studies mentioned or trials. As you can see my husbands stats after 5 years with this...